Re: Re: [Rpolychondritis Sherrie,/ metho

[Guest guest]

Well cant start metho, first the flu, than this bad ear infection in both ears cant hear i look like hell ,having a nose thing going on too it looks like spider webs of tiny blood vessels on my nose and cheeks??? does any one khow what they are??????doc but me on augmentin 875 for ears yesterday 2 a day today fell no different. i am so sick of being sick... I feel my husband is getting distant i dont know what to do

LOVE SHERRIE

-- Re: [Rpolychondritis Sherrie,/ metho

Sherrie, YEs, you should start the metho... It will eventually help you feel better. I have been on pred for so long that the damage is starting to show up now. By taking metho, imuran or another DMARD, you can stop the progress of the RP or at least slow it down and not have to take high doses of the pred. I can sympathize with you feeling like everything is being taken away from you. The first thing they took away from me is my caffine ( not for the RP) OUCH... No more coffee, chocolate???? Well decaf is okay, but took me a long time to get use to it and I can have chocolate in small portions. YES!!! Then it was the alcohol. Now I never drank much, but every once in a while enjoyed a glass. Then the smoking.... Well, in the long run I guess it was all good for me. NOW they have me exercising. LOL Geez... what is next. It has been 10 years of no coffee, 8 years of no alcohol and a year of no smoking. Hopefully this year I will feel all the good side effects of the " No Fun" Diet. LOL Oh yes, I am also on low fat diet for cholesterol, and limited greens for the coumadin and low salt for the heart. Now they have taken away all the good foods. BOO HOO!!! I'm surviving and feeling good about it. Hang in there. YOu will be okay. I think we all hear horror stories about the metho and other drugs and we are afraid before we start. I remember Marilyn keeping it in her cabinet for ages before she started it. LOL We were both chickens. LOL Just remember your body will get use to the side effects and we are all different and maybe you won't have ANY!! Let us know. We are all here for you. Sorry this was so long. hugs

I had the flu so I haven't started it yet. MY hubby said I have to.I guess I will start it on monday in the morning?? DISCLAIMER!!WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU

[Guest guest]

Sherri, hang in there girlfriend. The antibiotic will probably take a goo 48 hours to start working. When I had the same thing, it took FOREVER. LOl Not really, but it sure seemed like it. It will kick in and you will feel better. Just rest and drink lots of liquids and rest some more.

It is so hard for spouses and family members to see us sick all the time. I think they do get distant. One because they feel helpless, two, they get scared, and three I would imagin it does get old seeing us sick. This is just my opinion. Rich is VERY supportive, but he does go through all of these stages. Just as we do. We go through guilt, depression, just want to give up, angery,... you name it.. So I would imagin the same goes for them.

I think once you are well and can get started on the metho, you will soon see a change. Just know we are hear for you. YOu rest and take care and let us know how you are.

hugs