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I would also like to know the probable number of persons with CF.

She beat me to the question. Hopefully with the passing of

CF awareness month in May, we can educate more people about Cystic

Fibrosis. Our awareness brochure IF I remember correctly says 30,000

and I have seen other information printed with this number also? I

written other letters and this is the only response I have gotten. I

have interiewed when I worked as local news and talk

show host. He was very personable way before I got an interview with

him. I am happy that he is voting for us not against us.

Crystal (mother of 2)

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Hi: Your " awareness bulletin " repeats what the CFF gives out as they are

supposedly the only source for statistics. They get their information from the

CF clinics that they certify which would infer that those who have CF only go to

the CFF certified clinics. As most adults with CF do not have a certified adult

clinic available, you can use your own judgment as to how many CF adults there

are who do not go to a certified clinic. As I mentioned before, though the

population of the United States has increased by over fifty million since the

early 1960's, the number of persons with CF has stayed static according to the

CFF statistics. If you use only the pediatric patients with CF as a basis and

exclude adults not going to a CF adult clinic, you can thus repeat the same

statistics forever. Hal n--Question

I would also like to know the probable number of persons with CF.

She beat me to the question. Hopefully with the passing of

CF awareness month in May, we can educate more people about Cystic

Fibrosis. Our awareness brochure IF I remember correctly says 30,000

and I have seen other information printed with this number also? I

written other letters and this is the only response I have gotten. I

have interiewed when I worked as local news and talk

show host. He was very personable way before I got an interview with

him. I am happy that he is voting for us not against us.

Crystal (mother of 2)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

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Your very right Hal, In fact a great many peds DONT go to a CF Center

either. In FL. we have many that go to several other centers, NOT considered

CFF accredited.............The docs have actually worked in those

before............ I would say that number is at least 1/3 more...

Hi to Phyllis-- & I sure hope your doing well .

LOVE & HUGS,

GRDMBEV

n--Question

I would also like to know the probable number of persons with CF.

She beat me to the question. Hopefully with the passing of

CF awareness month in May, we can educate more people about Cystic

Fibrosis. Our awareness brochure IF I remember correctly says 30,000

and I have seen other information printed with this number also? I

written other letters and this is the only response I have gotten. I

have interiewed when I worked as local news and talk

show host. He was very personable way before I got an interview with

him. I am happy that he is voting for us not against us.

Crystal (mother of 2)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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Thanks Bev! Phyllis and I are packing our suitcases to go visit our daughter in

Hawaii. One suitcase for our clothes and two for our pills! Whatever it takes!

The late comedian Grocho Marx once said, he'd never join a country club that

would let him in. Maybe CF is no longer an exclusive disease for us select few!

Once we let the riff raff in...there goes the neighborhood! Hal

n--Question

I would also like to know the probable number of persons with CF.

She beat me to the question. Hopefully with the passing of

CF awareness month in May, we can educate more people about Cystic

Fibrosis. Our awareness brochure IF I remember correctly says 30,000

and I have seen other information printed with this number also? I

written other letters and this is the only response I have gotten. I

have interiewed when I worked as local news and talk

show host. He was very personable way before I got an interview with

him. I am happy that he is voting for us not against us.

Crystal (mother of 2)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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Have a great time. It will; be glorious!!

LOVE & HUGS, GrandmoMBEV

Re: n--Question

Thanks Bev! Phyllis and I are packing our suitcases to go visit our daughter

in Hawaii. One suitcase for our clothes and two for our pills! Whatever it

takes! The late comedian Grocho Marx once said, he'd never join a country

club that would let him in. Maybe CF is no longer an exclusive disease for

us select few! Once we let the riff raff in...there goes the neighborhood!

Hal

n--Question

I would also like to know the probable number of persons with CF.

She beat me to the question. Hopefully with the passing of

CF awareness month in May, we can educate more people about Cystic

Fibrosis. Our awareness brochure IF I remember correctly says 30,000

and I have seen other information printed with this number also? I

written other letters and this is the only response I have gotten. I

have interiewed when I worked as local news and talk

show host. He was very personable way before I got an interview with

him. I am happy that he is voting for us not against us.

Crystal (mother of 2)

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

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