Re: Interesting Article on SCD/Let's flood their mail!

[Guest guest]

I was outraged as well. I sent an email yesterday for all it's worth. We should

all do so. At least to show the amount of people out there who I'm sure are

willing to collaborate with testimonies - that should help with starting out

their reasearch!Let's flood their mail!

F.

11yrs UC / 10yrs SCD

carolfrilegh escribió:

>

> How 'bout sending them an email with your comment, before this newsletter is

published?

> I was also very upset about this article. It seems like they have to write

something

about SCD since people ask them about it, but they're just trying to brush it

away with

non-sense. All the doctors want to know about is: Prescribing Medication -

something

that's " easy " , and supports the hospitals. In fact, I heard that one of the

major hospitals in

NYC gets the most of their income from remicade.

> Sent: Wednesday, January 24, 2007 12:33 PM

> Subject: Interesting Article on SCD

>

> http://www.ccfa.org/about/news/scd

They will not respond.

Carol F.

SCD 7 years, celiac

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[Guest guest]

>

> I was outraged as well. I sent an email yesterday for all it's worth. We

should all do so.

At least to show the amount of people out there who I'm sure are willing to

collaborate

with testimonies - that should help with starting out their research! Let's

flood their mail!

>

> F.

There is no doubt... yes I am confident... SCD would show its usual impressive

results

under scientific supervised research. Results under tightly controlled

conditions would

probably be even better than our parents and adults report now. We always would

have

welcomed it. Elaine started her Foundation partially for that purpose, but that

was in

Canada and by law the funds must be applied there so the Foundation was

terminated. At

one time Elaine was going to get research support from a U.S. university but it

turned out

that they actully wanted her to give a seminar on SCD.

CCFA is part of the mainstream medical community and does not accept anecdotal

testimony as established fact. Dr. Salk could hardly have established acceptance

of his

polio vaccine with just fan letters. Research is costly and needs to be funded.

There will

surely be testing in the future but in the meantime we know that SCD has been

very

successful. We have seen small trial studies where SCD triumphed.

So when you write, are you going to as CCFA to fund the research? Do you really

think

they are interested?

Carol F.

SCD 7 years, celiac

[Guest guest]

I was particularly enraged when it said it would do damage pyschologically to

children who were on the diet. And they think taking a dozen pills a day

wouldn't?

Sue

7 yr old son, no more brain fog, SCD 8 mths

[Guest guest]

>

> I was particularly enraged when it said it would do damage pyschologically to

children

who were on the diet. And they think taking a dozen pills a day wouldn't?

>

> Sue

> 7 yr old son, no more brain fog, SCD 8 mths

I am not defending CCFA ...far from it...but reminding you that Elaine was very

clear that

nedicine is not to be discontinued under SCD without guidance and approval from

a

phuysician. What often happens is that as children heal the dosage gets recduced

and

eventually meds can sometimes be dropped but not all the time.

At the beginning of BTVC this is contained in " Important Notice to the Reader. "

Carol F. SCD 7 years, celiac