Re: Getting ready to start this and have some questions.

[Guest guest]

Welcome to the group Cheryl,

<< prescribed a very

> expensive, very high calorie formula called Peptamen Jr. It's for

> tube feeding GI compromised children. It SAYS it's gluton and

> lactose free. (it is made from whey). She vomits milk products,

> berries, orange, and pineapple. I don't know if this is an

allergy,

> exactly, or not.

>

> My questions: Does anyone know if this formula is legal for this

> diet? Our pediatrician (a new one)isn't very familiar with this

> diet, but has ok'd us trying it. >>

Sorry to be the bearer of bad news (or not, since it's very

expensive) but the Peptamen Jr. is what I'd call *extremely* SCD

illegal. It has maltodextrin, corn starch, guar gum etc.. These

three alone will feed harmful microbes if the body is unable to

digest them. You can get the MCT's it contains with the use of good

quality coconut oil. All the vits and minerals can be given in the

form of a good multivitamin. There are some listed at

http://pecanbread.com/supplements.html Recomended vitamin amounts

for children are in BTVC, chapter 9 . If she has trouble with

supplements most multi's can be crushed and added to mashed banana,

homemade applesauce etc...

<< And am I supposed to start with the yogurt or fruits? Do I stop

all other foods and only introduce one at a time. (bananas only for

a > while, then add apples?) >>

We generally suggest starting with the intro diet. There are two

versions of the diet. There is the original containing dairy and the

dairy free version

http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm

(original with dairy)

http://pecanbread.com/foodprep.html#intro (dairy free version)

Considering her past problems starting with the dairy free version

may be best. It will allow you to gently " clear " the decks of

harmful microbes and when she is established on the diet you could

try to add in some dairy.

After the intro it is best to slowly introduce 1 new food at a time.

Cooked and peeled fruits and vegetables are easiest to digest.

Generally ripe banana is tolerated pretty good after the intro,

though some do well with homemade pear sauce. For your daughter and

her specific symptoms as you've listed I'd go with a small portion of

ripe banana and see how she does. If okay gradually increase the

amounts over a number of days. Then try adding a new vegetable to

keep her balanced in fruits and vegetables and not too much of

either. A good veggie to try after the intro may be cooked squash

and or peeled , cooked zucchini. Use small zucchini with little easy

to digest seeds. Later on ripe avocado may be tolerated. Ripe

avocado is a great source of good fats and nutrients.

Meats should be boiled or broiled, as fat is more difficult to digest

for a damaged gut. As she heals she should eventually be able to

tolerate some fats.

Once you really get going these chart may be helpful:

http://pecanbread.com/foodprep.html#beyond

These links may also be especially helpful:

http://pecanbread.com/foodprep.html#transition

http://pecanbread.com/foodprep.html#menu

http://pecanbread.com/foodprep.html#homemade

There are a few possible reasons she had problems with dairy:

1. it may have been the lactose

2. it may be the size of the cow proteins in regular formula

A number of people unable to tolerate dairy prior to starting the

diet are quite fine with SCD homemade yogurt. The yogurt is lactose

free and making milk into yogurt changes the shape of the casein

molecule (what many are sensitive to) from a hard to digest 3-

Dimensional shape to an easier for the body to digest 2-dimensional

shape. The good bacteria also provides natural enzymes which aid

digestion and proactively heal the gut.

For those unable to tolerate the cow yogurt some use homemade 24

hour goat yogurt. The goat casein molecule is smaller than the cow

casein molecule and is even easier to digest.

Sheila, Feb. 2001, UC 23 yrs

mom of and

[Guest guest]

Cheryl,

Welcome to the group. Can you list the ingredients for the formula, please.

Someone can tell you what is and isn't illegal on the list. You'll want to take

a look at the intro diet on pecanbread.com under the food preparation section.

That's what you'll want to do for her for between 2-5 days. If she doesn't have

problems with diharea, then 2 days is sufficient. The intro diet is very

important because it helps clear her body out a bit, and prepares a more

" cleaned out " gut to start over with. I'd also suggest that you take a look at

the " beyond the intro " section as well. It's also within the food preparation

section. It will give a chart of stages to reintroduce foods. You have it

right that you will gradually add in new foods one at a time...just like you did

when she first started on solids...and watch for any negative reaction.

Remember that negative reactions can mean gut issues like diharea or

constepation, but it can also means things like poor behavior, rash or

itchiness, red cheeks, dark circles under eyes, and other things like that.

It's very helpful to keep a food journal for each day. Just list what she eats,

and any notes about BMs, behavior, sleep, ect. If you do see a possible

negative reaction, pull the food for a few days to a week. Try it again. If

you see the same thing...negatives...then she probably isn't ready for that

food. Remember to go slowly...only introducing a new food every few days.

Also, keep in mind that pretty much everything is hoemmade. Look in the files

here for the list of SCD legal juices from the store. It's been posted a

hundred times, so it should be easy to find. Also, remember no storebought

applesauce, canned veggies, ect. I find that pretty much the only things I can

buy on the nonperishable shelves are the legal juices...including the two legal

tomato juices. As far as the perishables whether it be dairy, fresh or frozen

produce, or meat, always make sure to check the labels for illegal ingredients

added to it. When in doubt, don't buy it, and then ask someone here if the

ingredient(s) that you question are OK.

Meleah SCD 05/06

iel 3.5yrs. ASD, Ethan 5yrs., Mark 19mths., both NT

Getting ready to start this and have some questions.

My daughter is 20 months old and after more testing than I care to

remember, the only diagnosis given is failure to thrive. She's only

17 pounds and won't eat much. She's vomitted since birth, her doctor

kept saying it was reflux. She was breastfed, didn't tolerate it,

changed to formula, same effect. WE switched her to soy and

suddenly, no more vomitting. But, her GI doctor insists it's a

calorie issue why she won't gain weight and prescribed a very

expensive, very high calorie formula called Peptamen Jr. It's for

tube feeding GI compromised children. It SAYS it's gluton and

lactose free. (it is made from whey). She vomits milk products,

berries, orange, and pineapple. I don't know if this is an allergy,

exactly, or not.

My questions: Does anyone know if this formula is legal for this

diet? Our pediatrician (a new one)isn't very familiar with this

diet, but has ok'd us trying it.

And am I supposed to start with the yogurt or fruits? Do I stop all

other foods and only introduce one at a time. (bananas only for a

while, then add apples?)

Any help would be appreciated!

Thank you,

Cheryl

[Guest guest]

Thank you for the very helpful info! I hope to start this diet asap

as I will be shopping around for ingredients tomorrow. I'm just

SOOOO nervous about this. She can't afford to loose and weight.

I've been keeping track and she hasn't gained more on the Peptamen Jr

than she did on soy formula. I just know something has to be done

and all (too many to count!) of her doctors are baffled. She's

developmentally delayed and sees pt, ot, speech. Other than that and

her weight, she's EXTREMELY happy, flexible and wiggly.

I will try this and let you know how it goes. I'm sure I will have

more questions so look out!

Thank you!

Cheryl

Mother of Alysson (4.9) and Dorthia (20 mos)

>

> Welcome to the group Cheryl,

>

> << prescribed a very

> > expensive, very high calorie formula called Peptamen Jr. It's

for

> > tube feeding GI compromised children. It SAYS it's gluton and

> > lactose free. (it is made from whey). She vomits milk products,

> > berries, orange, and pineapple. I don't know if this is an

> allergy,

> > exactly, or not.

> We generally suggest starting with the intro diet. There are two

> versions of the diet. There is the original containing dairy and

the dairy free version

http://www.breakingtheviciouscycle.info/beginners_guide/beginners.htm

> (original with dairy)

><<clipped for length by moderator>>

[Guest guest]

A little late but I thought I would respond. Ideally it is best to

start with the intro diet. But, of course with extremely picky

eaters and kids who have been used to getting their fill from liquid

this can be really tricky and stressful for moms who are watching

every bite that goes in or doesn't go in. When I started SCD I

didn't understand the intro diet fully and actually found out I

didn't technically do the intro diet (oops) but we still made

progress and then later I was able to actually go back and do the

intro diet the right way and have done it a few times since (when my

daughter has been sick or we've lost some ground due to poorly

tolerated food that was introduced, etc). Anyway, I would get rid of

the formula - it is most likely just being eaten by bacteria and

yeast and not helping your daughter grow (otherwise you wouldn't be

here). Get rid of all illegal foods. I would come up with a list

(keep it short and simple) of foods that are well tolerated (none

that make her vomit), thinking of when you first start feeding a

baby: So, maybe foods like: mashed, RIPE banana, mashed avocado, as

much protein as you can at every meal - turkey, chicken, lamb, eggs,

beef. I find that crockpot cooking and cooking in water makes it the

most digestible. Avoid fried foods - hard on the gut. Veggies like

well cooked green beans are often well tolerated. Homemade pear

sauce can be good. If you start with a small menu like this continue

until you have made some good progress and if possible go back to

elimination. Then you can start adding in one at a time and watch

response. When you have a base of foods it is always best to do add

just one new thing at a time. Add in 1 food at a time and watch

response (could be hours later, day later, days later - could effect

behavior, mood, stools, etc). I would not include cheese or yogurt

in the beginning. Sometimes you have to feed a food the child likes

and alternate a bite of the less preferred food but as you get her

gut healthier this should change and she should start eating a lot

better. Please email back with any other questions.

Jen, mom to Evie - 4 years old diagnosed with PDD-NOS, SCD since

approx. June 21 2006. (and now I am SCD too!). P.s. good to see

you today and wishing you the best!

>

> My daughter is 20 months old and after more testing than I care to

> remember, the only diagnosis given is failure to thrive. She's

only

> 17 pounds and won't eat much. She's vomitted since birth, her

doctor

> kept saying it was reflux. She was breastfed, didn't tolerate it,

> changed to formula, same effect. WE switched her to soy and

> suddenly, no more vomitting. But, her GI doctor insists it's a

> calorie issue why she won't gain weight and prescribed a very

> expensive, very high calorie formula called Peptamen Jr. It's for

> tube feeding GI compromised children. It SAYS it's gluton and

> lactose free. (it is made from whey). She vomits milk products,

> berries, orange, and pineapple. I don't know if this is an

allergy,

> exactly, or not.

>

> My questions: Does anyone know if this formula is legal for this

> diet? Our pediatrician (a new one)isn't very familiar with this

> diet, but has ok'd us trying it.

>

> And am I supposed to start with the yogurt or fruits? Do I stop

all

> other foods and only introduce one at a time. (bananas only for a

> while, then add apples?)

>

> Any help would be appreciated!

>

> Thank you,

> Cheryl

>