Re: JO and group thyroid

[Guest guest]

I have a thyroid problem I take meds for it because two years ago I had a dieased parathyroid we have four in our necks. They cut through my neck and took it out. EVER since that i have to take meds for thyroid...... How they found out I had triple the calcium in my blood. Now because of PRED I don't have enough....... I WONDER if now thing back this had anything to do with RP?????

SHERRIE

-- What a fun group!!

Hi,I'm still lurking....I posted a month or so ago. I still don't have a diagnosis, but sure am learning alot about RP and appreciate everyone passing along their experiences. You are really a fun group and it's alot of fun reading the posts. My ENT told me in November that he suspected RP and will do a biopsy when I have another ear flare. I have ear discomfort most of the time, but have not had a time since November that I thought he'd find what he was looking for. I appreciate a couple of you telling me that it is not necessarily 100% accurate anyway with a biopsy. I have the ear problems and other autoimmune diseases. One of them (adrenal insufficiency) requires me to take an RX similar to Pred....called cortef. The equivalent of what I take is 5 mg./day of Pred. but I take the cortef in 4 daily doses. I'm wondering now if this RX is possibly keeping the RP at bay most of the time (I have to increase it at illness time, extreme stress, surgery, etc). I also have secondary hypothyroid (which also involves the pituitary) and take 2 RX for that. Alot of the sympoms of these diseases are very similar to RP.....when I read the posts and see what people are dealing with I think....I have that too....and it has been attributed to the thryoid and adrenal. One thing I really do appreciate about this group is the small amount of physician bashing that is posted. It makes it so pleasant to just read the posts and learn from them. It took me a long time (over 20 yrs.) to get a correct diagnosis of the thyroid and adrenal so I know how frustrating it can be to deal with medical people. I also have an adult daughter with Down Syndrome, and I spend alot of time with medical issues with her as she is medically fragile too. I just wanted to thank everyone and wish you all a Happy New Year. I will continue to read and learn. If the time comes that a diagnosis is made for my ear problems, I will post again. Best wishes to all of you. Jo DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU