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This note is to the person who was wondering about the onset of ear

inflammation. I'm one of those who did not wake up one morning to find my ear

swollen and hot---mine just slowly snuck up on me until it got bad. What I did

get at first was eye inflammation that would come and go for about a year or

more and I just thought I was low on vitamins so would take some and in a few

days it would clear up. The ear just started slowly and then progressively got

worse. The internist I was going to just gave me some steroid cream to put on

it. My ophthalmalogist was the one who picked it up and hit the ceiling and

called the internist and I'm sure he gave him a large chunk of his mind!! He

insisted that I be put on 60mg pred immediately--that very afternoon! Shortly

after that I went back up to Seattle and saw my old internist at Virginia Mason

who knew immediately what it was and took over the supervision of my care. By

then my ear had really become a classic example. At that time I was dividing my

time pretty much between Lake Tahoe and Seattle. I'm just really grateful to

that eye doctor.

: I think to some degree it is always there. At times RP looms large

on the horizon and then at times it does fade into the background and no longer

seems to be the controlling interest in life. I've had RP for eight years now

and can say that I have been all over the map with it. So, just hang in there,

my dear. This beast can be beaten back into its' cage. It won't stay there all

the time, but there really is a future with it in control much of the time.

Now I have a question. Does anyone find that taking MTX hits a little harder

the longer you take it? It didn't bother me too much at first, but the last two

or three times it is making me a little tireder and a little more nauseated.

Love to all, Dagny

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