What a fun group!!

[Guest guest]

Hi,

I'm still lurking....I posted a month or so ago. I still don't have

a diagnosis, but sure am learning alot about RP and appreciate

everyone passing along their experiences. You are really a fun group

and it's alot of fun reading the posts. My ENT told me in November

that he suspected RP and will do a biopsy when I have another ear

flare. I have ear discomfort most of the time, but have not had a

time since November that I thought he'd find what he was looking

for. I appreciate a couple of you telling me that it is not

necessarily 100% accurate anyway with a biopsy. I have the ear

problems and other autoimmune diseases. One of them (adrenal

insufficiency) requires me to take an RX similar to Pred....called

cortef. The equivalent of what I take is 5 mg./day of Pred. but I

take the cortef in 4 daily doses. I'm wondering now if this RX is

possibly keeping the RP at bay most of the time (I have to increase

it at illness time, extreme stress, surgery, etc). I also have

secondary hypothyroid (which also involves the pituitary) and take 2

RX for that. Alot of the sympoms of these diseases are very similar

to RP.....when I read the posts and see what people are dealing with

I think....I have that too....and it has been attributed to the

thryoid and adrenal.

One thing I really do appreciate about this group is the small amount

of physician bashing that is posted. It makes it so pleasant to just

read the posts and learn from them. It took me a long time (over 20

yrs.) to get a correct diagnosis of the thyroid and adrenal so I know

how frustrating it can be to deal with medical people. I also have

an adult daughter with Down Syndrome, and I spend alot of time with

medical issues with her as she is medically fragile too.

I just wanted to thank everyone and wish you all a Happy New Year. I

will continue to read and learn. If the time comes that a diagnosis

is made for my ear problems, I will post again. Best wishes to all

of you. Jo