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Re: Welcome Donna

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Donna, welcome the best support group ever!! This is one special group. They have helped me more than I can ever explain. Please just keep asking all the questions you want and share your info with us. This is how we all learn. Tell us a bit about yourself.

I live in Calif with my husband. I have 3 daughters and one grandaughter. I have been dx with RP since 1998. As of now, I am on pred and Plaquenil for the RP. I am trying to taper my pred and am now at 17mg. I was at 7mg in July, but had heart surgury and had to up the pred. So, I'm looking forward to getting back down. The RP seems to be in a sleeping mode as of now and it can just stay there for as long as it wants. LOL

Please feel free to vent! We have lots of shoulders here and lot of ears to listen.

Looking forward to getting to know you better.

Sending lots of hugs

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Hi! Donna my name is Sherrie I live right in the middle of Michigan...cold.... welcome to the group. I am just learning about this RP i was told late summer I had IT. I have been married 27 years to Steve and have two kids Tonja 26, Josh 24 and my grandson Chase 4. Please ask questions I have learned more from this group in 7 weeks than all the doctors i have seen. Good luck

SHERRIE

-- Re: Welcome Donna

Donna, welcome the best support group ever!! This is one special group. They have helped me more than I can ever explain. Please just keep asking all the questions you want and share your info with us. This is how we all learn. Tell us a bit about yourself. I live in Calif with my husband. I have 3 daughters and one grandaughter. I have been dx with RP since 1998. As of now, I am on pred and Plaquenil for the RP. I am trying to taper my pred and am now at 17mg. I was at 7mg in July, but had heart surgury and had to up the pred. So, I'm looking forward to getting back down. The RP seems to be in a sleeping mode as of now and it can just stay there for as long as it wants. LOL Please feel free to vent! We have lots of shoulders here and lot of ears to listen. Looking forward to getting to know you better. Sending lots of hugs DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

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