Re: Never seen behaviour this severe

[Guest guest]

Cathy,

We usually advise those who've been dairy free prior to SCD to give it a few

months before starting yogurt.... and then to start with extremely small

amounts, only increasing if tolerated. I can't remember how much yogurt your son

is eating now, but if I were you, I would probably stop for now.

For one thing, you were using some illegal products up until recently.... so

now that you have removed those, you might *almost* think of your family as

having started all over from the beginning at this point. You may need to delay

the start of yogurt for him a bit longer. I know we usually feel the benefits

outweigh the negatives with goat yogurt for most kids... it seems pretty obvious

that whatever this is... it's just too much to handle right now.

You are using GOAT yogurt.... right? Which starter?

Did you start the probiotic supplement at the same time? Or were you already

using that? It is only l.acidophilus in the supplement... right?

You would certainly not be the only family that had no choice but to make do

with just probiotics in supplement form for this long.... or longer. It is

vital to keep that going... as long as he's doing well with it. I would maybe

try yogurt again after the first of the year, and just be completely 100% legal

with every single other food or supplement that he's taking in. Gut-healing

takes time.

Patti

Never seen behaviour this severe

Sunday was no fun...I have never seen things so bad with my son

before.I saw this coming saturday but I never thought it would get so bad.

Such bad timing too!!!!!!!! We spent the afternoon at a funeral home

150 miles from home because of a death in the family. He was so

difficult. I asked him to put on his coat when we arrived at the

funeral home...it was cold..it was snowing...he was full of rage/very

angry ...we had to chase him around the parking lot...He was screaming

at us.....he was mad/crying when he charged in the door...2 very long

hours.(non-stop problems...long drive home too!!!!)

We brought to a funeral home last August when another family

member passed away...he was the most well behaved kid anyone ever

saw...he was very respectful, he was quiet, he hugged everyone.....he

looked at all the pictures.... it was so important for him to be

there.(He still had a pretty bad stutter, he had just started the

SCD,all his behaviour issues were gone, we hadn't started probiotics yet)

He didn't know my dear uncle well...it was not the loss that caused

this .

Monday/Tuesday he was a different boy...very nice, calm, he listen to

me..I haven't seen this boy in over a month.(He ate no yogurt sunday

and we had to wait for more which was not ready until tues afternoon)

Since he started to eat the yogurt well( & probiotic capsule) the

beginning of Nov. he has changed.(he also took antibiotics for strep

the beginning of nov.).I thought it was die off in the beginning but

I'm really not sure now.

I am wondering if it was a bad idea to start the yogurt so soon?...he

never ate dairy before the start of the scd...he tested alergic to it

as a baby....he has a very leaky gut...dairy intolerance maybe

too?...he is still intolerant to so much food

I wonder if I could up the probiotic capsule...and just skip the

yogurt for a while...I'm out of yogurt tonight(should I make

more...????I don't want those bad guys to over take his gut...would

the caspules be enough?

We have been so stressed lately with his behaviour...He is becoming

silly, difficult again.

It is so close to Christmas...

Ideas ?

thanks,

Cathy

9, 6

Started SCD aug 1

We did remove the illegal apple juice/sauce... has no gas now!!

No other supplements

[Guest guest]

Thanks Patti,

The yogurt probably was too soon, too much, and increased too fast.

He was so happy to eat someting new...We were using the goat yogurt

with the Gi pro health...Progurt.I can't remember when we started the

yogurt but we started it with just part of a teaspoon(increased it

over a month maybe?) and when he started his antibiotic for strep in

nov. he started to really like the yogurt. He was eating up to 1/2-3/4

cup of drip yogurt daily since nov. and up to 1 cup daily just recently.

We started the Gi pro health with L.acidophilus slowly the end of

september...by the beginning of november he was taking the a whole

capsule 3+billion cfus daily..1/2 capsule 2x a day.

took a little longer but she is tolerating a whole capsule daily.

So how much probiotic? He is starting to stutter...would an increase

in probiotic help? He is behaving well today!!!

Thanks,

Cathy

Mom to ,

>

> Cathy,

>

> We usually advise those who've been dairy free prior to SCD to give

it a few months before starting yogurt.... and then to start with

extremely small amounts, only increasing if tolerated. I can't

remember how much yogurt your son is eating now, but if I were you, I

would probably stop for now.

>

> For one thing, you were using some illegal products up until

recently.... so now that you have removed those, you might *almost*

think of your family as having started all over from the beginning at

this point. You may need to delay the start of yogurt for him a bit

longer. I know we usually feel the benefits outweigh the negatives

with goat yogurt for most kids... it seems pretty obvious that

whatever this is... it's just too much to handle right now.

>

> You are using GOAT yogurt.... right? Which starter?

>

> Did you start the probiotic supplement at the same time? Or were

you already using that? It is only l.acidophilus in the supplement...

right?

>

> You would certainly not be the only family that had no choice but to

make do with just probiotics in supplement form for this long.... or

longer. It is vital to keep that going... as long as he's doing well

with it. I would maybe try yogurt again after the first of the year,

and just be completely 100% legal with every single other food or

supplement that he's taking in. Gut-healing takes time.

>

> Patti

>

> Never seen behaviour this severe

>

>

> Sunday was no fun...I have never seen things so bad with my son

> before.I saw this coming saturday but I never thought it would get

so bad.

>

> Such bad timing too!!!!!!!! We spent the afternoon at a funeral home

> 150 miles from home because of a death in the family. He was so

> difficult. I asked him to put on his coat when we arrived at the

> funeral home...it was cold..it was snowing...he was full of rage/very

> angry ...we had to chase him around the parking lot...He was screaming

> at us.....he was mad/crying when he charged in the door...2 very long

> hours.(non-stop problems...long drive home too!!!!)

>

> We brought to a funeral home last August when another family

> member passed away...he was the most well behaved kid anyone ever

> saw...he was very respectful, he was quiet, he hugged everyone.....he

> looked at all the pictures.... it was so important for him to be

> there.(He still had a pretty bad stutter, he had just started the

> SCD,all his behaviour issues were gone, we hadn't started

probiotics yet)

> He didn't know my dear uncle well...it was not the loss that caused

> this .

> Monday/Tuesday he was a different boy...very nice, calm, he listen to

> me..I haven't seen this boy in over a month.(He ate no yogurt sunday

> and we had to wait for more which was not ready until tues afternoon)

> Since he started to eat the yogurt well( & probiotic capsule) the

> beginning of Nov. he has changed.(he also took antibiotics for strep

> the beginning of nov.).I thought it was die off in the beginning but

> I'm really not sure now.

>

> I am wondering if it was a bad idea to start the yogurt so soon?...he

> never ate dairy before the start of the scd...he tested alergic to it

> as a baby....he has a very leaky gut...dairy intolerance maybe

> too?...he is still intolerant to so much food

> I wonder if I could up the probiotic capsule...and just skip the

> yogurt for a while...I'm out of yogurt tonight(should I make

> more...????I don't want those bad guys to over take his gut...would

> the caspules be enough?

> We have been so stressed lately with his behaviour...He is becoming

> silly, difficult again.

> It is so close to Christmas...

>

> Ideas ?

> thanks,

>

> Cathy

> 9, 6

> Started SCD aug 1

> We did remove the illegal apple juice/sauce... has no gas now!!

> No other supplements

>

>

>

>

>

>

[Guest guest]

Cathy,

I am so sorry he can't seem to tolerate the yogurt right now, because I am just

so convinced of it's healing qualities really doing good things for his gut....

but if you've pulled it out and he seems better now, there must be some

connection with the behavior. I hope you can restart it again soon.

It does seem that he tolerates the probiotic just fine, though? I am really a

bit confused about the amount on the probiotic. Mimi forwarded something to me

recently, and I need to go back and find it. I was thinking all this time that 3

billion was the max for probiotics, but that might not be true..... it may be

that more is the recommendation. It was something that Mimi found that was

written by Elaine.... I'll look for it tomorrow.

Just out of curiosity, are you giving him cod liver oil?

I'm dashing out the door (again) to yet another *fun* family holiday event....

=:-O

Patti

Re: Never seen behaviour this severe

Thanks Patti,

The yogurt probably was too soon, too much, and increased too fast.

He was so happy to eat someting new...We were using the goat yogurt

with the Gi pro health...Progurt.I can't remember when we started the

yogurt but we started it with just part of a teaspoon(increased it

over a month maybe?) and when he started his antibiotic for strep in

nov. he started to really like the yogurt. He was eating up to 1/2-3/4

cup of drip yogurt daily since nov. and up to 1 cup daily just recently.

We started the Gi pro health with L.acidophilus slowly the end of

september...by the beginning of november he was taking the a whole

capsule 3+billion cfus daily..1/2 capsule 2x a day.

took a little longer but she is tolerating a whole capsule daily.

So how much probiotic? He is starting to stutter...would an increase

in probiotic help? He is behaving well today!!!

Thanks,

Cathy

Mom to ,

Recent Activity

a.. 14New Members

Visit Your Group

[Guest guest]

Patti,

I think 's body thinks the dairy is gluten.(celiac) Both of

these proteins are very similar. I think his gut has worsened. Both

my kids reacted to tropicana OJ on sunday. had a very mild

reaction.(R has always been my strong reactor)

But ...it was so painful(emotionally too) for him..his lip

swelled, very sore around his whole mouth, his lip bleed a bit it

worsened over the next too days...you can still see a bit of red

around his mouth today.He has never reacted so strongly! They both

were tolerating Trop. OJ...but I bought a bigger container that had

120% of the daily vit c per serving...I had been using the miniture

boxes of OJ with 50% of the daily vit c per serving and they were OK

with those...exact same juice. Allergy or leaky gut?

reacted in the same way to maple syrup candy halloween

2005(he was previously tolerating them)...it was bad ,but not as bad

as the OJ. I didn't find out that my rice flour was contaminated with

wheat until Jan 2006.

My experience tells me this is just a leaky gut.

As far as the cod liver oil, I have considered this...I tried some

fish supplement with him before(3 years ago)...Seacure..white fish,

rosemary extract,gelatin caspsule......He didn't tolerate this.

The last time he had a bite of fish, it gave him a sore mouth.(2

years ago).

I would have to try some fish before I would ever consider the cod

liver oil. There is likely other ingredients in the cod liver oil

which may be a problem??? I may have to wait a bit, unless he can

tolerate fish. I may try the cod l o with though.

is doing well today...but his words are getting a bit stuck

today, and a bit of stuttering...maybe this will clear on its own.(I

am hoping behaviour doesn't come with this...this worries me)

I would be interested to here about the probiotics, no hurry...

enjoy your holiday fun...don't get back to me till after the holidays

if you like...

We are fine, enjoying a calmer household now.

Kind regards always,

Cathy

-- In pecanbread , " Patti " wrote:

>

> Cathy,

>

> I am so sorry he can't seem to tolerate the yogurt right now,

because I am just so convinced of it's healing qualities really doing

good things for his gut.... but if you've pulled it out and he seems

better now, there must be some connection with the behavior. I hope

you can restart it again soon.

>

> It does seem that he tolerates the probiotic just fine, though? I

am really a bit confused about the amount on the probiotic. Mimi

forwarded something to me recently, and I need to go back and find it.

I was thinking all this time that 3 billion was the max for

probiotics, but that might not be true..... it may be that more is the

recommendation. It was something that Mimi found that was written by

Elaine.... I'll look for it tomorrow.

>

> Just out of curiosity, are you giving him cod liver oil?

>

> I'm dashing out the door (again) to yet another *fun* family holiday

event.... =:-O

>

> Patti

> Re: Never seen behaviour this severe

>

>

> Thanks Patti,

>

> The yogurt probably was too soon, too much, and increased too fast.

> He was so happy to eat someting new...We were using the goat yogurt

> with the Gi pro health...Progurt.I can't remember when we started the

> yogurt but we started it with just part of a teaspoon(increased it

> over a month maybe?) and when he started his antibiotic for strep in

> nov. he started to really like the yogurt. He was eating up to 1/2-3/4

> cup of drip yogurt daily since nov. and up to 1 cup daily just

recently.

>

> We started the Gi pro health with L.acidophilus slowly the end of

> september...by the beginning of november he was taking the a whole

> capsule 3+billion cfus daily..1/2 capsule 2x a day.

> took a little longer but she is tolerating a whole capsule

daily.

> So how much probiotic? He is starting to stutter...would an increase

> in probiotic help? He is behaving well today!!!

> Thanks,

>

> Cathy

> Mom to ,

>

>

> Recent Activity

> a.. 14New Members

> Visit Your Group

>

[Guest guest]

Patti,

I was wondering if I could make some coconut milk if he tolerates this

turn this into yogurt. I know this is a little soon for coconut

....maybe if I didn't give him too much he would be fine with it.

He is getting loud really forces his words out and stuttering

more...this may not be temporary...when he was doing the yogurt his

speech was almost 100%. Or maybe I should increase the probiotic.

Cathy

> >

> > Cathy,

> >

> > I am so sorry he can't seem to tolerate the yogurt right now,

> because I am just so convinced of it's healing qualities really doing

> good things for his gut.... but if you've pulled it out and he seems

> better now, there must be some connection with the behavior. I hope

> you can restart it again soon.

> >

> > It does seem that he tolerates the probiotic just fine, though? I

> am really a bit confused about the amount on the probiotic. Mimi

> forwarded something to me recently, and I need to go back and find it.

> I was thinking all this time that 3 billion was the max for

> probiotics, but that might not be true..... it may be that more is the

> recommendation. It was something that Mimi found that was written by

> Elaine.... I'll look for it tomorrow.

> >

> > Just out of curiosity, are you giving him cod liver oil?

> >

> > I'm dashing out the door (again) to yet another *fun* family holiday

> event.... =:-O

> >

> > Patti

> > Re: Never seen behaviour this severe

> >

> >

> > Thanks Patti,

> >

> > The yogurt probably was too soon, too much, and increased too fast.

> > He was so happy to eat someting new...We were using the goat yogurt

> > with the Gi pro health...Progurt.I can't remember when we

started the

> > yogurt but we started it with just part of a teaspoon(increased it

> > over a month maybe?) and when he started his antibiotic for strep in

> > nov. he started to really like the yogurt. He was eating up to

1/2-3/4

> > cup of drip yogurt daily since nov. and up to 1 cup daily just

> recently.

> >

> > We started the Gi pro health with L.acidophilus slowly the end of

> > september...by the beginning of november he was taking the a whole

> > capsule 3+billion cfus daily..1/2 capsule 2x a day.

> > took a little longer but she is tolerating a whole capsule

> daily.

> > So how much probiotic? He is starting to stutter...would an increase

> > in probiotic help? He is behaving well today!!!

> > Thanks,

> >

> > Cathy

> > Mom to ,

> >

> >

> > Recent Activity

> > a.. 14New Members

> > Visit Your Group

> >

[Guest guest]

Cathy,

Coconut milk is fine now.... because you strain out all the fiber. I honestly

do not know if it can successfully be made into yogurt. I honestly think that

the anti-fungal, anti-bacterial qualities in coconut *might* inhibit the growth

of the good bacteria in the fermentation process. I tried to find out more about

this..... because I swear I read somewhere that coconut milk does not work as

nut milks do, for yogurt making.... but no one seems to remember it and I

can't find the posts that referenced it (years ago!). I really, really like

coconut milk for these kids, though..... as a smoothie base or soup base....

especially if the child has ongoing problems with yeast.

Patti

Re: Never seen behaviour this severe

Patti,

I was wondering if I could make some coconut milk if he tolerates this

turn this into yogurt. I know this is a little soon for coconut

...maybe if I didn't give him too much he would be fine with it.

He is getting loud really forces his words out and stuttering

more...this may not be temporary...when he was doing the yogurt his

speech was almost 100%. Or maybe I should increase the probiotic.

Cathy

Recent Activity

a.. 15New Members

Visit Your Group

[Guest guest]

Cathy,

I know Tropicana OJ is " legal " ..... but I am becoming more and more uneasy about

the possible additives that just don't agree with some people. Have you tried

just juicing whole oranges.... with one of those hand held thingies that you

twist the orange half down on? Then you'd really know if it's something in the

orange juices itself that is a problem.... or the additives.

By the way..... what maple syrup candy was this?? You were not on SCD at that

time? I know there is NO maple syrup that is legal... was this something that

was SCD legal, just made with maple extract or something?

Patti

Re: Never seen behaviour this severe

>

>

> Thanks Patti,

>

> The yogurt probably was too soon, too much, and increased too fast.

> He was so happy to eat someting new...We were using the goat yogurt

> with the Gi pro health...Progurt.I can't remember when we started the

> yogurt but we started it with just part of a teaspoon(increased it

> over a month maybe?) and when he started his antibiotic for strep in

> nov. he started to really like the yogurt. He was eating up to 1/2-3/4

> cup of drip yogurt daily since nov. and up to 1 cup daily just

recently.

>

> We started the Gi pro health with L.acidophilus slowly the end of

> september...by the beginning of november he was taking the a whole

> capsule 3+billion cfus daily..1/2 capsule 2x a day.

> took a little longer but she is tolerating a whole capsule

daily.

> So how much probiotic? He is starting to stutter...would an increase

> in probiotic help? He is behaving well today!!!

> Thanks,

>

> Cathy

> Mom to ,

>

>

> Recent Activity

> a.. 14New Members

> Visit Your Group

>

[Guest guest]

Patti,

I didn't think that tropicana OJ had additives in it. I thought it

was just oranges. Maybe it's just oranges as I tried juicing them in

the past and he couldn't have them.(2 years ago).He was tolerating the

Oj..but I guess that changed.

He was not on the SCD when he had the candy..that was only maple

sugar..nothing else. All I was trying to say was that he can't be

allergic to m sugar, he probably not allergic to orange..he gut is

worse now..don't worry, I would never give him any kind of sugar..just

a bit of honey

Sorry for bugging you,

Cathy

> >

> > Cathy,

> >

> > I am so sorry he can't seem to tolerate the yogurt right now,

> because I am just so convinced of it's healing qualities really doing

> good things for his gut.... but if you've pulled it out and he seems

> better now, there must be some connection with the behavior. I hope

> you can restart it again soon.

> >

> > It does seem that he tolerates the probiotic just fine, though? I

> am really a bit confused about the amount on the probiotic. Mimi

> forwarded something to me recently, and I need to go back and find it.

> I was thinking all this time that 3 billion was the max for

> probiotics, but that might not be true..... it may be that more is the

> recommendation. It was something that Mimi found that was written by

> Elaine.... I'll look for it tomorrow.

> >

> > Just out of curiosity, are you giving him cod liver oil?

> >

> > I'm dashing out the door (again) to yet another *fun* family holiday

> event.... =:-O

> >

> > Patti

> > Re: Never seen behaviour this severe

> >

> >

> > Thanks Patti,

> >

> > The yogurt probably was too soon, too much, and increased too fast.

> > He was so happy to eat someting new...We were using the goat yogurt

> > with the Gi pro health...Progurt.I can't remember when we

started the

> > yogurt but we started it with just part of a teaspoon(increased it

> > over a month maybe?) and when he started his antibiotic for strep in

> > nov. he started to really like the yogurt. He was eating up to

1/2-3/4

> > cup of drip yogurt daily since nov. and up to 1 cup daily just

> recently.

> >

> > We started the Gi pro health with L.acidophilus slowly the end of

> > september...by the beginning of november he was taking the a whole

> > capsule 3+billion cfus daily..1/2 capsule 2x a day.

> > took a little longer but she is tolerating a whole capsule

> daily.

> > So how much probiotic? He is starting to stutter...would an increase

> > in probiotic help? He is behaving well today!!!

> > Thanks,

> >

> > Cathy

> > Mom to ,

> >

> >

> > Recent Activity

> > a.. 14New Members

> > Visit Your Group

> >

[Guest guest]

thanks Patti,

I think I will make some coconut milk. I may be mistaken..but when

I order my Yogurmet from Lucy's kitchen...I thought she said something

about making yogurt from coconut..Maybe I'm wrong. Maybe I should ask

her. I can't even consider trying nuts for yogurt...nuts will be a

long time ..

thanks Again.,

cathy

>

> Cathy,

>

> Coconut milk is fine now.... because you strain out all the fiber.

I honestly do not know if it can successfully be made into yogurt. I

honestly think that the anti-fungal, anti-bacterial qualities in

coconut *might* inhibit the growth of the good bacteria in the

fermentation process. I tried to find out more about this..... because

I swear I read somewhere that coconut milk does not work as nut milks

do, for yogurt making.... but no one seems to remember it and I

can't find the posts that referenced it (years ago!). I really,

really like coconut milk for these kids, though..... as a smoothie

base or soup base.... especially if the child has ongoing problems

with yeast.

>

> Patti

> Re: Never seen behaviour this severe

>

>

> Patti,

> I was wondering if I could make some coconut milk if he tolerates this

> turn this into yogurt. I know this is a little soon for coconut

> ...maybe if I didn't give him too much he would be fine with it.

> He is getting loud really forces his words out and stuttering

> more...this may not be temporary...when he was doing the yogurt his

> speech was almost 100%. Or maybe I should increase the probiotic.

>

> Cathy

>

>

> Recent Activity

> a.. 15New Members

> Visit Your Group

>

[Guest guest]

It could be that it does work with coconut milk.... I've just got a vague

memory in the back of my mind that there was some reason why it doesn't.... or

that the oil in coconut milk impedes the good bacteria from reproducing as much

as they might in another medium. I'm not sure anyone has verified the probiotic

population of coconut milk yogurt in a lab or anything. I wish I could come up

with a link or an old saved message that referred to this. I've posted questions

about it before, but never got responses from anyone. Maybe Lucy knows better.

I'd actually love to know. I hope it works!

Patti

Re: Never seen behaviour this severe

>

>

> Patti,

> I was wondering if I could make some coconut milk if he tolerates this

> turn this into yogurt. I know this is a little soon for coconut

> ...maybe if I didn't give him too much he would be fine with it.

> He is getting loud really forces his words out and stuttering

> more...this may not be temporary...when he was doing the yogurt his

> speech was almost 100%. Or maybe I should increase the probiotic.

>

> Cathy

>

>

> Recent Activity

> a.. 15New Members

> Visit Your Group

>

[Guest guest]

I have made coconut yogurt when we were GFCF, before SCD. It worked, but I was

using the canned version which has guar gum in it (thickener and emulsifier)

which is not legal on SCD. I loved the taste of this yogurt (I love coconut),

but I don't know if it would work without the gum in it. You don't have to heat

it up, just throw in the probiotics & put in the yogurt maker for 12 hours.

[Guest guest]

You would have to make it from homemade coconut milk. I was just concerned

about whether or not the probiotics could actually grow and flourish in the

anti-bacterial environment of the coconut milk. As far as I know, no one's ever

been able to answer that question for me.

Did you put honey in the coconut milk to give the bacteria something to eat

while fermenting? If not, I don't know how you would have any probiotics left

alive after 12 hrs, unless they were eating the guar gum.

How did you confirm that there were really lots and lots of lively good flora in

the result? Did it firm up?

Patti

Re: Never seen behaviour this severe

I have made coconut yogurt when we were GFCF, before SCD. It worked, but I was

using the canned version which has guar gum in it (thickener and emulsifier)

which is not legal on SCD. I loved the taste of this yogurt (I love coconut),

but I don't know if it would work without the gum in it. You don't have to heat

it up, just throw in the probiotics & put in the yogurt maker for 12 hours.