Re: Donna - Thank you

[Guest guest]

Donna, please don't ever think you will step on anyones toes. WE love suggestions. That is what the Foundation is all about. Bring about awareness. I am going to forward your post to the exec board and we will toss it around. I think these are great ideas. We have to research and see what the cost will be ( making, shipping ect.) If you have any idea, just let me know. I will forward anything to the board and hopefully we can use the ideas. As long as we have volunteers like you, we are usuallly set. WE still need chairpersons for different projects.

Thank you for the trachea info. I did have a CT and MRI of my chest and throat awhile ago and they only found some damage in the lower lungs ( in the air sacs.) they thought it would be in the larger airways from my symptoms. I am having another PFT done in a few months so maybe I will have improved. Keep those fingers crossed. I just had to get a hot air humidifier for my c pap. It really helps. My hands and feet feel numb most of the time waking up . Don't know why.

Thanks again for all your help. I forgot to tell you we have brochures for the Foundation. You may have as many as you want to give to friends, family and drs. Just let me know how may ( up to 100 at a time) and I will send them. I just need your address. You can also leave them in waiting rooms, send them out with your letters etc.

So glad you found us. Thanks for sharing your story. See, we learn something new everyday.

hugs

Ps.. I'll go find the letter and send it in my next post. Gosh everyone is going to hate me for all my posting tonight. I apologize in advance of my lynching. Just trying to catch up.

What about the idea of my making some bookmarks and laminating them with the foundation information, support group information, maybe a motto and anything else that everyone deems fit?