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Re: RP GROUP/Nina

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Nina, This group is mainly for support. WE are here for you at all times. We have chats on Friday nights at 6:30pm pacific time and on Wed mornings at 9:30 pacific time. There hasn't been a good turn out lately, maybe because of the holiday, or the times. We are open for suggestions and time any of you might find more convenient. Dawn is always there, bless her heart, usually alone.:(((

Dr. Jane Buckner is doing research on RP at the Virginia Mason Research Center in Seattle Wa. You will find her information at our RP Foundation site ( www.polychondritis.org) You may email her and tell her you are interested in participatin in her Research. She will send you information and all that is needed is a blood test. She gives you all the insturctions and she pays for everything. Her e mail addy is Jbuckner@...

Just browse around the Foundation site and you will find all kinds of information. If you need more, please feel free to just ask the group. they will head you in the right direction.

hugs

THERE IS SO MUCH ABOUT THIS GROUP I DON'T KNOW AND WOULD LOVE

TOO..ALL I KNOW IS THE POSTING...QUESTIONS LIKE WHO IS DOING THE

RESEARSE ...AND ANY THING ELSE I CAN LEARN,,,NINA

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