Re: sorry i've been away

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Hello group!! I know that it has been quite a while since I have written but until recently I just haven't been motivated. I am currently down to 20 mg on my Pred. and I feel just great. Other than you know the usual bull that we deal with on a day to day bases. I haven't had a flare in a couple of weeks, I don't know if anyone else is on cellcept but it is working quite well for me. Of course many many prayers throughout the day don't hurt. Have any of the woman heard of any links with hormones and R.P.?? I seem to hurt more during that time..anyone else??? My eyes are the latest to act up, i went to the doc today and but i have to go back tues for some kind of field test. Just another thing to worry about, she did not see any cateracts and I don't have any symptoms of the red eye. She says that people w/ R.P. get it and it is very painful. I just haven't been able to focus lately, old age??? I still haven't heard when my appeal is, my dad is going to represent me....wish us luck. I know he knows all about R.P. he will do a great job. Hope that everyone is doing well. michelle from louisiana

>From: " " >Reply-To: Rpolychondritis >To: Rpolychondritis >Subject: Re: Enbrel approved me also - >Date: Thu, 12 Dec 2002 19:37:19 -0000 > >Hi ! >I actually went to my training and gave myself my first injection >yesterday! I was pretty nervous, but it was a piece of cake and I >didn't even really feel the shot. I gave it to myself in my stomach, >I figured I might as well use this prednisone fat for something! I >did have a pretty terrible headache last night and this morning, so I >am hoping that it's not a side effect, or if it is, that it will go >away after a few treatments. >I am very hopeful about adding the Enbrel to my metho and pred. Dr >Buckner wants to add it, doing the " cocktail " approach, and then >lower my prednisone first, then down the road, try to lower the >metho. >Well, let me know when you are starting your treatment! It really >was pretty easy and not painful at all. >Doesn't the shoulder hurt a lot with RP? I'm sorry you're having a >hard time with this flare. Take care and try not to lift heavy >things, or reach over your head (if you can even do that). The water >stretches seem to really help my shoulder when it is in pain, so you >might think about how you could do that if you want. >Take care, ! > > > > > Well I have received my Enbrel approval also. Hey maybe we > > will be starting around the same time. Is that the only med for RP > > that you are going to be on? > > I think my Dr. intends for me to stay on the cytoxan also. I sure > > hope not. I am tired of feeling nauseated all the time. > > > > I complained so much for being sick last year for Christmas and >that > > I missed not even having a tree, that my husband has pulled out the > > whole attic. I think he must have even borrowed some of the > > neighbors junk. HAHAHA Now it is just over whelming me and I am > > getting sicker just looking at all of it. It is only 2 weeks away > > and it will take me that long to set it up. If I do then I said I >am > > going to keep it up till Easter and just mix the bunnies with the > > santas HAHA > > For some reason RP wasnt happy eating my nose and throat and ears > > away, it has decided to settle in my ankle and shoulder today. I am > > just achy all over and I so much want to feel better so I can > > decorate. I pulled my Christmas dishes out and then figured I would > > have to cook and then wash them so I am thinking about hiding > > them.haha > > Oh well I figured I needed to check in so I wouldnt get into > > trouble. I am going to go back and lay down for awhile. Hugs, > MSN 8 with e-mail virus protection service: 2 months FREE*