Disappointed: Advice needed

March 25, 2010

So we finally had the long-awaited appointment with the neurosurgeon yesterday.

While I'm thrilled that he considers his plagio " mild, " I'm also a little

disappointed that he wasn't willing to discuss helmet therapy at all. (Mild

based on a scale in the doctor's head... Nothing scientific or measurments...)

The doctor said he wants us to do " aggressive repositioning " with him for the

next two months (at that point, Brody will be almost 8 months old) and see how

it is at that point. Um, hello, what does he think we've been doing for the

last 5 months. As soon as we knew about his plagio, we immediately began

repositioning. And at the same time, how much can you truly reposition a

rolling 5 month old baby? I feel like we've sort of hit a dead end with making

any progress on his plagio/asymmetry on our own and the next step is helmet

therapy, but he wasn't into that option at all. I fought the idea of Brody in a

helmet for a few months for a long time in the beginning, but after these posts

and all your great attitudes and advice, I've come to be OK with it--only I'm

ready for it NOW, not 2 months down the line when we've missed out on so much

growth.

Did anyone else find resistance in this way? We're meeting with a cranio

specialist tomorrow and I'm hoping to get a different report. Does it sound

weird that I WANT them to prescribe the helmet? As a parent, I want to know

that I've done every little thing possible for my child and got nothing but

resistance from the neurosurgeon... Please help...

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