Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 I didn't mean this to seem like a sermon. It just seems there are so few things that our kids truly get to do and enjoy. It seems a shame that Zach can't still get to play in the hot tub. It seems it would be safer there than to take him to a public swimming pool where there are even more germs. There are even bad bacteria some times in the water we drink. We need some germs so that our bodies defense systems can learn to fight them off. Tina W. Hot Tubs > > > We asked the doctor at Zach's diagnosis if Zach could use our hot > tub. He said if we had it regularly checked and no one else used it > that it should be ok. has the water tested weekly or > sometimes even twice a week. But the webcast said that all hottubs > are a big no no. The chlorine cannot kill the PA at high heat. We > are just sick about this. We let Zach play in the hottub last > summer. It was his own little pool. I feel so dumb. > Two summers ago built the deck himself around this used hottub > that a relative gave us for free. We felt so lucky to have this > luxury in our back yard. Now wants to move to another house. > He says he can't stand to look at it. I feel so bad for him. He > worked so hard on building the deck and now all he can think about > is that the hottub might have made Zach sick. > Sara - mommy of Zach 23 months > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Thanks, I reread what I wrote and the fact that cap lock was on. I thought it was pretty harsh. Didn't mean it that way. Tina W. Hot Tubs > > > > > > We asked the doctor at Zach's diagnosis if Zach could use our hot > > tub. He said if we had it regularly checked and no one else used > it > > that it should be ok. has the water tested weekly or > > sometimes even twice a week. But the webcast said that all > hottubs > > are a big no no. The chlorine cannot kill the PA at high heat. > We > > are just sick about this. We let Zach play in the hottub last > > summer. It was his own little pool. I feel so dumb. > > Two summers ago built the deck himself around this used > hottub > > that a relative gave us for free. We felt so lucky to have this > > luxury in our back yard. Now wants to move to another > house. > > He says he can't stand to look at it. I feel so bad for him. He > > worked so hard on building the deck and now all he can think about > > is that the hottub might have made Zach sick. > > Sara - mommy of Zach 23 months > > > > > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO > WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > > > > > _____ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 No problem; we take our pleasure when we can and take a few risks, too--life being full of them--Love to you and yours and have fun, n Hot Tubs > > > We asked the doctor at Zach's diagnosis if Zach could use our hot > tub. He said if we had it regularly checked and no one else used it > that it should be ok. has the water tested weekly or > sometimes even twice a week. But the webcast said that all hottubs > are a big no no. The chlorine cannot kill the PA at high heat. We > are just sick about this. We let Zach play in the hottub last > summer. It was his own little pool. I feel so dumb. > Two summers ago built the deck himself around this used hottub > that a relative gave us for free. We felt so lucky to have this > luxury in our back yard. Now wants to move to another house. > He says he can't stand to look at it. I feel so bad for him. He > worked so hard on building the deck and now all he can think about > is that the hottub might have made Zach sick. > Sara - mommy of Zach 23 months > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 , so true, alas! It did seem odd to me that my kid wcf developed non mucoid pseudomonas at an earlier age than did I, but now I know that that is a generational pattern, probably due to modern antibiotics-which does NOT mean that those of us with cf should not be using them; historicly antibiotics for gram-positive bacteria were more fully developed before those for gram negative bacteria (e.g. pseudomonas) were developed. It is hard not to get into the guilt thing, but it sure is easier to do what you can or choose to do and then let the rest GOOO! Your post is so accurate. Thank you, n Rojas Re: Hot Tubs Sara, Don't do this to yourself. It is not your fault. Pseudomonas is EVERYWHERE, not just in hot tubs. My son is five years old and cultured PA for the first time ever about six months ago. This just amazes me when I consider the things he's gotten into. When he was a toddler, he ate kitty litter (yes, it had been used.) When he got a little older, he got into a bucket of plaster-of-paris and shook it all over the place. The whole room was filled with plaster dust (can you imagine that he had no ill effects from breathing that??? He didn't, his x-rays were clear afterward and he didn't even get sick from it.) When he was four, he attended a public preschool, and shared mucus with anyone within reach. Throughout his life he has handled all sorts of animals and even touched a cat's butt when he was three (reached right out - " don't DO THAT! " - and took a poke at it.) He's been in a pigpen, handled snakes that were unlucky enough to not see him approaching, kissed dogs right on the mouth, and gotten into numerous other situations that made me cringe to no end. He's eaten dirt and sand, more than once, and has handled things that reality t.v. shows wouldn't touch. And he didn't culture P.A. until six months ago. You just can't control some things, in fact, you just can't control most things. It's scary, I know. You just have to do what you can and let go of what you can't. ~ mommy of 3, 1 little monster with cf > But the webcast said that all hottubs > are a big no no. The chlorine cannot kill the PA at high heat. We > are just sick about this. We let Zach play in the hottub last > summer. It was his own little pool. I feel so dumb.> Sara - mommy of Zach 23 months ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 In a message dated 1/13/2004 9:07:18 PM Central Standard Time, gale.harris@... writes: How does CF cause arthritis? Gale Some medication will deplete you bone density like cipro. Deb A Quote Link to comment Share on other sites More sharing options...
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