Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Nice work!!! I definitely appreciate the week- I noticed that last fall. I also couldn't help but notice they managed to put CF Week in the middle of Breast Cancer Month. It's nice to have some recognition, but I wish they'd thought a little harder about the month to put it in- breast cancer has a much louder " mouthpiece " and more national attention than CF ever will. Elias Re: YEAH!! Letter from NC Senator/CF advocacy in usa Now--and this is probably wishful thinking, if only Kerry will choose as his running-mate, we may have some real congresstional help here! WOW! Love and appreciation to you and to for a big boost! n Rojas YEAH!! Letter from NC Senator Dear Mrs. Wood: Thank you for your e-mail regarding Cystic Fibrosis Awareness Month. I appreciate hearing from you on this important issue. I have tremendous concern for the 30,000 individuals in our country who live life each day with Cystic Fibrosis (CF). It is impossible to imagine the difficulties that everyday life presents for these individuals. The Cystic Fibrosis Foundation estimates that over 10 million people carry a recessive CF gene. I believe it is important that we expand education efforts to reach these individuals and make them aware of CF. You may be interested to know that S. Res. 98 passed the Senate by unanimous consent on September 25, declaring a National Cystic Fibrosis Week in October 2003. I am pleased that we were able to pass this legislation and help promote education about this disease. As you know, S. Con. Res. 298 was introduced by Senator and expressed the sense of Congress to declare May 2004 as Cystic Fibrosis Awareness Month. This bill has been referred to the Senate Judiciary Committee, and I look forward to supporting it when it comes to the Senate floor. Please be assured that I will continue to advocate for legislation that supports individuals suffering with Cystic Fibrosis. Thank you again for your e-mail. Please keep in touch. Yours sincerely, United States Senate **PLEASE NOTE: You have received this message from an electronic correspondence system that is not capable of receiving responses. Messages sent in direct response to this message will not be received by my office. To communicate further with me about this or any other issue of concern to you, please return to my online web form at http://edwards.senate.gov/mailform.html. I thank you for sharing your concerns, and I look forward to hearing from you again soon. You may also choose to write to me with your concerns via my Washington, D.C. or Raleigh offices. Those messages should be directed to: Senator United States Senate 225 Dirksen Office Bldg. Washington, DC 20510 fax - or - 301 Century Post Office Bldg. 300 Fayetteville Street Mall Raleigh, NC 27601 fax ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2004 Report Share Posted March 8, 2004 Now--and this is probably wishful thinking, if only Kerry will choose as his running-mate, we may have some real congresstional help here! WOW! Love and appreciation to you and to for a big boost! n Rojas YEAH!! Letter from NC Senator Dear Mrs. Wood: Thank you for your e-mail regarding Cystic Fibrosis Awareness Month. I appreciate hearing from you on this important issue. I have tremendous concern for the 30,000 individuals in our country who live life each day with Cystic Fibrosis (CF). It is impossible to imagine the difficulties that everyday life presents for these individuals. The Cystic Fibrosis Foundation estimates that over 10 million people carry a recessive CF gene. I believe it is important that we expand education efforts to reach these individuals and make them aware of CF. You may be interested to know that S. Res. 98 passed the Senate by unanimous consent on September 25, declaring a National Cystic Fibrosis Week in October 2003. I am pleased that we were able to pass this legislation and help promote education about this disease. As you know, S. Con. Res. 298 was introduced by Senator and expressed the sense of Congress to declare May 2004 as Cystic Fibrosis Awareness Month. This bill has been referred to the Senate Judiciary Committee, and I look forward to supporting it when it comes to the Senate floor. Please be assured that I will continue to advocate for legislation that supports individuals suffering with Cystic Fibrosis. Thank you again for your e-mail. Please keep in touch. Yours sincerely, United States Senate **PLEASE NOTE: You have received this message from an electronic correspondence system that is not capable of receiving responses. Messages sent in direct response to this message will not be received by my office. To communicate further with me about this or any other issue of concern to you, please return to my online web form at http://edwards.senate.gov/mailform.html. I thank you for sharing your concerns, and I look forward to hearing from you again soon. You may also choose to write to me with your concerns via my Washington, D.C. or Raleigh offices. Those messages should be directed to: Senator United States Senate 225 Dirksen Office Bldg. Washington, DC 20510 fax - or - 301 Century Post Office Bldg. 300 Fayetteville Street Mall Raleigh, NC 27601 fax ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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