Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 That sounds like an awesome idea. I would love to have Jonah and in it. Let me know what to do. Take Care, Peggy mom of Jonah and 5 yrs, identical twins, wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I love that idea!!!! mom of Makenzie 7 w/o cf and Jaelyn 2 w/ cf A request.. FOR EVERYONE Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I like your idea and would love to participate!! Theresa Samulski SamulskiT@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 natalia i think it is a really cool idea and i would love to be a part of it just let me know michelle mom t 4 girls the youngest w/cf (anna) A request.. FOR EVERYONE > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 YES, It would be just that MAGICAL>Great idea. Love & hugs, grandmoMBEv A request.. FOR EVERYONE Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 What a wonderful idea!!!! I would love for Piper to be a part of it, just let me know what I need to do!!!! Katy Mom to Austin 4 no CF & Piper 18 months w/CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Thats a great idea...id love to be a part!Patty H > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Natalia, I think that is a great idea! How cool to be able to look at the pics and read the stories of so many others with CF! A request.. FOR EVERYONE Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I'd like my daughter to be a part of it. Definitely count us in. Elias- dad to Uriah 4, no CF, Soley 1, w/CF Re: A request.. FOR EVERYONE Thats a great idea...id love to be a part!Patty H > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I think this would be great! Let's try it and see what happens. Tina W., mother of Steph, 18yo wcf Re: A request.. FOR EVERYONE Thats a great idea...id love to be a part!Patty H > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 This is a good idea, except... what about contamination? I hate to be the paranoid mother, but I don't even let my kids touch the books in the dentist's waiting room. I just can't see letting my child with cf handle something that has been passed around to hundreds of other people with cf. Am I being crazy here? What is the likelihood of germs being transmitted via scrapbook? I'm not unusually overprotective, but this seems a little risky to me. What about putting all the same information on a website? Everything could be scanned and put into a pdf file so that it could be printed out just as it was written, or viewed online - with zero chance of cross-infection. The http://www.cfparents.org website has space. Just a thought. ~ mommy of 3, 1 with cf > That > > way we could keep track of it and keep in going all over. Imagine > > sitting at home with your family and looking at picture after > picture > > of CF people all around the world. And reading their messages, > > and on and on. Imagine the possibilities. We could take it to > > clinics, to have people join in. Each person that has it that > moment > > could get involved in any way that they like, perhaps collecting > some > > pictures and pasting them in yourself. It would give us all a week > or > > two of crafty fun, before mailing the book to its next temporary > home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 , I feel the same way, and I just hate being so paranoid... but it's undeniable that certain things, like mold, aspergillus, loves paper... But creating a web site scrapbook is a really good alternative. Kim > > That > > > way we could keep track of it and keep in going all over. > Imagine > > > sitting at home with your family and looking at picture after > > picture > > > of CF people all around the world. And reading their messages, > > > > and on and on. Imagine the possibilities. We could take it to > > > clinics, to have people join in. Each person that has it that > > moment > > > could get involved in any way that they like, perhaps collecting > > some > > > pictures and pasting them in yourself. It would give us all a > week > > or > > > two of crafty fun, before mailing the book to its next temporary > > home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I really like this idea also but I also have questions about contamination. I like 's idea about everyone putting their information on the internet or something like that, although I am so not smart enough to know how to set this up. Anyway, if this idea gets going, please include us!!!!!!! Sue Pettit of Tupelo, Mississippi mom to (17 wocf) driving and being the most responsible 17 yo I have ever seen, (13 wocf) playing baseball, football, band, and whatever else he can get into, and (12 wcf) into all sports, enjoying lots of friends, running full speed and doing all she can---diagnosed at 8 days of age at LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors Lyrene and Makris (and lots of other wonderful folks, of course) at UAB Children's Hospital in Birmingham, Alabama Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Natalia - I think its wonderful!!! Did you get the pix I sent you? That postage thing threw me! Rosemary in NY with 3 children (13, 11 and 7) with CF. I have a dog named TOBI and have coined the phrase " BREATHE DAMMIT " my new favorite quote is Any idiot can face a crisis - it's day to day living that wears you out. Anton Chekhov Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Natalia, I think that this sounds like a great idea. You can add a picture of Abby that I sent to you. Everyone will need to take good care of the book and be sure to pass it on. Gale > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 After viewing your posts i wondered about books in cf dr rooms, i always let ty plays with those...they might be contaminated too i guees.Never even thought of that. Patty > > That > > > way we could keep track of it and keep in going all over. > Imagine > > > sitting at home with your family and looking at picture after > > picture > > > of CF people all around the world. And reading their messages, > > > > and on and on. Imagine the possibilities. We could take it to > > > clinics, to have people join in. Each person that has it that > > moment > > > could get involved in any way that they like, perhaps collecting > > some > > > pictures and pasting them in yourself. It would give us all a > week > > or > > > two of crafty fun, before mailing the book to its next temporary > > home. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Hmmmm, gee lets see, that is a tough question... " would we want to be invovled in something like that " ? Well of course!!!!Natalia, I can literally feel the excitement oozing onto your keyboard. As far as cross-contamination, well if the scrapbook pages are put into plastic sleeves and the album itself is plastic coated so one can use a lysol wipe and wipe the pages and book off.....perhaps this would help calm the fears of some? My concern is trusting the pages to the postal service. What a shame it would be to see something happen after all the work was put into it. I think it's a great idea and whatever I can do to help, let me know!! I am glad you got our letter. It sat in my car for awhile....I never seem to have stamps! Glad to see you are home!!! e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Perhaps we could get n and Hal to send in some picture of when they were younger and [ictures of them today! e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Super idea, count us in for sure!! Cheryl A request.. FOR EVERYONE Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 It sure sounds like a cute & fun activity ----and friendship LOVE & Hugs GRANDMOMBEV A request.. FOR EVERYONE Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Fantastic idea. We would love to participate. Email poltman@.... Thanks Lesley & Dave Mom & dad to Lynn 10.5 no CF and Leanne 5.5 w/CF A request.. FOR EVERYONE > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I think it's a great idea but I have a suggestion. The idea is to create another group, called CF Profiles, where we can all post our little chapter into it. As a matter of fact, MSN can be great for that, since you can have specific categories for each person - i.e., you can reply to your own segment without having other people putting information into that piece. That would make it cheap (free), available to everyone, and no worries for germs or whatever. I have done it for my betta clubs (Betta Breeders Profiles) and find it a great idea. > Everyone, > > can I have come up with this idea, and I want to run it by you > guys. I want to start a book, like a scrap book of CF kids, teens, > young adults and adults, and their families all around the world. A > book that will contain pictures, messages, whatever you'd like to place > in it, that would be sent from home to home where information about > that person and their family would be added. > I would start it, and with the permission of the people that sent me > pictures, I would place them in the book. Then I would send it to the > first person on the list, and on it would go. There is enough people > on this list alone to make for an interesting book, but then it could > go to others. Hopefully making it back to Canada so that I could see > it once in a while. It would join a community of people that is > relatively small, but that I think needs to stick together. Who knows, > it could be published one day. I think it would be amazing. > > I would set it up that the person that got the book would email me and > I would direct where it would go next. (so personal information would > not be in the book and that mailing costs would be minimal/local) That > way we could keep track of it and keep in going all over. Imagine > sitting at home with your family and looking at picture after picture > of CF people all around the world. And reading their messages, hearing > what they have to say, hearing their story. I think it could be > beautiful, and with good organization and preparation, it could go on > and on and on. Imagine the possibilities. We could take it to > clinics, to have people join in. Each person that has it that moment > could get involved in any way that they like, perhaps collecting some > pictures and pasting them in yourself. It would give us all a week or > two of crafty fun, before mailing the book to its next temporary home. > > Think about it everyone. This would be entirely your call whether to > participate, so if its not your thing, you could just take a look and > not put in pictures or messages. But for those that want to get really > involved it would be a beautiful way to join with the entire world of > CF families. I am going to start with my clinic, and my old kids > clinic. and with permission with the pictures that you guys sent me. > Which will be many already, and then send it to one of you to start the > chain. The possibilities of this amaze me, I think it could be magical. > > Let me know what you guys think. > > Natalia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 e: When I was younger, cameras hadn't been invented. Rembrandt made a brass etching of me, but he decided to melt it down. Hal Re: A request.. FOR EVERYONE Perhaps we could get n and Hal to send in some picture of when they were younger and [ictures of them today! e ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Sounds like a good one to me! n Rojas A request.. FOR EVERYONE Everyone, can I have come up with this idea, and I want to run it by you guys. I want to start a book, like a scrap book of CF kids, teens, young adults and adults, and their families all around the world. A book that will contain pictures, messages, whatever you'd like to place in it, that would be sent from home to home where information about that person and their family would be added. I would start it, and with the permission of the people that sent me pictures, I would place them in the book. Then I would send it to the first person on the list, and on it would go. There is enough people on this list alone to make for an interesting book, but then it could go to others. Hopefully making it back to Canada so that I could see it once in a while. It would join a community of people that is relatively small, but that I think needs to stick together. Who knows, it could be published one day. I think it would be amazing. I would set it up that the person that got the book would email me and I would direct where it would go next. (so personal information would not be in the book and that mailing costs would be minimal/local) That way we could keep track of it and keep in going all over. Imagine sitting at home with your family and looking at picture after picture of CF people all around the world. And reading their messages, hearing what they have to say, hearing their story. I think it could be beautiful, and with good organization and preparation, it could go on and on and on. Imagine the possibilities. We could take it to clinics, to have people join in. Each person that has it that moment could get involved in any way that they like, perhaps collecting some pictures and pasting them in yourself. It would give us all a week or two of crafty fun, before mailing the book to its next temporary home. Think about it everyone. This would be entirely your call whether to participate, so if its not your thing, you could just take a look and not put in pictures or messages. But for those that want to get really involved it would be a beautiful way to join with the entire world of CF families. I am going to start with my clinic, and my old kids clinic. and with permission with the pictures that you guys sent me. Which will be many already, and then send it to one of you to start the chain. The possibilities of this amaze me, I think it could be magical. Let me know what you guys think. Natalia ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
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