Re: went to the allergist and guess what/polps/ct scan/lab work

[Guest guest]

sorry to hear about the polyps. I don't know anything about them but

I have to believe that if something is blocking the normal drainage

systems of the sinuses, bacteria is going to grow more easily. My

son is having his adenoids removed--they are blocking his sinus

drainage by 80% which is why he is snotty a lot. Poor kid cannot

breathe through his nose. He also just cultured PA for the first

time so we are excited about his adenoid surgery (is that wierd or

what?!). We are hoping that the culture was only reflective of what

was in his sinus cavity and that it hadn't reached the lungs yet.

Maybe that is what happened to your son too. Hard to tell. Ashton's

ENT has also suggested a CT scan so I will be reading the responses

to your question.

mom to Ashton almost 3 wcf

> Hi all, first I want to thank all of you for telling me to keep up

on

> 's sinus issues. It all started today, woke up

snotty again and

> coughed all last night. So I called his allergist and scheduled an

appointment for

> today, I wanted answers. I got there and explained that

just always has

> snotty issues and that we need to find out what is going on. I

explained that

> recently 's culture tested positive for pseudomonous and was

treated

> with cipro and tobi, I also told him as soon as the antibiotics

stop it comes

> right back. First thing he did was look into 's ears and

nose, guess

> what he found in the nose, POLYPS, Tomorrow we are scheduled for a

CT scan to see

> what we are dealing with in the sinus cavities, also was

tested for

> 40 different allergens to see if he was allergic, all came back

negative but he

> said that they probably are a false negative because he is still

quite young,

> so we will be more testing when he gets older. As for right now

has

> been placed back on to Nasonex, Dallergy and now Zyrtec at least

until we can

> find out about what's going on. Also he has been scheduled for

bloodwork,

> something to test the IEG levels, about how his body reacts to

certain things, any

> help explaining this would be greatly appreciated. so tomorrow we

are going to

> be busy. OK I need some info as to what to expect, has

never had a CT

> scan, his doctor said it was a fast easy test but I want to hear

the lowdown

> from you all, And to all who have had experiences with polps, what

are we looki

> ng at for a treatment plan? I was sitting in my car on the way home

thinking

> about pseudomonous, couldn't this be harboring in his sinus cavity

and that's

> why he tested positive for it and if we can somehow clean out his

sinus cavity

> that it could no longer live there. I am not familiar with the

sinus cavity

> issues with CF, His doctor said it could either way, one it could

be from

> having CF or it could be from allergies. What I want to know is

there treatments to

> help, his doctor said the worse case scenario would be surgery but

we

> wouldn't deal with that until it became extreme. So What kind of

treatments are you

> all doing to help clear sinuses? Well Let me know, I am sorry I

rambled but

> this is all new to me and I want to know what is going to happen.

Also please let

> me know how CT scans are. Are they dangerous? Are they scary?

Thankyou to

> all!!!!

> , mommy of 5 years old w/cf/adhd/etc and 2 years

old no CF

>

>

>

[Guest guest]

; I am sending you a link about IgE and allergies; do not panic by the rest

of

the stuff on the page; just stick with the IgE mediated allergic responses--

Love to you and to , n Rojas

http://users.rcn.com/jkimball.ma.ultranet/BiologyPages/A/Allergies.html

went to the allergist and guess what/polps/ct scan/lab

work

Hi all, first I want to thank all of you for telling me to keep up on

's sinus issues. It all started today, woke up snotty again and

coughed all last night. So I called his allergist and scheduled an appointment

for

today, I wanted answers. I got there and explained that just always

has

snotty issues and that we need to find out what is going on. I explained that

recently 's culture tested positive for pseudomonous and was treated

with cipro and tobi, I also told him as soon as the antibiotics stop it comes

right back. First thing he did was look into 's ears and nose, guess

what he found in the nose, POLYPS, Tomorrow we are scheduled for a CT scan to

see

what we are dealing with in the sinus cavities, also was tested for

40 different allergens to see if he was allergic, all came back negative but

he

said that they probably are a false negative because he is still quite young,

so we will be more testing when he gets older. As for right now has

been placed back on to Nasonex, Dallergy and now Zyrtec at least until we can

find out about what's going on. Also he has been scheduled for bloodwork,

something to test the IEG levels, about how his body reacts to certain things,

any

help explaining this would be greatly appreciated. so tomorrow we are going to

be busy. OK I need some info as to what to expect, has never had a CT

scan, his doctor said it was a fast easy test but I want to hear the lowdown

from you all, And to all who have had experiences with polps, what are we

looki

ng at for a treatment plan? I was sitting in my car on the way home thinking

about pseudomonous, couldn't this be harboring in his sinus cavity and that's

why he tested positive for it and if we can somehow clean out his sinus cavity

that it could no longer live there. I am not familiar with the sinus cavity

issues with CF, His doctor said it could either way, one it could be from

having CF or it could be from allergies. What I want to know is there

treatments to

help, his doctor said the worse case scenario would be surgery but we

wouldn't deal with that until it became extreme. So What kind of treatments

are you

all doing to help clear sinuses? Well Let me know, I am sorry I rambled but

this is all new to me and I want to know what is going to happen. Also please

let

me know how CT scans are. Are they dangerous? Are they scary? Thankyou to

all!!!!

, mommy of 5 years old w/cf/adhd/etc and 2 years old no CF

[Guest guest]

..

> Also please let

> > me know how CT scans are. Are they dangerous? Are they scary?

> Thankyou to

>

Somehow I didn't see the first post - just the reply. I'm surprised

it took them so long to find the polyps. Polyps can occur because of

allergies but usually the main cause in the very young child is due

to having CF. That is how we found out our son had CF, he kept

getting polyps.

By the time you read this will have already had the CT scan.

It's one of the easiest tests he will have. As long as the child

doesn't have too many in a year ( sort of like Xrays) he should be

fine. CT scans are the test of choice for the sinuses because they

show in better detail what is going on in the sinuses. Our sons

maxillary sinuses were totally impacted meaning there wasn't a black

spot where the sinuses should be.

Unfortunately once the child starts getting polyps bad enough to have

surgery they will propbably reoccur at some point and the surgery may

have to happen again. Surgery may be the only way to improve the

drainage in his sinuses so the crusts do not build up.

The CF doctor will probably want you to rinse his sinuses out every

night on a routine basis with a saline solution to help wash out the

gunk. Let us know what they find.

jan

[Guest guest]

In a message dated 2/26/2004 12:58:45 PM Central Standard Time,

findacureforcf@... writes:

,

My oldest has had 3 surgeries so far to get rid of polyps!! And as far as the

pseudomonas in the sinus cavity it is probably where it is coming from. We

have had our daughter cultured there many times to see if it is in her nose and

sure enough it is. We have done nose irrigation's with saline, antibiotics and

nothing seems to get rid of the pseudomonas in her nose. So right now we just

do treatments so she doesn't get it in her lungs. They are doing studies on a

gargle that will put a barrier around her throat so the pseudomonas will not

get into her lungs but it is not FDA approved yet. So we are waiting for that

treatment. We have been doing glutathione with a sinuneb for the last 3 months

and we went into the ENT on Thursday and the polyps that are there did not

grow anymore and when they were looking in her nose I notice that the thick

mucus that was in her nose before was gone. I asked the doctor about that and

she

said well what ever you are doing it is helping. So we are going to continue

to do the glutathoine in the nose. The CT scan is nothing it only takes about

10 minutes and the tech. are usually really good with kids as long as they know

there is a toy afterwards they do just fine. Keep us posted and if you have

anymore questions ask away. Deb A