Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 CFRI because it does both RESEARCH & help/education/fund for those here with CF and their families.... LOVE & HUGS, GRANDMOMBEV CFRI or CFF? Hi Everyone: What is the difference between these two groups, CFRI and CFF? Which one do you recommend for making donations? Thanks. Debbie _________________________________________________________________ Click, drag and drop. My MSN is the simple way to design your homepage. http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/ ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Just my personal opinion from experience: give to CFRI. It is an independent research supporting group that does a lot to educate professionals and non professionals about CF. Low budget outfit. The CFF (personal opinion from years of experience) coordinates golf tournaments, fund raising dinners and extravaganzas, cocktail parties, bike rides, walks, and other fund raising events. The CFF has branches in most states, and the branches do the fund raising. The funds then go to the CFF for distribution to companies that agree to share their research profits with the CFF. The branches have no control over the funds they raise. Hal CFRI or CFF? Hi Everyone: What is the difference between these two groups, CFRI and CFF? Which one do you recommend for making donations? Thanks. Debbie _________________________________________________________________ Click, drag and drop. My MSN is the simple way to design your homepage. http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/ ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 CFRI= Cystic Fibrosis Research, Inc. CFF is the " Foundation! " CFRI.org. is on line, up-dates their webpages, publishes their news letters, and are just plain good people--started by parents, now run by combinations of parents, cf adults, cf young adults and kid volunteers! I love them! Alot! AND they co-operate with CF Roundtable/United States Association of Cystic Fibrosis Adults and other organisations, AND they feature BEV at their conferences! n Rojas, California, USA CFRI or CFF? Hi Everyone: What is the difference between these two groups, CFRI and CFF? Which one do you recommend for making donations? Thanks. Debbie _________________________________________________________________ Click, drag and drop. My MSN is the simple way to design your homepage. http://click.atdmt.com/AVE/go/onm00200364ave/direct/01/ ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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