Re: Question about cf and learning disabilities

[Guest guest]

I would think that the school should provide the testing for FREE.

If someone has a disability or developmental delay, the school should

be the one to do the testing. You may want to contact the CF social

worker for more information

> Good afternoon to all, hope everyone is feeling well, if not I hope

you get

> to doing so very quickly. Shana and Kurt you guys hang in there and

keep us up

> to date with how Miss Shana is doing. We will continue to keep you

in our

> prayers.

>

> I have asked before about your children with cf having difficult

times at

> school; we have been fighting with the public school system here

since Christian

> was diagnosed. Seems the school is trying to say that he has

learning

> disabilities and needs to be tested ... no it couldn't possibly be

the teachers. I

> just got off the phone with the lady that schedules these test; if

we go through

> the school system we pay $1200.00 if we use our insurance we pay

$575.00.

> These people have been dragging their feet since the beginning of

the school year;

> they don't even have his 504 plan in place yet and I am up at the

school

> almost every week. I am just going nuts; Christian was diagnosed in

October with

> ADHD and put on medicine ... I don't see a difference. Now we have

already

> started the last 9 week period and he is failing. We have gotten

him tutoring and

> special help and it doesn't seem to help. I feel that he sees what

buttons to

> push and that's what he does ... the teachers act afraid of him so

whenever he

> farts they call me to come get him; and he knows it. Now his

pulmonoligist

> suggested getting him counseling because of his late diagnoses. I

know that he

> could be doing this all because he has told me that there isn't any

reason for

> him to continue in school; he just isn't interested. We have taken

away all

> his video games and limited his activities; he does the work but

never turns it

> in.

>

> I'm sorry I don't mean to ramble I just am at a loss for what to

do. The

> mother part of me doesn't want him having to repeat the 6th grade

but if he isn't

> willing to turn in his work what else can they do? Has anyone had

their child

> tested for learning disabilities and if so what was the out come.

My husband

> says we should just wait until school is out to have him tested

since he will

> most likely fail this year.

>

> On a good note we had another checkup today; still 90 pound but now

he is 60 "

> two more inches and he will be as tall as I am ... good thing that

Dad is 6'

> 3 " ! He also had blood drawn for his mutations; don't know what they

will show

> but I do feel that the more people tested the better.

>

> Thank you for listening to my ramblings any and all suggestions are

truly

> welcome.

>

>

>

> Tina Mom to Christian 12 yowcf

>

>

>

[Guest guest]

All over the usa, even if a child is in private school, the testing is FREE at

the local public school, unless you choose your own private neuro-

psychologist! Che2rs! n

Re: Question about cf and learning disabilities

I would think that the school should provide the testing for FREE.

If someone has a disability or developmental delay, the school should

be the one to do the testing. You may want to contact the CF social

worker for more information

> Good afternoon to all, hope everyone is feeling well, if not I hope

you get

> to doing so very quickly. Shana and Kurt you guys hang in there and

keep us up

> to date with how Miss Shana is doing. We will continue to keep you

in our

> prayers.

>

> I have asked before about your children with cf having difficult

times at

> school; we have been fighting with the public school system here

since Christian

> was diagnosed. Seems the school is trying to say that he has

learning

> disabilities and needs to be tested ... no it couldn't possibly be

the teachers. I

> just got off the phone with the lady that schedules these test; if

we go through

> the school system we pay $1200.00 if we use our insurance we pay

$575.00.

> These people have been dragging their feet since the beginning of

the school year;

> they don't even have his 504 plan in place yet and I am up at the

school

> almost every week. I am just going nuts; Christian was diagnosed in

October with

> ADHD and put on medicine ... I don't see a difference. Now we have

already

> started the last 9 week period and he is failing. We have gotten

him tutoring and

> special help and it doesn't seem to help. I feel that he sees what

buttons to

> push and that's what he does ... the teachers act afraid of him so

whenever he

> farts they call me to come get him; and he knows it. Now his

pulmonoligist

> suggested getting him counseling because of his late diagnoses. I

know that he

> could be doing this all because he has told me that there isn't any

reason for

> him to continue in school; he just isn't interested. We have taken

away all

> his video games and limited his activities; he does the work but

never turns it

> in.

>

> I'm sorry I don't mean to ramble I just am at a loss for what to

do. The

> mother part of me doesn't want him having to repeat the 6th grade

but if he isn't

> willing to turn in his work what else can they do? Has anyone had

their child

> tested for learning disabilities and if so what was the out come.

My husband

> says we should just wait until school is out to have him tested

since he will

> most likely fail this year.

>

> On a good note we had another checkup today; still 90 pound but now

he is 60 "

> two more inches and he will be as tall as I am ... good thing that

Dad is 6'

> 3 " ! He also had blood drawn for his mutations; don't know what they

will show

> but I do feel that the more people tested the better.

>

> Thank you for listening to my ramblings any and all suggestions are

truly

> welcome.

>

>

>

> Tina Mom to Christian 12 yowcf

>

>

>

[Guest guest]

Hi Tina,

Definately schedule a meeting with the school counselor. He maybe

expressing some intense feelings of hopelessness. He needs to know

someone at that school is on his side. Maybe a meeting with the

teachers, counselor and parents would work. If not, see if your cf

clinic recommends anyone that works with special needs kids.

Sometimes these kids feel like they are they are trapped in these

bodies that are like prisons and their is no escape. A trained

counselor in this area could do wonders. I hope this situations

improves. I will keep you in my thoughts.

Sara

> Good afternoon to all, hope everyone is feeling well, if not I

hope you get

> to doing so very quickly. Shana and Kurt you guys hang in there

and keep us up

> to date with how Miss Shana is doing. We will continue to keep you

in our

> prayers.

>

> I have asked before about your children with cf having difficult

times at

> school; we have been fighting with the public school system here

since Christian

> was diagnosed. Seems the school is trying to say that he has

learning

> disabilities and needs to be tested ... no it couldn't possibly be

the teachers. I

> just got off the phone with the lady that schedules these test; if

we go through

> the school system we pay $1200.00 if we use our insurance we pay

$575.00.

> These people have been dragging their feet since the beginning of

the school year;

> they don't even have his 504 plan in place yet and I am up at the

school

> almost every week. I am just going nuts; Christian was diagnosed

in October with

> ADHD and put on medicine ... I don't see a difference. Now we have

already

> started the last 9 week period and he is failing. We have gotten

him tutoring and

> special help and it doesn't seem to help. I feel that he sees what

buttons to

> push and that's what he does ... the teachers act afraid of him so

whenever he

> farts they call me to come get him; and he knows it. Now his

pulmonoligist

> suggested getting him counseling because of his late diagnoses. I

know that he

> could be doing this all because he has told me that there isn't

any reason for

> him to continue in school; he just isn't interested. We have taken

away all

> his video games and limited his activities; he does the work but

never turns it

> in.

>

> I'm sorry I don't mean to ramble I just am at a loss for what to

do. The

> mother part of me doesn't want him having to repeat the 6th grade

but if he isn't

> willing to turn in his work what else can they do? Has anyone had

their child

> tested for learning disabilities and if so what was the out come.

My husband

> says we should just wait until school is out to have him tested

since he will

> most likely fail this year.

>

> On a good note we had another checkup today; still 90 pound but

now he is 60 "

> two more inches and he will be as tall as I am ... good thing that

Dad is 6'

> 3 " ! He also had blood drawn for his mutations; don't know what

they will show

> but I do feel that the more people tested the better.

>

> Thank you for listening to my ramblings any and all suggestions

are truly

> welcome.

>

>

>

> Tina Mom to Christian 12 yowcf

>

>

>

[Guest guest]

Hi Tina,

Your public school system should test him for free. If he attends private

school your school district should still pay for the testing. My sister is a

reading specialist and administers tests to kids throughout the day to see if

they are " gifted " or " learning disabled " They don't charge the parents for the

tests. I wouldn't wait because sometimes it takes a long time before they can

actually schedule the child to be tested once the decision is made. Even if

they fail Christian or hold him back the year, it would be beneficial to know if

it is because of a disability. I would also take the CF doc's advice about

counseling because of the late dx. This may be impacting him more than he lets

on...........

Question about cf and learning disabilities

Good afternoon to all, hope everyone is feeling well, if not I hope you get

to doing so very quickly. Shana and Kurt you guys hang in there and keep us up

to date with how Miss Shana is doing. We will continue to keep you in our

prayers.

I have asked before about your children with cf having difficult times at

school; we have been fighting with the public school system here since

Christian

was diagnosed. Seems the school is trying to say that he has learning

disabilities and needs to be tested ... no it couldn't possibly be the

teachers. I

just got off the phone with the lady that schedules these test; if we go

through

the school system we pay $1200.00 if we use our insurance we pay $575.00.

These people have been dragging their feet since the beginning of the school

year;

they don't even have his 504 plan in place yet and I am up at the school

almost every week. I am just going nuts; Christian was diagnosed in October

with

ADHD and put on medicine ... I don't see a difference. Now we have already

started the last 9 week period and he is failing. We have gotten him tutoring

and

special help and it doesn't seem to help. I feel that he sees what buttons to

push and that's what he does ... the teachers act afraid of him so whenever he

farts they call me to come get him; and he knows it. Now his pulmonoligist

suggested getting him counseling because of his late diagnoses. I know that he

could be doing this all because he has told me that there isn't any reason for

him to continue in school; he just isn't interested. We have taken away all

his video games and limited his activities; he does the work but never turns

it

in.

I'm sorry I don't mean to ramble I just am at a loss for what to do. The

mother part of me doesn't want him having to repeat the 6th grade but if he

isn't

willing to turn in his work what else can they do? Has anyone had their child

tested for learning disabilities and if so what was the out come. My husband

says we should just wait until school is out to have him tested since he will

most likely fail this year.

On a good note we had another checkup today; still 90 pound but now he is 60 "

two more inches and he will be as tall as I am ... good thing that Dad is 6'

3 " ! He also had blood drawn for his mutations; don't know what they will show

but I do feel that the more people tested the better.

Thank you for listening to my ramblings any and all suggestions are truly

welcome.

Tina Mom to Christian 12 yowcf

[Guest guest]

Hi Tina,

a was also diagnosed a little older. But I believe with your

son, he is also going into a weird stage, pre-teen years and teen

years are not too much fun for some kids. I remember I could not

understand my mom, I was way too young to do somethings but yet I had

to be an adult and act like one for other things.

a went through a spell a few weeks ago that I thought I was going

to have her tested but she kind got out of it. We did get a tutor and

the change has been remarkable, I guess she just need it a little

help.

Also, boys are a lot slower to mature, my Venanzio 7 years old nocf,

he had to repeat kindergarten, he was not interested at all. It was

not until he went to 1st grade, this year, that he finally got in the

mood. He is a summer baby so one of the youngest on his first go

around. a is also a summer baby and did not have any problems

with kindergarten, she loved it. May be it is a good idea that he

goes back to the same grade next year, he might be a little more

mature.

With the problems you are having at his school, isn't a federal law

that once the issue of a learning dissability has been raised, the

school has to test that child w/in a certain time? I am not sure but

I believe I read that somewhere.

Well, I wish you best luck,

mom of a 10 wcf, Venanzio 7 nocf, Pepe 4 nocf

> Good afternoon to all, hope everyone is feeling well, if not I hope

you get

> to doing so very quickly. Shana and Kurt you guys hang in there and

keep us up

> to date with how Miss Shana is doing. We will continue to keep you

in our

> prayers.

>

> I have asked before about your children with cf having difficult

times at

> school; we have been fighting with the public school system here

since Christian

> was diagnosed. Seems the school is trying to say that he has

learning

> disabilities and needs to be tested ... no it couldn't possibly be

the teachers. I

> just got off the phone with the lady that schedules these test; if

we go through

> the school system we pay $1200.00 if we use our insurance we pay

$575.00.

> These people have been dragging their feet since the beginning of

the school year;

> they don't even have his 504 plan in place yet and I am up at the

school

> almost every week. I am just going nuts; Christian was diagnosed in

October with

> ADHD and put on medicine ... I don't see a difference. Now we have

already

> started the last 9 week period and he is failing. We have gotten

him tutoring and

> special help and it doesn't seem to help. I feel that he sees what

buttons to

> push and that's what he does ... the teachers act afraid of him so

whenever he

> farts they call me to come get him; and he knows it. Now his

pulmonoligist

> suggested getting him counseling because of his late diagnoses. I

know that he

> could be doing this all because he has told me that there isn't any

reason for

> him to continue in school; he just isn't interested. We have taken

away all

> his video games and limited his activities; he does the work but

never turns it

> in.

>

> I'm sorry I don't mean to ramble I just am at a loss for what to

do. The

> mother part of me doesn't want him having to repeat the 6th grade

but if he isn't

> willing to turn in his work what else can they do? Has anyone had

their child

> tested for learning disabilities and if so what was the out come.

My husband

> says we should just wait until school is out to have him tested

since he will

> most likely fail this year.

>

> On a good note we had another checkup today; still 90 pound but now

he is 60 "

> two more inches and he will be as tall as I am ... good thing that

Dad is 6'

> 3 " ! He also had blood drawn for his mutations; don't know what they

will show

> but I do feel that the more people tested the better.

>

> Thank you for listening to my ramblings any and all suggestions are

truly

> welcome.

>

>

>

> Tina Mom to Christian 12 yowcf

>

>

>