Re: Looking for Info on IEP/Section 504 Plans

[Guest guest]

Talk to the social worker at your CF clinic AND call the CF

Foundation. They have great resources that I am using to put

together my sons IEP.

> Hello Everyone-

> I am in the beginning stages of developing an IEP plan for my son

who

> is 6 1/2.

>

> From what I understand, they are used in public schoool to cover

> things like; determining when tutors will be provided when your

child

> has a lengthy absence and excusing tardiness if they are late to

> school b/c of treatments.

>

> Does anyone have a list of things they have included?

>

> Thank you so much for your help!

>

>

[Guest guest]

Can I suggest you check the archives of this group for the above topic. Some

great e-mails were sent. Can anyone tell me if there is a way to do a

search of a certain subject in archives?

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

Hi ,

A few more popular inclusions are:

Unlimited bathroom access without requiring special

permission.

Wiping down of desks with antiseptic wipes.

Being excused from physical activity during heat

waves due to the possibility of dehydration.

Allowing water, beverages and snacks to be consumed

at his desk.

If extra breathing treatments are to be done during

school hours, breaks should be provided for this.

Some have requested air conditioning in the classroom

if it is not already available.

A tutor should be provided, should he be hospitalized

or at home with an infection that keeps him out for

a week or more.

Sometimes access to enzymes can be a problem with some

schools, so allowing him to keep enzymes with him and

self-administer them is often included. Also, if he

requires other types of meds, like prilosec or other

antacids, or any other kinds of medications, that

can be included as well.

That's all I can think of right now, but I'm sure

you'll get plenty of feedback from the veterans!

hugs,

C

Mommy to Mick and Alli, 4 yo twins wcf

--- wrote:

> Hello Everyone-

> I am in the beginning stages of developing an IEP

> plan for my son who

> is 6 1/2.

>

> From what I understand, they are used in public

> schoool to cover

> things like; determining when tutors will be

> provided when your child

> has a lengthy absence and excusing tardiness if they

> are late to

> school b/c of treatments.

>

> Does anyone have a list of things they have

> included?

>

> Thank you so much for your help!

>

>

>

>

>

>

>

[Guest guest]

Hi ,

Go to Norma Plourde's CF site. She has lots of links and info about CF, and even

a page devoted to 504 plans.

http://www3.nbnet.nb.ca/normap/cfschool.htm

Kim

> Hello Everyone-

> I am in the beginning stages of developing an IEP plan for my son who

> is 6 1/2.

>

> From what I understand, they are used in public schoool to cover

> things like; determining when tutors will be provided when your child

> has a lengthy absence and excusing tardiness if they are late to

> school b/c of treatments.

>

> Does anyone have a list of things they have included?

>

> Thank you so much for your help!

>

>

[Guest guest]

Help!!Adam is in 2nd grade and we just dismissed him from special education

( speech and voice therapy). Until today all the cf requirements (extra

snacks,drinks,rest,etc) were included under the special ed. The plan was to

place Adam under a 504 so the cf requirements would be enforceable, but the

school refused. Adam doesn't represent an educational need for a 504. He

doesn't qualify for the OHI (other health impairment) under special

education because cf is not causing an educational need.The school saids

they will follow the guidelines set by the drs, but we would like a legal

leg. Any suggestions? Does someone know the email of the attorney in Houston

who helps with cf?

W,, mom to Adam and Alec both 8 w/cf

Re: Looking for Info on IEP/Section 504 Plans

>

>

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Yes, that is BethSafain

Her phone is 1- (office)

Her email is bethsafain@...

There is another, but use this one.

She is wonderful

LOVE & HUGS< GRDMOMBEV

Re: Looking for Info on IEP/Section 504 Plans

>

>

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY be

construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

[Guest guest]

Hi ,

There seems to be a lot of confusion about public school services. In your case,

if Adam attends a public

school (any institution receiving federal funds) then he qualifies for a 504 or

" other health impaired " (OHI)

plan because of CF. But just because he has CF, doesn't mean he also needs or

qualifies for an Individualized

Educational Plan (IEP). Private or religious schools may be exempt from these

government guidelines, unless

they also receive federal funding.

People confuse IEP, OHI, and 504, lumping together in the same egg basket.

An IEP is exactly what it says: individualized instruction for any student who

has been tested and found to

have any LEARNING DISABILITIES. Period, end of definition.

Keep in mind that the learning disability *might* come from a health impairment

that causes a problem

with speech, vision, hearing, cognition, or motor skills. An example of this

might be Down's Syndrome or

Cerebral Palsy. In this case, the student might have both an OHI and an IEP.

CF, on the other hand, affects " one or more life functions " as defined by the

Americans with Disabilities Act

(ADA). It's this ADA definition that qualifies and entitles students with health

impairments under Section 504 the

Rehab Act of 1973 (hence the nickname, 504 Plan). (Even though historically, the

ADA was passed many years

after the Rehab Act of 1973).

A student with CF or any other health impairment (such as asthma, diabetes,

epilepsy, cancer, etc.) qualifies

for an OHI. It is NOT up to the school to determine the severity of the

impairment. The school cannot deny the

right to have an OHI in place simply because they think a child is too healthy

(my son's elementary school nurse

tried to pull this, saying he was too healthy, but in only one sentence from me,

she changed her mind on a dime,

while his third grade teacher and school counselor looked on with complete

agreement and smug satisfaction.

I hope this clears it up. Go back and rattle some cages if you need to. Here's

an excellent Q & A web page

hosted by the Council of Educators for Students with Disabilities:

http://www.504idea.org/504_placement.html

You can also find information at the web site for the US Department of

Education: http://www.ed.gov

Good luck,

Kim, (btw, I'm an elementary ed teacher, tutor, educational consultant, writer,

and Mom to

(age 24 who had an OHI for CF and asthma but never an IEP because despite

my genes, he's academically

brilliant) and (21 who had an OHI for asthma and later an IEP after

testing proved what I'd been telling

them since her sophomore year of high school -- she inherited her mother's math

disability!)

>

> Help!!Adam is in 2nd grade and we just dismissed him from special education

> ( speech and voice therapy). Until today all the cf requirements (extra

> snacks,drinks,rest,etc) were included under the special ed. The plan was to

> place Adam under a 504 so the cf requirements would be enforceable, but the

> school refused. Adam doesn't represent an educational need for a 504. He

> doesn't qualify for the OHI (other health impairment) under special

> education because cf is not causing an educational need.The school saids

> they will follow the guidelines set by the drs, but we would like a legal

> leg. Any suggestions? Does someone know the email of the attorney in Houston

> who helps with cf?

> W,, mom to Adam and Alec both 8 w/cf

> Re: Looking for Info on IEP/Section 504 Plans

>

>

>

> >

> >

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

>

> ------------------------------------

>

>