Guest guest Posted January 28, 2002 Report Share Posted January 28, 2002 12. You find enzyme capsules behind the couch, under the fridge, down the registers, and in all kinds of strange places. 13.Several times a day you find yourself starting a sentence with, " Have you taken your .... " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 6. You worry about being reported for child abuse for doing CPT in public. 7. Your kid takes more pills than you GRANDPARENTS do! 8. Your 4 year old tells people " Babies need enzymes before they eat. " (Mine really says this!) 9. You have your local pharmacy on speed dial. 10. You actually completely finish a container of salt. Usually they get thrown away or lost LONG before they're empty! 11. Counting calories has a whole different meaning. I'm sure there's lots more... Elias- dad to Soley- 1 w/CF and Uriah 4, no CF Just for fun... There are a lot of list out there that start with you know you are a parent of (blank) ....so I thought I would start one with " You know you are a parent of a CF child when... " 1. You carry Emla in your purse instead of lipstick. 2. You been home for 2 weeks and your still measuring I's & O's 3. You have a syringe in your purse and you're not a diabetic 4. Your kid takes more pills than you do 5. Your toddler won't sit on Santa's lap because he is to germy from the other kids Please feel free to add on to this list. I have more (Just trying to keep my sanity while Savannah was in PICU) but wanted to hear from you all too. Mom to 2 w/o CF and Savannah w/ CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 14. Every time you leave the house, you check your purse to see if you have enzymes, even though you're not the one that takes them. And years later, even when your child with CF is no longer living at home, you find yourself walking out the door, turning to your child who doesn't have CF and saying, " Do you have your enzymes? " Oh, wait... that's not habit... that's senility. Kim Mom of (24 with CF) and (21 without) who in the past has actually left the house with and her boyfriend du jour, turned to the boyfriend and said, " Do you have your enzymes? " > 12. You find enzyme capsules behind the couch, under the fridge, down the > registers, and in all kinds of strange places. > 13.Several times a day you find yourself starting a sentence with, " Have you > taken your .... " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 This is so true--here goes: You know you are a parent of a child with cystic fibrosis when: you keep track of all restrooms wherever you go, not just for you but for " the kid: " You carry every medicine in the world, syringest, snacks (suited to special diet) and two back packs everywhere (I have cf, too!); You learn to run and teach " the kid " to run fast from car through any res taurant to the restroom; The " kid " may still be wearing pull-up underpants at age seven; You carry a disposable container for vomit EVERWHERE; The supply of kleenex or tissues and paper towels nearly fills the car; You have totally, for all the reasons listed by the first poster, and by me, on so-called " public " transportation--for obvious reasons-- Besides, how many people really carry thermometers with then ALL the time? I guess that's it--you get the picture--Love to inspired writer of post below, n Rojas Just for fun... There are a lot of list out there that start with you know you are a parent of (blank) ....so I thought I would start one with " You know you are a parent of a CF child when... " 1. You carry Emla in your purse instead of lipstick. 2. You been home for 2 weeks and your still measuring I's & O's 3. You have a syringe in your purse and you're not a diabetic 4. Your kid takes more pills than you do 5. Your toddler won't sit on Santa's lap because he is to germy from the other kids Please feel free to add on to this list. I have more (Just trying to keep my sanity while Savannah was in PICU) but wanted to hear from you all too. Mom to 2 w/o CF and Savannah w/ CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 15. When they come back from school you ask: " Have you poop today? What did it look like? " > > 12. You find enzyme capsules behind the couch, under the fridge, > down the > > registers, and in all kinds of strange places. > > 13.Several times a day you find yourself starting a sentence > with, " Have you > > taken your .... " . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 I got one! The only reason you bring your purse places is for the " just in case " bottle of enzymes inside it. Just for fun... There are a lot of list out there that start with you know you are a parent of (blank) ....so I thought I would start one with " You know you are a parent of a CF child when... " 1. You carry Emla in your purse instead of lipstick. 2. You been home for 2 weeks and your still measuring I's & O's 3. You have a syringe in your purse and you're not a diabetic 4. Your kid takes more pills than you do 5. Your toddler won't sit on Santa's lap because he is to germy from the other kids Please feel free to add on to this list. I have more (Just trying to keep my sanity while Savannah was in PICU) but wanted to hear from you all too. Mom to 2 w/o CF and Savannah w/ CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Another one, A " vest " is no longer a piece of clothing to be worn out of the house. Re: Just for fun... 12. You find enzyme capsules behind the couch, under the fridge, down the registers, and in all kinds of strange places. 13.Several times a day you find yourself starting a sentence with, " Have you taken your .... " . ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 , very good--and not too far-fetched either--clear up to adulthood! Love to you and all of yours, n Re: Just for fun... 15. When they come back from school you ask: " Have you poop today? What did it look like? " > > 12. You find enzyme capsules behind the couch, under the fridge, > down the > > registers, and in all kinds of strange places. > > 13.Several times a day you find yourself starting a sentence > with, " Have you > > taken your .... " . ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Your child holds their breath whenever they see smoke, steam or " breath vapor " (in the winter) because they think that it might hurt their lungs. Just for fun... There are a lot of list out there that start with you know you are a parent of (blank) ....so I thought I would start one with " You know you are a parent of a CF child when... " 1. You carry Emla in your purse instead of lipstick. 2. You been home for 2 weeks and your still measuring I's & O's 3. You have a syringe in your purse and you're not a diabetic 4. Your kid takes more pills than you do 5. Your toddler won't sit on Santa's lap because he is to germy from the other kids Please feel free to add on to this list. I have more (Just trying to keep my sanity while Savannah was in PICU) but wanted to hear from you all too. Mom to 2 w/o CF and Savannah w/ CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Wow, so true, good one! > Another one, > A " vest " is no longer a piece of clothing to be worn out of the house. > > Re: Just for fun... > > > 12. You find enzyme capsules behind the couch, under the fridge, down the > registers, and in all kinds of strange places. > 13.Several times a day you find yourself starting a sentence with, " Have you > taken your .... " . > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > > > -------------------------------------------------------------------- ---------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 > 14. Every time you leave the house, you check your purse to see if > you have enzymes, even though you're not the one that takes them. > > You encourage your child to eat peanut butter any time he wants You have more doctors on speed dial than you do friends. You ask to see what the expectorant looks like jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 13. You have to ask your child " what did your poop look like? Can I see it? " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 How about You Know you're the parent of a child with CF when you say... " Please eat more ice cream. You need some ice cream to go with that brownie. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 Kim, I think in a family with a cf person, that is not senility--it is called LEARNING, and you are good at that! Cheers! n Re: Just for fun... 14. Every time you leave the house, you check your purse to see if you have enzymes, even though you're not the one that takes them. And years later, even when your child with CF is no longer living at home, you find yourself walking out the door, turning to your child who doesn't have CF and saying, " Do you have your enzymes? " Oh, wait... that's not habit... that's senility. Kim Mom of (24 with CF) and (21 without) who in the past has actually left the house with and her boyfriend du jour, turned to the boyfriend and said, " Do you have your enzymes? " > 12. You find enzyme capsules behind the couch, under the fridge, down the > registers, and in all kinds of strange places. > 13.Several times a day you find yourself starting a sentence with, " Have you > taken your .... " . ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 " You know you are a parent of a CF child when... " *you offer ice cream to your child who just refused to eat dinner ten minutes ago. *you check the labels at the grocery store to make sure there is enough fat and calories in the product, otherwise you won't buy it. *look in amazement at what in your grocery cart and think who in their right mind would feed this junk to their child. At the same time, wondering if the customer next in line is wondering the same thing about my purchases. > > Another one, > > A " vest " is no longer a piece of clothing to be worn out of the > house. > > > > Re: Just for fun... > > > > > > 12. You find enzyme capsules behind the couch, under the fridge, > down the > > registers, and in all kinds of strange places. > > 13.Several times a day you find yourself starting a sentence > with, " Have you > > taken your .... " . > > > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO > WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > > > > > ------------------------------------------------------------------ -- > ---------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 1. When the main conversation at the dinner table is what his poops look like and how many times did he go. 2. When your 5 year old lefts up his shirt in public and says he's hungery. 3. When you get in your purse for paper and you pull out at least 15 Dr's Appointments cards to write on. 4. When you in a hurry hand your child some antibacterial soap before the other child turns back around that just coughed and Shook your childs hand. Katy Military wife to a wonderful husband that protects our country GO 2-25 Mom to Grace 13 Wonderful helper and all around great daughter. Micah 8, CF, Kidney disorder, Loss of Hearing in the left ear,Cronic Ear infections,ADHD, ASD Repair Elijah 5, CF, Seizure Disorder and Developmental issues. GOD DOESN " T MAKE MISTAKES HE ONLY MAKES MIRACLES! Just for fun... There are a lot of list out there that start with you know you are a parent of (blank) ....so I thought I would start one with " You know you are a parent of a CF child when... " 1. You carry Emla in your purse instead of lipstick. 2. You been home for 2 weeks and your still measuring I's & O's 3. You have a syringe in your purse and you're not a diabetic 4. Your kid takes more pills than you do 5. Your toddler won't sit on Santa's lap because he is to germy from the other kids Please feel free to add on to this list. I have more (Just trying to keep my sanity while Savannah was in PICU) but wanted to hear from you all too. Mom to 2 w/o CF and Savannah w/ CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 > " You know you are a parent of a CF child when... " *your child learned to count, not by watching Sesame Street, but by lining pills up on the kitchen table. *there is no " medicine cabinet " or " medicine drawer " in your house, instead you have a " medicine cupboard " in your kitchen, and it's full. *you give your child a " good thumpin' " three times a day, whether he's been bad or good. *your family doctor asks you medical questions because you're more informed of current research than he is. *your child says to his horseback riding instructor, " The horses will love me 'cause I taste just like a salt-lick! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2004 Report Share Posted January 28, 2004 --a really memorable one! Thank you, n Re: Just for fun... > " You know you are a parent of a CF child when... " *your child learned to count, not by watching Sesame Street, but by lining pills up on the kitchen table. *there is no " medicine cabinet " or " medicine drawer " in your house, instead you have a " medicine cupboard " in your kitchen, and it's full. *you give your child a " good thumpin' " three times a day, whether he's been bad or good. *your family doctor asks you medical questions because you're more informed of current research than he is. *your child says to his horseback riding instructor, " The horses will love me 'cause I taste just like a salt-lick! " ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 My 20 year old said yeah this is us. We always have to by the highest calorie food. And the things we should be eating that she likes (like carrots, celary and grapenuts) we wont let her because they burn more calories to chew then she keeps on. This has been fun seeing what we think are funny, but have become part of each of our lives. And have now become the normal. Thank you you making us laugh today judy ('s mom) Re: Just for fun... > > > > > > 12. You find enzyme capsules behind the couch, under the fridge, > down the > > registers, and in all kinds of strange places. > > 13.Several times a day you find yourself starting a sentence > with, " Have you > > taken your .... " . > > > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO > WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > > > > > ------------------------------------------------------------------ -- > ---------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2004 Report Share Posted January 29, 2004 In a message dated 1/28/2004 9:50:18 PM Central Standard Time, drea@... writes: Your child holds their breath whenever they see smoke, steam or " breath vapor " (in the winter) because they think that it might hurt their lungs. That's funny because my kids will do that too. When we are at a restaurant that has a smoking section if they have to go by it say to go to the bathroom they will plug there nose. I think it is funny because everyone looks at them when they walk by. I didn't even tell them to do that they just did on there own. DebA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.