Re: Question about lab tests - Jo

[Guest guest]

Hi Jo!

There really aren't any lab tests that " diagnose " RP. If you go to

the foundation's website, there should be a link there to the

diagnosing criteria that is used to diagnose RP. You are diagnosed

if you have a cluster of symptoms.

Do you have a rheumatologist in addition to your ENT? If not, you

might consider adding one to your care team. They are usually much

more familiar with the medications that may become / be necessary to

treat your symptoms (such as the rib pain).

Good luck!

M

> Hi everyone,

> I was just wondering if there are any specific lab tests that help

in

> diagnosis of RP? I have many from a series of tests last fall that

> are out of normal...such as white blood count, sed rate, etc. Also

> wondering what kind of other tests all of you have had that pointed

> your dr. in the right direction.

> I read with interest the information about pain and pain relief. I

> had not connected the pain in my ribs and upper back to the

> possibility of this problem. I will discuss that with the ENT next

> time I see him.

> I hope you all are having a good day. Jo