our many generations, here and now

[Guest guest]

I have been thinking (always a troubling indicator!). Now, at this time, we

have more generations of persons with cystic fibrosis and other chronic

diseases than we have ever had in the history of this planet.

That does nothing to detract from the immense sadness to those who have

lost children, adult children and spouses and grandchildren to cystic fibrosis.

But it also means that we have with the many generations of cystic

fibrosis now alive--and newly so--a generation gap. None of us, as

a wise friend with cf recently reminded me, CHOSE to have any of

the handicaps which we do have. None of us CHOSE nor had the

means to choose, the length of our children's lives, nor of our own.

It has just been this way and is now this way--no one is to blame, nor

to be particularly credited for a life cruelly cut short, nor a life of

suffering dragged on.

Those of us who are still here are just doing out best to help those

who might need us; those who are younger are doing their best to

struggle through rearing children, an opportunity denied to many

with cf. And, sadly, many never get to have either opportunity: to

rear children, nor to live longer, no matter what the difficulties.

But what we can do on these lists is be supportive of one another.

Right now, we have young, old, and children in desperate need of

our help, and often their parents and/or surviving parents and grand

parents, aunts and uncles, spouses and/or partners as well.

Let us work together as best we can as a group with a common

cause: that of having a control and cure for cystic fibrosis, and let

us not let the difference in our ages, circumstances nor apparent

health or lack of same get in the way.

Many need our hope; let us give it freely in the style appropriate to

each of us. We ALL need EACH of us; we need one another.

Love to all coping with cystic fibrosis and/or other serious chronic

disease at this time. . .

n Rojas

[Guest guest]

Nicely said n.

On Thursday, January 8, 2004, at 03:24 PM, n Rojas wrote:

> I have been thinking (always a troubling indicator!).  Now, at this

> time, we have more generations of persons with cystic fibrosis and

> other chronic

> diseases than we have ever had in the history of this planet.

>

> That does nothing to detract from the immense sadness to those who have

> lost children, adult children and spouses and grandchildren to cystic

> fibrosis.

>

> But it also means that we have with the many generations of cystic

> fibrosis now alive--and newly so--a generation gap.  None of us, as

> a wise friend with cf recently reminded me, CHOSE to have any of

> the handicaps which we do have.  None of us CHOSE nor had the

> means to choose, the length of our children's lives, nor of our own.

> It has just been this way and is now this way--no one is to blame, nor

> to be particularly credited for a life cruelly cut short, nor a life of

> suffering dragged on.

>

> Those of us who are still here are just doing out best to help those

> who might need us; those who are younger are doing their best to

> struggle through rearing children, an opportunity denied to many

> with cf.  And, sadly, many never get to have either opportunity: to

> rear children, nor to live longer, no matter what the difficulties.

>

> But what we can do on these lists is be supportive of one another.

> Right now, we have young, old, and children in desperate need of

> our help, and often their parents and/or surviving parents and grand

> parents, aunts and uncles, spouses and/or partners as well.

>

> Let us work together as best we can as a group with a common

> cause: that of having a control and cure for cystic fibrosis, and let

> us not let the difference in our ages, circumstances nor apparent

> health or lack of same get in the way.

>

> Many need our hope; let us give it freely in the style appropriate to

> each of us.  We ALL need EACH of us; we need one another.

>

> Love to all coping with cystic fibrosis and/or other serious chronic

> disease at this time. . .

> n Rojas

>

>

>

[Guest guest]

Well said............

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "