Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 , you are not paranoid! You are a NORMAL mother of a cf child or children! Thank heavens! Love to you and yours, n Rojas Re: A request.. FOR EVERYONE This is a good idea, except... what about contamination? I hate to be the paranoid mother, but I don't even let my kids touch the books in the dentist's waiting room. I just can't see letting my child with cf handle something that has been passed around to hundreds of other people with cf. Am I being crazy here? What is the likelihood of germs being transmitted via scrapbook? I'm not unusually overprotective, but this seems a little risky to me. What about putting all the same information on a website? Everything could be scanned and put into a pdf file so that it could be printed out just as it was written, or viewed online - with zero chance of cross-infection. The http://www.cfparents.org website has space. Just a thought. ~ mommy of 3, 1 with cf > That > > way we could keep track of it and keep in going all over. Imagine > > sitting at home with your family and looking at picture after > picture > > of CF people all around the world. And reading their messages, > > and on and on. Imagine the possibilities. We could take it to > > clinics, to have people join in. Each person that has it that > moment > > could get involved in any way that they like, perhaps collecting > some > > pictures and pasting them in yourself. It would give us all a week > or > > two of crafty fun, before mailing the book to its next temporary > home. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 I would willingly do so but one of my daughters is " keeping " all the family pictures and will not even let me have copies of my parents! The kid, not the cfer, the allergic one, is reall obsessive-compulsive, I swear! n, who actually does love all her children, but sure would like to get her paws on those photos--hundreds and hundreds! Re: A request.. FOR EVERYONE Perhaps we could get n and Hal to send in some picture of when they were younger and [ictures of them today! e ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 good idea. On Wednesday, January 21, 2004, at 07:38 PM, e wrote: > Perhaps we could get n and Hal to send in some picture of when > they were younger and [ictures of them today! > > > > e > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > <image.tiff> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Hal - that's funny =) On Wednesday, January 21, 2004, at 10:17 PM, hasoloff wrote: > e: When I was younger, cameras hadn't been invented. Rembrandt > made a brass etching of me, but he decided to melt it down. Hal > > Re: A request.. FOR EVERYONE > > Perhaps we could get n and Hal to send in some picture of when > they were younger and [ictures of them today! > > > > e > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > ------------------------------------ > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 I thought of that too, but I don't think that the germs would survive through the mailing process since they need a moist wet environment like the lungs......... Re: A request.. FOR EVERYONE This is a good idea, except... what about contamination? I hate to be the paranoid mother, but I don't even let my kids touch the books in the dentist's waiting room. I just can't see letting my child with cf handle something that has been passed around to hundreds of other people with cf. Am I being crazy here? What is the likelihood of germs being transmitted via scrapbook? I'm not unusually overprotective, but this seems a little risky to me. What about putting all the same information on a website? Everything could be scanned and put into a pdf file so that it could be printed out just as it was written, or viewed online - with zero chance of cross-infection. The http://www.cfparents.org<http://www.cfparents.org/> website has space. Just a thought. ~ mommy of 3, 1 with cf > That > > way we could keep track of it and keep in going all over. Imagine > > sitting at home with your family and looking at picture after > picture > > of CF people all around the world. And reading their messages, > > and on and on. Imagine the possibilities. We could take it to > > clinics, to have people join in. Each person that has it that > moment > > could get involved in any way that they like, perhaps collecting > some > > pictures and pasting them in yourself. It would give us all a week > or > > two of crafty fun, before mailing the book to its next temporary > home. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Natalia, This sounds like a beautiful idea. I would not be surprised if it catches on and we hear about several volumes of this... Count us in!!! Karon mom to , III, 14 mos wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 i think this is all sjo great, what ever you decide on count me in. I think that it would be great to try and publish. Sandy Mother of three daughters 4 yo w/CF - Kenedy, 6 yo no CF - and 7 yo w/CF - Kaylee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Natalia, I know that and I would love to be apart of your book. She just found out that a young (18 year old girl) lives near us and has no one to talk to about CF. Her parents are not supportive and she also has an older sister with CF and she doesn't care either. So we are waiting to see if she calls, if nothing else they can talk on the phone. I am glad your home, stay well. We finnally have snow YEAH. judy ('s mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 who is this girl. this sounds awful!! Tell that I am not ignoring her great email that she sent me. I have had a bit of a organizational tough time at home, and have been behind on my emails. But I am for sure!!!!!!! going to write her back. Natalia > Natalia, > I know that and I would love to be apart of your book. She just > found out that a young (18 year old girl) lives near us and has no one > to talk to about CF. Her parents are not supportive and she also has > an older sister with CF and she doesn't care either. So we are > waiting to see if she calls, if nothing else they can talk on the > phone. > I am glad your home, stay well. > We finnally have snow YEAH. > judy ('s mom) > > Quote Link to comment Share on other sites More sharing options...
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