Re: Interesting Article on SCD

[Guest guest]

OK. This article is irritating. It is not accurate, and that's annoying. SCD

is not a low carbohydrate diet. It's a specific carbohydrate diet. Have they

not seen the name of the diet? Concern about enough calories? Are they

kidding? There's no restriction on how much one can eat on SCD. Not to mention

that you can get plenty of calories from meats, cheese, and other foods.

Please, give them a multivitamin supplement to make sure they get their

nutrients? Yeah, then they can just make sure they get enough calories from

their Super Value meal at Mcs. Who's the parent, and who's the child

here. Make sure that the child is in agreement? Oh, brother! That's why

children are so unruly and poorly behaved today. We're too worried about making

sure that everything is OK with them, it doesn't hurt their feelings or make

them feel different than others, or whatever. The only thing I can't comment on

is the mentioning of not being able to get any short chain acids if you

eliminate grains from your diet, and your body really needing that for cells to

be working at their optimum. I suspect that's not quite accurately written

either though. I hate when SCD, ASD, or other stuff like that isn't properly

represented.

Meleah

Interesting Article on SCD

http://www.ccfa.org/about/news/scd

-Dena

---------------------------------

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[Guest guest]

>

> OK. This article is irritating. It is not accurate, and that's annoying.

SCD is not a low

carbohydrate diet. It's a specific carbohydrate diet.

I contacted them and the author twice to protest and got no reply. I alerted

Elaine's

daughter as well.

Carol F.

SCD 7 years, celiac

[Guest guest]

How 'bout sending them an email with your comment, before this newsletter is

published?

I was also very upset about this article. It seems like they have to write

something about SCD since people ask them about it, but they're just trying to

brush it away with non-sense. All the doctors want to know about is: Prescribing

Medication - something that's " easy " , and supports the hospitals. In fact, I

heard that one of the major hospitals in NYC gets the most of their income from

remicade.

-Dena

bin wrote:

OK. This article is irritating. It is not accurate, and that's

annoying. SCD is not a low carbohydrate diet. It's a specific carbohydrate diet.

Have they not seen the name of the diet? Concern about enough calories? Are they

kidding? There's no restriction on how much one can eat on SCD. Not to mention

that you can get plenty of calories from meats, cheese, and other foods. Please,

give them a multivitamin supplement to make sure they get their nutrients? Yeah,

then they can just make sure they get enough calories from their Super Value

meal at Mcs. Who's the parent, and who's the child here. Make sure that

the child is in agreement? Oh, brother! That's why children are so unruly and

poorly behaved today. We're too worried about making sure that everything is OK

with them, it doesn't hurt their feelings or make them feel different than

others, or whatever. The only thing I can't comment on is the mentioning of not

being able to get any short chain acids if

you eliminate grains from your diet, and your body really needing that for

cells to be working at their optimum. I suspect that's not quite accurately

written either though. I hate when SCD, ASD, or other stuff like that isn't

properly represented.

Meleah

Interesting Article on SCD

http://www.ccfa.org/about/news/scd

-Dena

---------------------------------

No need to miss a message. Get email on-the-go

with Yahoo! Mail for Mobile. Get started.

[Guest guest]

>

> http://www.ccfa.org/about/news/scd

>

>

> -Dena

>

What is " interesting " about is is that article contains misinformation

... " interresting " is not

hardly the description I would apply, but then I am very defensive of SCD.

It isn't enough to have one's name mentioned if the context is wrong and the

protocols

perverted!

It's typical of the negative attention we have historically had from that

organization

although Jodi and (Grain-Free Gourmet authors) )were invited to make a

presentation to them on the cooking aspect.

One of Elaine's dying wishes was for someone to get PROPER recognition of SCD

from

them.

Carol F.

SCD 7 years, celiac

[Guest guest]

>

> How 'bout sending them an email with your comment, before this newsletter is

published?

> I was also very upset about this article. It seems like they have to write

something

about SCD since people ask them about it, but they're just trying to brush it

away with

non-sense. All the doctors want to know about is: Prescribing Medication -

something

that's " easy " , and supports the hospitals. In fact, I heard that one of the

major hospitals in

NYC gets the most of their income from remicade.

> Sent: Wednesday, January 24, 2007 12:33 PM

> Subject: Interesting Article on SCD

>

> http://www.ccfa.org/about/news/scd

They will not respond.

Carol F.

SCD 7 years, celiac

[Guest guest]

Sure, I'll contact them...or attempt to, and I will be a bit more diplomatic

with my comments about their incorrect SCD info.

Meleah

Interesting Article on SCD

http://www.ccfa.org/about/news/scd

-Dena

---------------------------------

No need to miss a message. Get email on-the-go

with Yahoo! Mail for Mobile. Get started.

[Guest guest]

>

> Sure, I'll contact them...or attempt to, and I will be a bit more diplomatic

with my

comments about their incorrect SCD info.

> Meleah

>

> Re: Interesting Article on SCD

>

>

> How 'bout sending them an email with your comment, before this newsletter is

published?

>

It was to have appeared last November.

Here is what is on the website all the time:

Is there a special diet for people with IBD?

There is no one single diet or eating plan that will do the trick for everyone

with IBD.

Dietary recommendations must be individualized. They should be tailored just for

you --

depending on which disease you have and what part of your intestine is affected.

Furthermore, these diseases are not static; they change over time, and eating

patterns

should reflect those changes. The key point is to strive for a well-balanced,

healthy diet.

Healthy eating habits, of course, are desirable for everyone but they're

especially

important for people with IBD.

Often, patients have questions regarding The Specific Carbohydrate Diet ™ (SCD),

popularized by Elaine Gottschall, M.S., author of Breaking the Vicious Cycle. At

this time,

the SCD is supported only by patient testimonials, not by systematic studies.

With diseases

like ulcerative colitis and Crohn's disease, the only way to see if any

treatment has

widespread value is by appropriate, rigorous testing.The diet itself is not

particularly

unbalanced, but many patients find it particularly onerous to maintain.

Decreasing poorly

digestible carbohydrates may decrease symptoms of gas, bloat, cramps, and

diarrhea in

patients with IBD, but that is not the same thing as decreasing the

inflammation, or

affecting the disease process. Unlike the gluten-free diet for celiac sprue,

which has a

well-researched basis, and well-demonstrated track record for affecting the

underlying

mechanisms at work in the disease process, the SCD does not. Bottom line: it may

be

worth a try (there are plenty of other diets being touted in the marketplace),

but do not

abandon your conventional treatment, and keep in touch with your doctor.

Carol F.

SCD 7 years, celiac

[Guest guest]

Carol, why don't you call them over the phone? I just tried their 800 number,

and somebody answered. Phone:

carolfrilegh wrote:

>

> OK. This article is irritating. It is not accurate, and that's annoying. SCD

is not a low

carbohydrate diet. It's a specific carbohydrate diet.

I contacted them and the author twice to protest and got no reply. I alerted

Elaine's

daughter as well.

Carol F.

SCD 7 years, celiac

---------------------------------

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[Guest guest]

>

> Carol, why don't you call them over the phone? I just tried their 800 number,

and

somebody answered. Phone:

They know very well what they are doing. I do not have authority to enforce

legal

compliance in articles about SCD. It is not appropriate for me to phone. Such

matters are

ususally settled in writing or in person, not on the telephone. If the CCFA does

not

endorse SCD due to a lack of formal research results, it hasn't discouraged all

the people

who have benefiited by following it.

Carol F.

SCD 7 years, celiac

[Guest guest]

>Here is my email to the ccfa after reading their article linked

here:

> http://www.ccfa.org/about/news/scd

Wow….you guys are morons. After reading this article I am even more

convinced of the " conspiracy " that exists between the pharmaceutical

companies and your agency. As you may have guessed I am on the SCD

diet. I have been on the diet for 6 years now. Might I also add

that, before the diet, I was on every prescription medicine you can

think of. I was also months away from having my intestines

removed. However, I am now pain and med free. Just to think I

would have had my intestines removed at the age of 20. Is that sad

or what. What's even more disturbing is that I may not have tried

the diet if I had seen this article all those years ago. I don't

understand why you would write an article, which by the way leaves

out critical information, which may actually deter patients from

trying the diet. It would have been more responsible of you to not

write anything. Moreover, I find it detestable that you even mention

possible harmful effects of the diet, which also is completely

unfounded, while doctors freely prescribe prednisone. You should

first get your facts straight, second get out of bed with the drug

companies, and lastly close up shop. After all, with Crohn's

disease occurrences climbing at epidemic rates, are you really doing

any good.

Oh, just because you're able to quote some doctors who simply

regurgitate what they learned in med school does not mean that you

have any scientific foundation of the claims made in the

article….Morons.

[Guest guest]

Wow. All I can say is.....

BRAVO! That was great!

Patti

Re: Interesting Article on SCD

>Here is my email to the ccfa after reading their article linked

here:

> http://www.ccfa.org/about/news/scd

Wow..you guys are morons. After reading this article I am even more

convinced of the " conspiracy " that exists between the pharmaceutical

companies and your agency.

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[Guest guest]

Well put. I applaud your reply.

Re: Interesting Article on SCD

>Here is my email to the ccfa after reading their article linked

here:

> http://www.ccfa. org/about/ news/scd

Wow….you guys are morons. After reading this article I am even more

convinced of the " conspiracy " that exists between the pharmaceutical

companies and your agency. As you may have guessed I am on the SCD

diet.

<<clipped for length by moderator>>

[Guest guest]

>

>

> >Here is my email to the ccfa after reading their article linked

> here:

>

> > http://www.ccfa.org/about/news/scd

>

> Wow….you guys are morons. After reading this article I am even more

> convinced of the " conspiracy " that exists between the pharmaceutical

> companies and your agency. As you may have guessed I am on the SCD

> diet. I have been on the diet for 6 years now. Might I also add

> that, before the diet, I was on every prescription medicine you can

> think of. I was also months away from having my intestines

> removed. However, I am now pain and med free. Just to think I

> would have had my intestines removed at the age of 20. Is that sad

> or what. What's even more disturbing is that I may not have tried

> the diet if I had seen this article all those years ago. I don't

> understand why you would write an article, which by the way leaves

> out critical information, which may actually deter patients from

> trying the diet. It would have been more responsible of you to not

> write anything. Moreover, I find it detestable that you even mention

> possible harmful effects of the diet, which also is completely

> unfounded, while doctors freely prescribe prednisone. You should

> first get your facts straight, second get out of bed with the drug

> companies, and lastly close up shop. After all, with Crohn's

> disease occurrences climbing at epidemic rates, are you really doing

> any good.

>

> Oh, just because you're able to quote some doctors who simply

> regurgitate what they learned in med school does not mean that you

> have any scientific foundation of the claims made in the

> article….Morons.

>

Wow woman, you are defintiely " sugar free. "

I don't think you will move these people. We have been trying for so long.

Those of us who know the value of SCD must keep spreading the news and pointing

out

the great results we have had.

I vow the day will come, and hopefully in my lifetime, when medical research

validates in

language that maninstream medical communities will accept that SCD is a safe and

effective dietary intervation for gastric diseases and autism.

Carol F.

SCD 7 years, celiac

P.S. In Toronto evry year, M & M Meat Shops, whose owner is afflicted. holds a

benefit picnic

for Crohns and Colitis. They serve hot dogs on buns, fries and soda pop.

[Guest guest]

>

> Wow. All I can say is.....

>

> BRAVO! That was great!

>

> Patti

>

> Re: Interesting Article on SCD

>

>

>

> >Here is my email to the ccfa after reading their article linked

> here:

>

> > http://www.ccfa.org/about/news/scd

>

> Wow..you guys are morons. After reading this article I am even more

> convinced of the " conspiracy " that exists between the pharmaceutical

> companies and your agency.

You can sure tell you are off sugar LOL! Go get'em Tiger!

Carol F.

SCD 7 years, celiac

[Guest guest]

Meleah & Others,

One of the things which must be realized about the CCFA is that they are,

for the most part, anti-SCD. They didn't even acknowledge it existed until

after it was written up in that rather conservative publication, THE WALL

STREET JOURNAL.

Why could an organization which claims to be for helping people with

Crohn's and Colitis be anti-SCD?

Simple: they get a tidy amount of their funding from the pharmaceutical

firms which make the various drugs the doctors prescribe for those of us

with gut issues. Firms which are making not so small fortunes off our pain

and misery.

Food isn't patentable.

They can't make money off our eating healthy food the way we were meant to.

So they claim it's a difficult diet for people to manage, or imply that

eating the food our bodies were meant to digest is somehow wrong.

Kind of like the the " is it soup yet? " commercials, where it's implied that

modern people aren't able to make real soup from real ingredients, but must

depend on the manufacturers for their processed fake grunge added to water.

CCFA could be a benefit to many thousands. Unfortunately, they are unlikely

to jeopardize their funding.

-- Marilyn (New Orleans, Louisiana, USA)

Undiagnosed IBS 25 Years, SCD Five Years

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Anybody heard back from them? (I shouldn't have such high hopes, huh?)

-Dena

dena berko wrote:

http://www.ccfa.org/about/news/scd

-Dena

---------------------------------

No need to miss a message. Get email on-the-go

with Yahoo! Mail for Mobile. Get started.

[Guest guest]

High hopes,

High hopes

High in the sky apple pie hopes

I doubt that they will respond Dena. I wrote them several times, minths ago and

the

author, Debra Gordon as well. My emails were polite and factual. I never

received a

response.

Carol F.

SCD 7 years, celiac