RE: To late for treatment

[Guest guest]

Where do you live? How severe is his head? 18 months should not be

too old for at least some improvement in a helmet, if you act

immediately. My son is going on 22 months and still getting subtle

improvement in a helmet. A helmet is much less invasive than surgery.

At this point, you should not expect improvement on its own.

-Kathy, mom to almost 22 months

brittney73@... wrote:

My son is now 18 months old and too old for a helmet to help give

him a normal head shape. We have been trying to get him in a helmet

since around 6 months and the doctors kept saying the plagiocephaly

would fix itself by the time he turned 1. At 18 months, he is still

very flat on the right side of his head and now too old for a helmet.

He also has misaligned (sp?) facial features. Does anyone know of any

reconstructive surgery options for when he gets a little older? I am

have trouble finding any information out there that is avaliable in the

US.

[Guest guest]

I would still consider banding. Some improvement is better than none. There are also alternative treatments that can help, Chiro, CST or Cranial Osteopathy. My son started wearing his Starband at 18 mos and is graduating next week after 8 1/2 months. It's been far easier than I thought. He got all the improvement he could get in the right places with the very little growth he had. He looks much better. In addition we have been seeing a chiropractor and a Cst therapist. There are other children in this group who started late and got good improvement, look in the photos for the Older Plagio Kids folder. Just recently a baby started at 20 mos. You may want to check the Olderplagio group for suggestions too. Another alternative treatment that seems to be effective from what I read there is NCR. , Tampa, Fl, 26 mos, Starband for 8 1/2 mos

Plagiocephaly From: brittney73@...Date: Thu, 25 Mar 2010 15:10:34 +0000Subject: To late for treatment

My son is now 18 months old and too old for a helmet to help give him a normal head shape. We have been trying to get him in a helmet since around 6 months and the doctors kept saying the plagiocephaly would fix itself by the time he turned 1. At 18 months, he is still very flat on the right side of his head and now too old for a helmet. He also has misaligned (sp?) facial features. Does anyone know of any reconstructive surgery options for when he gets a little older? I am have trouble finding any information out there that is avaliable in the US.

[Guest guest]

Hi ,

Please let us know how it goes. 

I'm especially wondering whether you were able to get the flat spot

filled in up high.  Up high is 's stubborn area.  We still see the

flat area filling in.  It seems to be filling in from the bottom and

hasn't reached the top part of the head yet.  We are still hoping.  At

least when grows up people will be looking up at him instead of

down as we are now.

Thanks,

Kathy, mom to almost 22 months now with very mild plagio

Lulei wrote:

 

I would still consider banding. Some improvement is better than

none. There are also alternative treatments that can help, Chiro, CST

or Cranial Osteopathy.  My son started wearing his Starband at 18 mos

and is graduating next week after 8 1/2 months. It's been far easier

than I thought. He got all the improvement he could get in the right

places with the very little growth he had. He looks much better. In

addition we have been seeing a chiropractor and a Cst therapist. There

are other children in this group who started late and got good

improvement, look in the photos for the Older Plagio Kids folder. Just

recently a baby started at 20 mos. You may want to check

the Olderplagio group for suggestions too. Another alternative

treatment that seems to be effective from what I read there is NCR. 

 

, Tampa, Fl

, 26 mos, Starband for 8 1/2 mos

 

 

Plagiocephaly

From: brittney73ymail

Date: Thu, 25 Mar 2010 15:10:34 +0000

Subject: To late for treatment

 

My son is now 18 months old and too old for a

helmet to help give him a normal head shape. We have been trying to get

him in a helmet since around 6 months and the doctors kept saying the

plagiocephaly would fix itself by the time he turned 1. At 18 months,

he is still very flat on the right side of his head and now too old for

a helmet. He also has misaligned (sp?) facial features. Does anyone

know of any reconstructive surgery options for when he gets a little

older? I am have trouble finding any information out there that is

avaliable in the US.

[Guest guest]

I would definitely try to get him in a helmet and try to get as much correction with it as possible.  But even after treatment facial asymmetry can still be there.  The plastic surgeon at Vanderbilt University that my son sees, Dr. says that it could take up to 2 more years after the helmet comes off for the face to even out.  But there is a surgical option if the face doesn't even out.  Dr. performs the surgery.  He probably wouldn't even consider it until a child is around 3.  He says he rarely has to resort to surgery. So I would try very hard to get the helmet first.  

On Thu, Mar 25, 2010 at 10:10 AM, brittney73@... <brittney73@...> wrote:

 

My son is now 18 months old and too old for a helmet to help give him a normal head shape. We have been trying to get him in a helmet since around 6 months and the doctors kept saying the plagiocephaly would fix itself by the time he turned 1. At 18 months, he is still very flat on the right side of his head and now too old for a helmet. He also has misaligned (sp?) facial features. Does anyone know of any reconstructive surgery options for when he gets a little older? I am have trouble finding any information out there that is avaliable in the US.