Guest guest Posted January 16, 2004 Report Share Posted January 16, 2004 Hi , It is harder for them to stay caught up if they are absent allot. Plus, the older they get the more work they have to do. It is good that you are looking into a tutor. The important thing here is that the older our kids get, the more they just want to be like everyone else. OR it is just the opposite. We make them dependent on everyone else by making allowances for them because they have an illness. Your goal when raising a child is to make them independent. There are times that they need to have allowances made!! What you might have to do is go to bed earlier in the evening so that he can get up earlier to do his vest and any other treatments, breakfast, etc. that needs to be done in the morning. My daughter has to get up at 4:00 sometimes so that she can do her vest and all of these things to be to drill team practice at school at 6:00 am. It can be done. Good luck and I hope Jordan feels better so that he doesn't miss much school. Tina W., mother of , 18yo wcf school accomations Hi, My name is and I have a son, Jordan, who has PCD. They treatments are like CF kids minus the digestive problems and add in the ears. He is seen by a CF doc. My question is? What kind of accomadations are being made for your children at school? Jordan has missed a lot of school over the years and it is starting to get more difficult for him to stay caught up the older he gets. He is 11yrs old and in 5th grade. We have an IEP meeting to address tutoring. I don't have a clue what the tutoring would look like. Would it be daily and for how long or 2-3 times a week? Also we're going to talk about a modified school day for next year. Jordan will be attending Middle School for 6th grade next year. He needs to be ready to leave the house at 6:30am to meet the bus. Being realistic I just don't think we can pull this off and get his full vest treatment in. I would appreciate any thoughts or your experiences in this area. Thanks, /MN ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 We have a 504 set up for my son, now in first grade, when I asked for him being exempt from the tardy and absent days his dr. said that was unacceptable. A lot of kidos with CF get up before 4 am and do treatments to be to school on time. We needed to adjust our schedule accordingly. Oh guess what guys!!!!! At our school the cafeteria is an all porpose room. That's where the kids come and wait to be excused to their classrooms in the morning and catch the buss in the PM. It's also used for gym and assemblies. Just think about all the dirt and bugs and everything else in that CARPET. Yes, you heard me....carpet. Well, I've been on the principal to get it removed and they finally passed it in the budget. We're getting rubberized tile!!!!! In the summer of course while the kids are off on vacation. Next year he will be getting a pass to jump to the front of the lunch line as in our school he's not allowed to carry his enzymes. To the person from PA, how did you get the school to allow your son to carry his enzymes? If your school uses computers then I'd have a section in the 504 where the computers need to be sanitized daily. This may not happen as it depends on the custodian. It's in my son's 504 but I don't think it's being done. His teacher had mentioned about getting a keyboard cover so that only he uses it. I haven't heard whether or not they got that yet. It's been good 5 months since it's been mentioned. Next on my agenda, it's been there and I've been fighting for it, is air conditioning in the school. They have 3 floors and it gets above 100 degrees up on 3rd floor. Well, I'll quit yapping and allow others to get their words in. from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Thank you Tammy for the advice. We were told that in PA no kids were allowed to take their enzymes with them in school. Now I know that isn't true. Even our Dr. had mentioned that if another child had gotten a hold of them that it wouldn't do any harm. It's not a real drug, just a naturally occurring substance in the body that our kids can't put out. ANYWAY, Thanks for offering an ear and any future advice you can give me. P.S. Has anyone ever had their school tested for any type of molds or bacteria found in the air? And if so do you know what the cost was? from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2005 Report Share Posted January 26, 2005 Hello, , Just wanted to let you know that in Fairfax County, VA, our public schools ALLOW the students to carry their enzymes in their pocket.. For lunch, Henry still breaks off to take his enzymes from the nurse (won't swallow the capsule yet). He goes to the front of the lunch line when he buys his lunch. Good luck to you! I will also be sitting down with our school principal and nurse this summer to discuss next year, 1st grade. Jen Chastain in andria Mom of , , and Henry, 6-year-old with CF Quote Link to comment Share on other sites More sharing options...
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