Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 , What a sad story. I am sure she's watching you and loves you so much. This disease is so unfair. Can I ask a question without sounding morbid? I didn't even know you could take deceased people home. What it a special circumstance? You are very brave, I don't think I would have coped with it all. I dread the thought, and yes I think we all have that pushed way way back in our heads. Give Liam a great big hug, I am sure he is very handsome and special as all Liam's are (I'm biased there). (Australia) mummy to Liam 9 wocf & Eilish 6wcf birthday rememberance Clear DayHi all Well today is my little angel Lilys birthday, she would be 3 today if she were here. I had a huge wave of saddness come over me remembering what I was doing at this time, well I was about to go into labour, she was born in about 8 hours time. What a relief that was, but thats when it all went wrong, she wasnt latching on, having trouble breathing and within minutes she was taken away and the long road ahead started for us with the diagnosis of CF, Lily underwent two operations for meconium blockage and the second time she came back ventilated, ( where I am sure she got PA from) This is where she went down hill, we were called back and for 12 hours our family took turns holding our wee Lily Madison, it seemed like a big nightmare, just so unreal, these things happen to other people, not me!! We realised she was going to die and we both told her she could go, we let her go and soon after that she died in my hubbys arms with me crying over her. We took her home for 3 days, I talked with her, held her, slept with her, cryed with her, took her in the garden for a walk. All the things I should have been able to do, I know that those 3 days helped me grieve so much for my loss. Its been 3 yrs now, we have come along way in our grief, not only for Lily but for our genes, we now also have a son with CF who is very healthy I might add, and such a blessing. We wont be having any more children naturally, it is just to hard to cope, the fear is just to great that death can take our children away from this disease, I try so hard to beat that fear but it does raise its head now and then. I love my son so much, but it hurts to love him too because of my experiences, i am sure you guys understand. mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 days old now an angel watching over us xxxx I love you little girl. mummy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 in new zealand we can do that for 3 days, the Maori people do it all the time birthday rememberance > > > Clear DayHi all > Well today is my little angel Lilys birthday, she would be 3 today if > she were here. I had a huge wave of saddness come over me remembering > what I was doing at this time, well I was about to go into labour, she > was born in about 8 hours time. What a relief that was, but thats when > it all went wrong, she wasnt latching on, having trouble breathing and > within minutes she was taken away and the long road ahead started for us > with the diagnosis of CF, Lily underwent two operations for meconium > blockage and the second time she came back ventilated, ( where I am sure > she got PA from) This is where she went down hill, we were called back > and for 12 hours our family took turns holding our wee Lily Madison, it > seemed like a big nightmare, just so unreal, these things happen to > other people, not me!! We realised she was going to die and we both told > her she could go, we let her go and soon after that she died in my > hubbys arms with me crying over her. > We took her home for 3 days, I talked with her, held her, slept with > her, cryed with her, took her in the garden for a walk. All the things > I should have been able to do, I know that those 3 days helped me grieve > so much for my loss. > Its been 3 yrs now, we have come along way in our grief, not only for > Lily but for our genes, we now also have a son with CF who is very > healthy I might add, and such a blessing. We wont be having any more > children naturally, it is just to hard to cope, the fear is just to > great that death can take our children away from this disease, I try so > hard to beat that fear but it does raise its head now and then. > I love my son so much, but it hurts to love him too because of my > experiences, i am sure you guys understand. > > mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 > days old now an angel watching over us > xxxx I love you little girl. > mummy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 I don't think they let us do that here in the US, do they? birthday rememberance > > > Clear DayHi all > Well today is my little angel Lilys birthday, she would be 3 today if > she were here. I had a huge wave of saddness come over me remembering > what I was doing at this time, well I was about to go into labour, she > was born in about 8 hours time. What a relief that was, but thats when > it all went wrong, she wasnt latching on, having trouble breathing and > within minutes she was taken away and the long road ahead started for us > with the diagnosis of CF, Lily underwent two operations for meconium > blockage and the second time she came back ventilated, ( where I am sure > she got PA from) This is where she went down hill, we were called back > and for 12 hours our family took turns holding our wee Lily Madison, it > seemed like a big nightmare, just so unreal, these things happen to > other people, not me!! We realised she was going to die and we both told > her she could go, we let her go and soon after that she died in my > hubbys arms with me crying over her. > We took her home for 3 days, I talked with her, held her, slept with > her, cryed with her, took her in the garden for a walk. All the things > I should have been able to do, I know that those 3 days helped me grieve > so much for my loss. > Its been 3 yrs now, we have come along way in our grief, not only for > Lily but for our genes, we now also have a son with CF who is very > healthy I might add, and such a blessing. We wont be having any more > children naturally, it is just to hard to cope, the fear is just to > great that death can take our children away from this disease, I try so > hard to beat that fear but it does raise its head now and then. > I love my son so much, but it hurts to love him too because of my > experiences, i am sure you guys understand. > > mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 > days old now an angel watching over us > xxxx I love you little girl. > mummy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 , In the USA they do not allow the body to be taken home any more. Health department or something stopped it many years ago. I remember in the past when relatives passed away and the body was brought home to lay in state. It does seem this was a good way to mourn and honor them before the funeral. Same general idea and purpose as holding a wake. Now it's only a few hours at the funeral home and they are gone. They don't let the family stay all night at the funeral home any more like they used to, either. I can see where was able to say goodbye to Lily by having her at home for a short time. I do not know if I could do that. It is a comforting thought to think of little Lily playing with Rodney now. He can take her for a ride in his go cart! Along with Tyler and Dale Earnhart and many others that have been removed from our lives. They will all be missed for many, many years. Everybody tries to keep their kids or themselves as healthy as possible for as long as possible so we can enjoy their company for as long as possible. did not get the chance to do that with Lily. I guess there must have been a very special program going and a new little voice was needed. Aunt B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2004 Report Share Posted February 3, 2004 No they do not.. L & H, GRAMBEV Re: birthday remembrance I don't think they let us do that here in the US, do they? birthday rememberance > > > Clear DayHi all > Well today is my little angel Lilys birthday, she would be 3 today if > she were here. I had a huge wave of saddness come over me remembering > what I was doing at this time, well I was about to go into labour, she > was born in about 8 hours time. What a relief that was, but thats when > it all went wrong, she wasnt latching on, having trouble breathing and > within minutes she was taken away and the long road ahead started for us > with the diagnosis of CF, Lily underwent two operations for meconium > blockage and the second time she came back ventilated, ( where I am sure > she got PA from) This is where she went down hill, we were called back > and for 12 hours our family took turns holding our wee Lily Madison, it > seemed like a big nightmare, just so unreal, these things happen to > other people, not me!! We realised she was going to die and we both told > her she could go, we let her go and soon after that she died in my > hubbys arms with me crying over her. > We took her home for 3 days, I talked with her, held her, slept with > her, cryed with her, took her in the garden for a walk. All the things > I should have been able to do, I know that those 3 days helped me grieve > so much for my loss. > Its been 3 yrs now, we have come along way in our grief, not only for > Lily but for our genes, we now also have a son with CF who is very > healthy I might add, and such a blessing. We wont be having any more > children naturally, it is just to hard to cope, the fear is just to > great that death can take our children away from this disease, I try so > hard to beat that fear but it does raise its head now and then. > I love my son so much, but it hurts to love him too because of my > experiences, i am sure you guys understand. > > mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 > days old now an angel watching over us > xxxx I love you little girl. > mummy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2004 Report Share Posted February 4, 2004 I'll bet not. We tend to be " up tight " here in the USA. Gale > I don't think they let us do that here in the US, do they? > > birthday rememberance > > > > > > Clear DayHi all > > Well today is my little angel Lilys birthday, she would be 3 today if > > she were here. I had a huge wave of saddness come over me remembering > > what I was doing at this time, well I was about to go into labour, she > > was born in about 8 hours time. What a relief that was, but thats when > > it all went wrong, she wasnt latching on, having trouble breathing and > > within minutes she was taken away and the long road ahead started for us > > with the diagnosis of CF, Lily underwent two operations for meconium > > blockage and the second time she came back ventilated, ( where I am sure > > she got PA from) This is where she went down hill, we were called back > > and for 12 hours our family took turns holding our wee Lily Madison, it > > seemed like a big nightmare, just so unreal, these things happen to > > other people, not me!! We realised she was going to die and we both told > > her she could go, we let her go and soon after that she died in my > > hubbys arms with me crying over her. > > We took her home for 3 days, I talked with her, held her, slept with > > her, cryed with her, took her in the garden for a walk. All the things > > I should have been able to do, I know that those 3 days helped me grieve > > so much for my loss. > > Its been 3 yrs now, we have come along way in our grief, not only for > > Lily but for our genes, we now also have a son with CF who is very > > healthy I might add, and such a blessing. We wont be having any more > > children naturally, it is just to hard to cope, the fear is just to > > great that death can take our children away from this disease, I try so > > hard to beat that fear but it does raise its head now and then. > > I love my son so much, but it hurts to love him too because of my > > experiences, i am sure you guys understand. > > > > mum to 2 babies Liam 17months wcf (my pride and joy) and Lily 8 > > days old now an angel watching over us > > xxxx I love you little girl. > > mummy > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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