Re: Intro and question, anyone else's child have ulcerative colitis?

[Guest guest]

Our daughter was diagnosed at age 4 with UC then changed to Crohns

after biopsies came back. We've been on the diet for 16months now.

Her bloodwork is now normal. Stools are normal. Tolerance for

food continues within the tolerance list. It changed our world but

Alas its all worth it. She is med free, growing, and full of

energy.

We found a baseline of foods that would form her stools then

progressed from there trying one food at a time to check for any

reactions. We went very very slow. Ella needed months to tolerate

much fruit or 2-3 day dripped goat yogurt. (allergy to dairy)

We too went thru rounds of anti biotics in the NICU and after with

ear infections. I believe the research that Crohns is a Para

tuberculosis co-infection with other bacteria/yeast. Renegade

Microbes took over ELla's gut but we have since beat them back with

this diet.

Brent Father of Ella age 5, SCDiet 16mon

>

> Hi all,

> My son (just under 3 years old) was diagnosed with ulcerative

colitis

> 2 weeks ago tomorrow, and we were lucky enough to be told about

this

> diet the same day of the diagnosis and started it immediately. It's

> been rough having it all thrown at us out of the blue, I have been

> really trying to follow the diet religiously but have messed up

> several times. Anyway, we have high hopes that we can heal his gut

> before we want to resort to drugs his GI doctor wants us to give

him.

> We plan to start the intro diet tonight, since we didn't do that in

> the beginning.

>

> Anyone else have a small child with ulcerative colitis? I can see

> that this list is primarily for Autistic children, our son has no

> Autistic symptoms, just the colitis. We haven't been able to find

> anyone with such a young child with this illness as of yet. We have

> no family history, although we are of Jewish heritage and have been

> told that puts us at higher risk statistically. My husband and I

> believe that our son developed this as a result of early antibiotic

> use/overuse, but our GI doctor dismissed that immediately, so we

> don't have a professional on our side who believes in the power of

> diet to heal. We sort of feel " out there " on our own right now.

>

[Guest guest]

Hi,

My oldest son was diagnosed with ulcerative colitis at 6 weeks of

age. He was so sick by the time they did his bilateral endoscopy

that he was passing pure blood in his diapers. At such a young age,

this was quite debilitating, as he was losing weight and becoming

dehydrated. That was back in 1997, and I'm happy to tell you that my

son is now a healthy 10-year-old with a normal diet. We strictly

adhered to a dairy-free diet for 2 1/2 years, but he also need a

month or so of steroids to get it under control (probably because he

was so young).

Try not to let your medical professional's lack of belief in dietary

intervention dissuade you, although I know that can be easier said

than done. We are now dealing with my 3-year-old daughter's " leaky

gut " issues, along with gluten/dairy allergies/intolerances that

contribute to her sensory integration dysfunction. We had a Harvard-

trained GI doctor tell us that dietary changes probably wouldn't help

her, yet within a week of removing all dairy and gluten from her

diet, her balance and coordination issues improved at least 75 %.

Just remember, the proof will be in the results you'll begin to see

when you make the changes in your child's diet. They may not be

immediate, but you will start to see them eventually.

Jill

> Hi all,

> My son (just under 3 years old) was diagnosed with ulcerative colitis

> 2 weeks ago tomorrow, and we were lucky enough to be told about this

> diet the same day of the diagnosis and started it immediately. It's

> been rough having it all thrown at us out of the blue, I have been

> really trying to follow the diet religiously but have messed up

> several times. Anyway, we have high hopes that we can heal his gut

> before we want to resort to drugs his GI doctor wants us to give him.

> We plan to start the intro diet tonight, since we didn't do that in

> the beginning.

>

> Anyone else have a small child with ulcerative colitis? I can see

> that this list is primarily for Autistic children, our son has no

> Autistic symptoms, just the colitis. We haven't been able to find

> anyone with such a young child with this illness as of yet. We have

> no family history, although we are of Jewish heritage and have been

> told that puts us at higher risk statistically. My husband and I

> believe that our son developed this as a result of early antibiotic

> use/overuse, but our GI doctor dismissed that immediately, so we

> don't have a professional on our side who believes in the power of

> diet to heal. We sort of feel " out there " on our own right now.

>

>

>

[Guest guest]

A note to encourage-

Our story is not super dramatic. But a reminder to listen to your gut.

My 2 year old son has had 10 plus bm's a day since the day he was

born. I breastfeed and he threw up constantly.

Because he was on the low end of normal weight gain, he wasn't

considered failure to thrive so no medical professional or family

member would listen to me.

We moved states and had to get new dr.s that still didn't help.

At 4 months he was still doing these things and had developed horrid

amounts of Eczema and huge lymph nodes behind his ears. Again I was

told by my pretty progressive peditrican that this was normal draining

etc. etc.

I cut out dairy out of my own diet and that seemed to help. When we

introduced rice cereal etc. he thew it up. And stopped sleeping thru

the night.Which he had been doing since 10 weeks.

He decided to quit nursing at 10 months and I searched for formula to

help him. Pumping was a joke for me. Although better this time than

with my first child.

I just kept feeling that something wasn't right. I kept telling my

husband that he might look and act fine on the outside but I wondered

if something wasn't brewing right on the inside.

We went thru a series of allergy testing and was again told that

everything thing was fine and to take a vacation. I actually had a dr.

write me a perscription for a cruise. I'm not a hyper, over the top

person. So I couldn't possibly think that I appeared to be looking for

a problems that weren't there.

I met a woman in my mops group that has a 4 year old son that is

autistic. She saw my prayer request at our church and approached me.

Although my son isn't Autistic she offered the name of her dr.

The new dr. is the one that tested a zillion things and offered some

solutions. But it was the nutricianist in his office that looked at

our results and said that we should try SCD. Our Dr. supports SCD but

isn't sold on it either.

I shutter to think how bad he would have been if we had been on the

Standard American Diet. We had been on a journey of simple, organic,

low processed alternative foods already because of the vomit etc.

My hippy roots made me search out different foods in case it was

allergies etc.

I found the SCD diet to be very overwhelming at first. We ate a lot of

pasta and rice before. But within the first week his bm's went down to

3 a day. And he begain sleeping thru the night. And began to act

calmer and the bloating of his stomach has gone down-which I never

realized were problems anyway. His ezcema is gone and the nodes are

very low.

We never saw a huge die off and we aren't using yogurt yet. We're

still in the first and part of stage two foods. Cooking and freezing

in bulk is the best for us. We take a cooler with us everywhere for

snacks.

It's going to be a journey that will be worth it. I thank god everyday

for strength, wisdom and patience. It's just the way we eat now as a

family. I pray we are on the right route for his healing.

It does bug me that I can't really see if we are. But the symptoms are

going away. I'm at a point where we have to start tweaking some

things for better results and healing. We will and you will too. Even

if we need to do other things for better health, this is a great

starting point and wont hurt to try it too.

Happy week, :)Aimee

>

> > Hi all,

> > My son (just under 3 years old) was diagnosed with ulcerative colitis

> > 2 weeks ago tomorrow, and we were lucky enough to be told about this

> > diet the same day of the diagnosis and started it immediately. It's

> > been rough having it all thrown at us out of the blue, I have been

> > really trying to follow the diet religiously but have messed up

> > several times. Anyway, we have high hopes that we can heal his gut

> > before we want to resort to drugs his GI doctor wants us to give him.

> > We plan to start the intro diet tonight, since we didn't do that in

> > the beginning.

> >

> > Anyone else have a small child with ulcerative colitis? I can see

> > that this list is primarily for Autistic children, our son has no

> > Autistic symptoms, just the colitis. We haven't been able to find

> > anyone with such a young child with this illness as of yet. We have

> > no family history, although we are of Jewish heritage and have been

> > told that puts us at higher risk statistically. My husband and I

> > believe that our son developed this as a result of early antibiotic

> > use/overuse, but our GI doctor dismissed that immediately, so we

> > don't have a professional on our side who believes in the power of

> > diet to heal. We sort of feel " out there " on our own right now.

> >

> >

> >

>

>

>

>