Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Dear Shelley, Your message hurt my heart. I can think of nothing that in any way could ease the time you're going thru, but I just want you to know that you're in my heart and on my mind and I will be putting all my best energy toward you and yours. All, that is, except for what must go to those crossing over this week. Hoping things turn around for you and one day you, too, will be a post-op. Good luck to your daughter, too. My best, PhillyJude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 I hope all goes well, Shelley. You will be in my prayers. Ruqayya in Miami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Oh, Shelly! So sorry it did not work out for you this time - but thank God Dr. R. is careful. See your docs and get this worked out so you can go back and have you surgery. I am a firm believer that things happen for a reason. Something terrible could have happened to you if you had gone through with it. I can only imagine the disappointment you must be feeling. We are all feeling it with you!! Good luck! Margaret in St. Louis --- Tim & Shelly wrote: > > Hello all, > > I have mulled over whether I should post my weeks > events but I finally decided that it might be > relevant to someone. My name is AKA > Shelly in Jax Fla. We left for clinic and surgery > last Monday. By that time I had been off my > plaquinil and celebrex for 9 days. I had not been > feeling well for 2 days and I was pretty sure it > would get worse and necessitate canceling the > surgery, which it did. The clinic was great and I > got to ask loads of questions etc. I was the first > one called back to speak with Dr R. I told him of > the flare up I was having and how it started just > one week after discontinuing my meds. This concerned > him and as I expected we did not proceed with > surgery on Friday. I had to begin my meds the day > before clinic because of the high fever and intense > pain. Today (Saturday) I am finally feeling normal > > I have had in the past pericarditis, which is a > build up of fluid surrounding the heart. It is very > painful to breathe, hiccup or cough. Fevers and a > general flu feeling accompanied it. I also have, as > best my rheumatologist can determine, inflammatory > arthritis. This latest episode felt like I had > another bout of pericarditis. > > Dr R wants me top meet with my docs and try to > determine what I was having and how it can be > controlled. Prior to April I had been on prednisone > for 4 years as well as other meds. Dr R told me > that prednisone can affect our tissues and healing > for months and even years. This also concerns him. > So, I will meet with my docs and maybe even go to > MAYO here in Jax to be reevaluated to find the best > approach. Meanwhile my daughter will be > having her surgery in December. > > Shelly in Jax Fla > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 SHelly, Listen Sweetie, aren't we lucky to have such a great doc.? At least he did't plunge along collecting his money, and giving you something your body couldn't handle right now? But, on the other hand, I am sorry you had trouble also,and lets hope them great doctors at Mayo's will figure it all out, so you can be dancing with the doctor real soon. I can only pray for you, and also pray that if anything like that happens to me, it is handled in the same way, found out before surgery, and not after. Sincerely, Trudy Re: what a week Oh, Shelly! So sorry it did not work out for you this time - but thank God Dr. R. is careful. See your docs and get this worked out so you can go back and have you surgery. I am a firm believer that things happen for a reason. Something terrible could have happened to you if you had gone through with it. I can only imagine the disappointment you must be feeling. We are all feeling it with you!! Good luck! Margaret in St. Louis --- Tim & Shelly wrote: > > Hello all, > > I have mulled over whether I should post my weeks > events but I finally decided that it might be > relevant to someone. My name is AKA > Shelly in Jax Fla. We left for clinic and surgery > last Monday. By that time I had been off my > plaquinil and celebrex for 9 days. I had not been > feeling well for 2 days and I was pretty sure it > would get worse and necessitate canceling the > surgery, which it did. The clinic was great and I > got to ask loads of questions etc. I was the first > one called back to speak with Dr R. I told him of > the flare up I was having and how it started just > one week after discontinuing my meds. This concerned > him and as I expected we did not proceed with > surgery on Friday. I had to begin my meds the day > before clinic because of the high fever and intense > pain. Today (Saturday) I am finally feeling normal > > I have had in the past pericarditis, which is a > build up of fluid surrounding the heart. It is very > painful to breathe, hiccup or cough. Fevers and a > general flu feeling accompanied it. I also have, as > best my rheumatologist can determine, inflammatory > arthritis. This latest episode felt like I had > another bout of pericarditis. > > Dr R wants me top meet with my docs and try to > determine what I was having and how it can be > controlled. Prior to April I had been on prednisone > for 4 years as well as other meds. Dr R told me > that prednisone can affect our tissues and healing > for months and even years. This also concerns him. > So, I will meet with my docs and maybe even go to > MAYO here in Jax to be reevaluated to find the best > approach. Meanwhile my daughter will be > having her surgery in December. > > Shelly in Jax Fla > > > > [Non-text portions of this message have been > removed] > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Hi Shelly, Does your daughter have a date for dec yet? I am planning on dec 28 or 29th....anyone else out there planning for this times. Really wanted to be on the Trude and Jude show but it just aint gonna happen....oh well.... Robin Virginia At 12:42 PM 10/21/00 -0400, you wrote: > >Hello all, > >I have mulled over whether I should post my weeks events but I finally decided that it might be relevant to someone. My name is AKA Shelly in Jax Fla. We left for clinic and surgery last Monday. By that time I had been off my plaquinil and celebrex for 9 days. I had not been feeling well for 2 days and I was pretty sure it would get worse and necessitate canceling the surgery, which it did. The clinic was great and I got to ask loads of questions etc. I was the first one called back to speak with Dr R. I told him of the flare up I was having and how it started just one week after discontinuing my meds. This concerned him and as I expected we did not proceed with surgery on Friday. I had to begin my meds the day before clinic because of the high fever and intense pain. Today (Saturday) I am finally feeling normal > > I have had in the past pericarditis, which is a build up of fluid surrounding the heart. It is very painful to breathe, hiccup or cough. Fevers and a general flu feeling accompanied it. I also have, as best my rheumatologist can determine, inflammatory arthritis. This latest episode felt like I had another bout of pericarditis. > > Dr R wants me top meet with my docs and try to determine what I was having and how it can be controlled. Prior to April I had been on prednisone for 4 years as well as other meds. Dr R told me that prednisone can affect our tissues and healing for months and even years. This also concerns him. So, I will meet with my docs and maybe even go to MAYO here in Jax to be reevaluated to find the best approach. Meanwhile my daughter will be having her surgery in December. > > Shelly in Jax Fla > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 Thanx Robin for wanting to be with us. But we aint too sure there will be aTrude and Jude show. . . We are going to tape it, if there is,and send out copies to all our friends. ($25 a piece) lol lol Trude Re: what a week Hi Shelly, Does your daughter have a date for dec yet? I am planning on dec 28 or 29th....anyone else out there planning for this times. Really wanted to be on the Trude and Jude show but it just aint gonna happen....oh well.... Robin Virginia At 12:42 PM 10/21/00 -0400, you wrote: > >Hello all, > >I have mulled over whether I should post my weeks events but I finally decided that it might be relevant to someone. My name is AKA Shelly in Jax Fla. We left for clinic and surgery last Monday. By that time I had been off my plaquinil and celebrex for 9 days. I had not been feeling well for 2 days and I was pretty sure it would get worse and necessitate canceling the surgery, which it did. The clinic was great and I got to ask loads of questions etc. I was the first one called back to speak with Dr R. I told him of the flare up I was having and how it started just one week after discontinuing my meds. This concerned him and as I expected we did not proceed with surgery on Friday. I had to begin my meds the day before clinic because of the high fever and intense pain. Today (Saturday) I am finally feeling normal > > I have had in the past pericarditis, which is a build up of fluid surrounding the heart. It is very painful to breathe, hiccup or cough. Fevers and a general flu feeling accompanied it. I also have, as best my rheumatologist can determine, inflammatory arthritis. This latest episode felt like I had another bout of pericarditis. > > Dr R wants me top meet with my docs and try to determine what I was having and how it can be controlled. Prior to April I had been on prednisone for 4 years as well as other meds. Dr R told me that prednisone can affect our tissues and healing for months and even years. This also concerns him. So, I will meet with my docs and maybe even go to MAYO here in Jax to be reevaluated to find the best approach. Meanwhile my daughter will be having her surgery in December. > > Shelly in Jax Fla > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 I'm Shelly's daughter Becky. I don't have an exact date yet, but it will probably be the week before christmas. becky tallahassee florida pre-op > Hi Shelly, Does your daughter have a date for dec yet? I am planning on > dec 28 or 29th....anyone else out there planning for this times. Really > wanted to be on the Trude and Jude show but it just aint gonna happen....oh > well.... > Robin > Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 Hi Robin, I just might be able to make that date or perhaps in January. Pat Iurato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 Some tape that will be....you should take the act out on the road...LOL Robin Virginia At 12:26 AM 10/22/00 -0500, you wrote: >Thanx Robin for wanting to be with us. But we aint too sure there will be aTrude and Jude show. . . We are going to tape it, if there is,and send out copies to all our friends. ($25 a piece) lol lol >Trude > Re: what a week > > > Hi Shelly, Does your daughter have a date for dec yet? I am planning on > dec 28 or 29th....anyone else out there planning for this times. Really > wanted to be on the Trude and Jude show but it just aint gonna happen....oh > well.... > Robin > Virginia > > > At 12:42 PM 10/21/00 -0400, you wrote: > > > >Hello all, > > > >I have mulled over whether I should post my weeks events but I finally > decided that it might be relevant to someone. My name is > AKA Shelly in Jax Fla. We left for clinic and surgery last Monday. By > that time I had been off my plaquinil and celebrex for 9 days. I had not > been feeling well for 2 days and I was pretty sure it would get worse and > necessitate canceling the surgery, which it did. The clinic was great and > I got to ask loads of questions etc. I was the first one called back to > speak with Dr R. I told him of the flare up I was having and how it > started just one week after discontinuing my meds. This concerned him and > as I expected we did not proceed with surgery on Friday. I had to begin my > meds the day before clinic because of the high fever and intense pain. > Today (Saturday) I am finally feeling normal > > > > I have had in the past pericarditis, which is a build up of fluid > surrounding the heart. It is very painful to breathe, hiccup or cough. > Fevers and a general flu feeling accompanied it. I also have, as best my > rheumatologist can determine, inflammatory arthritis. This latest episode > felt like I had another bout of pericarditis. > > > > Dr R wants me top meet with my docs and try to determine what I was > having and how it can be controlled. Prior to April I had been on > prednisone for 4 years as well as other meds. Dr R told me that prednisone > can affect our tissues and healing for months and even years. This also > concerns him. So, I will meet with my docs and maybe even go to MAYO here > in Jax to be reevaluated to find the best approach. Meanwhile my daughter > will be having her surgery in December. > > > > Shelly in Jax Fla > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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