Guest guest Posted January 24, 2007 Report Share Posted January 24, 2007 Tricia, What is the prednisone for? What's the dosage and what is the rate of weaning? I see he has ASD but does he have a confirmed IBD diagnoses? Six weeks is really not all that long on prednisone. The danger is weaning too fast if his body is not ready for it but since we are not doctor's it is very difficult to give advice about meds so if you can answer the above questions that would help us to help direct you. Charlene UC 8 years SCD 6 years Hello, Does anyone have experience with Prednisone? Our GI just prescribed a 6 week round for our son. It looks pretty hardcore. We've been SCD for a month. any information is appreciated. Tricia S. Mom to Aidan the A Train, ASD (for now) SCD 1 month Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 Charlene, The prednisone is for lymphoid nodular hyperplasia and inflamation that showed up on labs. He was scoped by Dr. Krigsman so I feel very confident in what the doc is wanting us to do.However this looks like a hardcore drug and I was just wondering how it went with others who have used this drug. We will be weaning off slowly. I think because this is not something we can do long term the doc is wanting to see what effect this has on Aidan and then proceed from there. Tricia S. Mom to Aidan, ASD, SCD for 29 days > > Tricia, > > What is the prednisone for? What's the dosage and what is the rate of weaning? I see he has ASD but does he have a confirmed IBD diagnoses? Six weeks is really not all that long on prednisone. The danger is weaning too fast if his body is not ready for it but since we are not doctor's it is very difficult to give advice about meds so if you can answer the above questions that would help us to help direct you. > > Charlene > UC 8 years > SCD 6 years > > > > Hello, > > Does anyone have experience with Prednisone? Our GI just prescribed a 6 > week round for our son. It looks pretty hardcore. We've been SCD for a > month. any information is appreciated. > > Tricia S. > Mom to Aidan the A Train, ASD (for now) > SCD 1 month > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2007 Report Share Posted January 25, 2007 <<Does anyone have experience with Prednisone? Our GI just prescribed a 6 week round for our son. It looks pretty hardcore. We've been SCD for a month. any information is appreciated. Tricia S. >> Oh boy do I have experience with Prednisone!! My son (ASD,turning 4 on Monday) has been on Prednisone (3 mg/ml) since last March for a variant of Landau-Kleffner syndrome. He started at 30 mg per day and we are now down to 3 mg/day tapering off. I was very nervous and downright scared of giving him this medicine in the beginning. I remember sobbing the day I gave him his first dose because I was afraid of the potential serious side effects. However, with careful monitoring (daily blood pressure, monthly pediatrician follow ups, monthly neurophysiologist follow ups, urine glucose monitoring, etc the list goes on!) my son did well. The major thing you need to be careful of is to not let your son gain a lot of weight because that is when the side effects will kick in. My son only gained a total of 3.5 pounds (he is also not a great eater to begin with). Some kids will develop a voracious appetite which will make it hard for Mom and DAd to play food police but it is really important that you keep tight reigns on the weight gain. My son also developed what they call " moon face " --the telltale bloated face that steroid users get. For him, he looked like he had his baby face back. He also developed some body hair, on his back especially but that will go away as you taper and since your course is only 6 weeks, it probably would not be an issue. Another issue is that the Prednisone, at least our prescription, is mixed in a super sweet solution to make it taste " good " because otherwise, it is horribly bitter I guess. So, in terms of SCD, unless there is an alternative, it would not be legal. In our case, the prednisone had to take precedence and he is almost all done with it so my son will become more SCD legal in a short time. Sorry this is so long. I would say do not be afraid of the 6 week term. Watch closely for any adverse reactions. If you want to email me directly, feel free. Good luck! Kathi > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 Tricia, I have taken Prednisone for 8 months and then another 10 1/2 years, my sister for 28 years (autoimmune disease). Yes, it is a " hard core " medicine. My understanding is that it has a similar effect on the gut as antibiotics, which has borne out in my experience. I don't know if you are far enough on the diet to be doing probiotics and/or yogurt, but if you are they would be very important. If he winds up being on it more long term, calcium would be important as well, because it causes osteoporosis. It is a powerful and effective drug for reducing inflammation, but it comes with an equally high price. I have found in my experience that working on my gut and diet has helped manage my illness for many years without drugs(hence being on Prednisone a considerably shorter time than my sister who chooses not to address these issues). Hope this helps. Marti > > > > Tricia, > > > > What is the prednisone for? What's the dosage and what is the rate > of weaning? I see he has ASD but does he have a confirmed IBD > diagnoses? Six weeks is really not all that long on prednisone. The > danger is weaning too fast if his body is not ready for it but since > we are not doctor's it is very difficult to give advice about meds so > if you can answer the above questions that would help us to help > direct you. > > > > Charlene > > UC 8 years > > SCD 6 years > > > > > > > > Hello, > > > > Does anyone have experience with Prednisone? Our GI just > prescribed a 6 > > week round for our son. It looks pretty hardcore. We've been SCD > for a > > month. any information is appreciated. > > > > Tricia S. > > Mom to Aidan the A Train, ASD (for now) > > SCD 1 month > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2007 Report Share Posted January 26, 2007 > > Tricia, > > I have taken Prednisone for 8 months and then another 10 1/2 years, > my sister for 28 years (autoimmune disease). Yes, it is a " hard > core " medicine. My understanding is that it has a similar effect on > the gut as antibiotics, which has borne out in my experience. I > don't know if you are far enough on the diet to be doing probiotics > and/or yogurt, but if you are they would be very important. If he > winds up being on it more long term, calcium would be important as > well, because it causes osteoporosis. It is a powerful and effective > drug for reducing inflammation, but it comes with an equally high > price. I have found in my experience that working on my gut and diet > has helped manage my illness for many years without drugs (hence being > on Prednisone a considerably shorter time than my sister who chooses > not to address these issues). > > Hope this helps. Marti, Too late for me. Seven years ago I was given Prednisone to dissolve nasal polyps. I came down with pneumonia and was given anti-biotic. Between the two meds, my immune system took the beating that resulted in celiac disease and chemical sensitivities. Previously I had no recognizable symproms of either. I actually refused the Prednisone, but the doctor said surgery was the alternative, it was only a two week diminishing dose and I was acing like a baby. One month later, I was crying like one. Carol F. SCD 7 years, celiac, MCS Quote Link to comment Share on other sites More sharing options...
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