Re: is my acidopholis ruined?

[Guest guest]

It sounds like the typical 3 month die-off to me. My son did it and so did many

others.

is my acidopholis ruined?

Hi all

I am trying to find a link to some of G's new behavior's. In racking my brain

today, I just remembered that a couple of weeks ago I left his acadopholis out

of the refrigerator for about 20-24 hours. Would that have ruined it? I have

been giving it to him, but thought today that if it is ineffective then maybe

that is why I am seeing hand flapping(never had before), laughing for no reason

has returned, spinning, little language and he also has a cold. I am panicing

about this recent change of behavior and trying to find a link. Could the

acidopholis be the key???

thanks for any help.

becky

3yold son ASD

SCD 12 weeks

---------------------------------

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Yahoo! Travel to find your fit.

[Guest guest]

Patty,

I don't think it is die off just from talking to Becky. While her son did start

SCD in Nov., there were quite a few infractions up until the new year. So, all

of those little infractions here and there were feeding those bad pathogens,

right. She was also using Culturelle until recently which isn't SCD legal

either. I wonder about it being die off, too. But, I also just having this

weird feeling that it is due to something he's eaten. Becky, please list

everything that you've given him in the past couple of weeks.

Meleah

is my acidopholis ruined?

Hi all

I am trying to find a link to some of G's new behavior's. In racking my brain

today, I just remembered that a couple of weeks ago I left his acadopholis out

of the refrigerator for about 20-24 hours. Would that have ruined it? I have

been giving it to him, but thought today that if it is ineffective then maybe

that is why I am seeing hand flapping(never had before), laughing for no reason

has returned, spinning, little language and he also has a cold. I am panicing

about this recent change of behavior and trying to find a link. Could the

acidopholis be the key???

thanks for any help.

becky

3yold son ASD

SCD 12 weeks

---------------------------------

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Yahoo! Travel to find your fit.

[Guest guest]

Talked to kirkman's and the health food store where i get the acidopholis both

say it is ok.

Foods since Feb. 1st :

homemade chicken nuggets with spinach/greenbeans/carrots --or plain (when we

have pooh issues)

butternut fries

crispy bacon

pearsauce with zuchnni

applesauce (every 4th day)

orange pieces (1 or 2)- I know it's too soon -it was a weak moment for me - he

used a sentence to ask for it, I gave in.

Steamed pineapple - at first he seemed to digest it well, then he got

constipated for a few days then had runny mashed potato pooh 3 days later with

what looked like pieces of the pineapple in it so i droped it.

peanut butter brownies- hasn't had these in a over a week- tried to make

almond butter ones but they floped -

homemade pizza with almond flour crust, homemade sauce with tomatoes, oregeno,

basil, fresh garlic

waffles for breakfast for the past few days with almond flour

We just had another few days of no pooh, this is day 3, but he just poohed and

it was beautiful!! Although if you look close you can see what i assume to be

almond flour specks.

Any thoughts??

Becky

robin wrote:

Patty,

I don't think it is die off just from talking to Becky. While her son did start

SCD in Nov., there were quite a few infractions up until the new year. So, all

of those little infractions here and there were feeding those bad pathogens,

right. She was also using Culturelle until recently which isn't SCD legal

either. I wonder about it being die off, too. But, I also just having this weird

feeling that it is due to something he's eaten. Becky, please list everything

that you've given him in the past couple of weeks.

Meleah

is my acidopholis ruined?

Hi all

I am trying to find a link to some of G's new behavior's. In racking my brain

today, I just remembered that a couple of weeks ago I left his acadopholis out

of the refrigerator for about 20-24 hours. Would that have ruined it? I have

been giving it to him, but thought today that if it is ineffective then maybe

that is why I am seeing hand flapping(never had before), laughing for no reason

has returned, spinning, little language and he also has a cold. I am panicing

about this recent change of behavior and trying to find a link. Could the

acidopholis be the key???

thanks for any help.

becky

3yold son ASD

SCD 12 weeks

---------------------------------

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Yahoo! Travel to find your fit.

[Guest guest]

I think it is too early for the almond flour for him. Some kiddos don't do well

with almond though, and so you might try pecan flour or pecan meal. You can get

that from digestivewellness.com. It may be too soon altogether for nut flours.

Of course, you know that the peanutbutter, raw oranges, and Great Value grape

juice were not a good idea(illegals and/or difficult on his gut right now). I

think what you're seeing here is not die off, but yeast or bacteria...whatever

you want to call those trouble makers. But, I'll defer to Patty, Mimi, or the

other veterans here if they think I'm reading this wrong. Becky, I say this

lovingly. Every time you keep giving him stuff that is illegal or just too

soon, you're feeding those remaining bad bugs, causing them to multiply, and

helping them grow more resisten next time you try to kill them off. Now, some

things are an honest mistake of trial and error like the almond flour. I did

those types of things the first couple of months, too. I remember giving

iel peanutbutter, and wondering for weeks why he'd returned to crying or

screaming in his sleep. Thank goodness that Mimi finally put two and two

together for me. When I pulled the peanutbutter, the sleeping problems stopped.

But, you've got to resist giving in to things like raw fruit too soon, more

advanced foods, illegal foods, ect. because you feel bad or whatever. It's a

lot of work to do SCD, and sure your child usually misses those old foods that

all of their friends are eating. But, G will thank you one day if you stick

with this. Like I said, I say this not to be mean, make you feel bad, ect., but

because I want you to give this diet an honest try for G's sake.

Meleah

is my acidopholis ruined?

Hi all

I am trying to find a link to some of G's new behavior's. In racking my brain

today, I just remembered that a couple of weeks ago I left his acadopholis out

of the refrigerator for about 20-24 hours. Would that have ruined it? I have

been giving it to him, but thought today that if it is ineffective then maybe

that is why I am seeing hand flapping(never had before), laughing for no reason

has returned, spinning, little language and he also has a cold. I am panicing

about this recent change of behavior and trying to find a link. Could the

acidopholis be the key???

thanks for any help.

becky

3yold son ASD

SCD 12 weeks

---------------------------------

Now that's room service! Choose from over 150,000 hotels

in 45,000 destinations on Yahoo! Travel to find your fit.

[Guest guest]

So.... Becky.... I'm really interested to hear if the behavior is any better

now that he's poo-ed? Just wondering if discomfort from constipation is linked

to the behavior.

We need to try to get something going for you to alleviate that constipation!

That's really not okay.

I'm willing to put up with specks of the almond flour in the poo, if it's going

to help him be more regular. Otherwise, I might be tempted to say pull the nut

flour.

One thing I think I would definitely consider pulling out is the bacon. How

often is he eating that? I know he probably loves it, but I think it's not a

good choice, personally, unless a kid is doing really well. And I don't care

what the book says!

Yeah, the pineapple..... even cooked.... is probably too fibrous for him right

now. Kids often tend to not chew things up very well and pineapple is not easily

pureed. Have you tried papaya? Mango? Peaches? You can buy both peaches and

mango frozen, in chunks... although mangos are probably available pretty widely

right now, fresh.

Have you tried the brownies with pecan butter? What do you mean by " flopped " ,

re: the almond butter brownies? Did they burn? Or what? I just think peanut

butter is not a good choice for a kid who's not doing really well, gut-wise.

What supplements is he taking, besides the acidophilus? Any calcium?

Magnesium?

Tell me, tell me, tell me!

Patti

Re: is my acidopholis ruined?

Talked to kirkman's and the health food store where i get the acidopholis both

say it is ok.

Foods since Feb. 1st :

homemade chicken nuggets with spinach/greenbeans/carrots --or plain (when we

have pooh issues)

butternut fries

crispy bacon

pearsauce with zuchnni

applesauce (every 4th day)

orange pieces (1 or 2)- I know it's too soon -it was a weak moment for me - he

used a sentence to ask for it, I gave in.

Steamed pineapple - at first he seemed to digest it well, then he got

constipated for a few days then had runny mashed potato pooh 3 days later with

what looked like pieces of the pineapple in it so i droped it.

peanut butter brownies- hasn't had these in a over a week- tried to make

almond butter ones but they floped -

homemade pizza with almond flour crust, homemade sauce with tomatoes, oregeno,

basil, fresh garlic

waffles for breakfast for the past few days with almond flour

We just had another few days of no pooh, this is day 3, but he just poohed and

it was beautiful!! Although if you look close you can see what i assume to be

almond flour specks.

Any thoughts??

Becky

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[Guest guest]

Hi Everyone - I am new to this list and have been reading this string

and have some questions, if you all do not mind me asking...

My little guy has ASD and we have been trying to do the SCD diet

since the beginning of Jan. (New Years resolution and a Krigsman

suggestion since he was not responding to prednisone etc...) Anyway,

we could not do the intro - just went straight to SCD diet and it was

fantastic initially. By day 2 we had formed BM's for the first time

ever in his little life (except for maybe two days on the highest

doses of Prednisone) Anyway, we were coasting along and introduced

homemade goat yogurt and cut out some magnesium - still doing

great...now we hit a snag...

For the past two weeks we have not been getting those beautiful,

formed stools everyday. We are missing some days and somedays we are

back to mashed potatoes consistency ( although never liquid

again!!!!) The only change is that he started to complain about the

yogurt and a nutritionist also thought that he needed a probiotic, so

we added the one from GI Health... and giving him that everyday with

or without the yogurt. Now we are getting intense hand flapping and

stims, laughing out of the blue as well and red cheeks - slight runny

nose...Is this a regression - I remember reading that after a month

or so - some kiddos regress on the diet - If so, how long does it

last. Or, could it be the die off you mention below??? Just going

crazy with this...we were so happy initially - amazing how much joy a

formed stool can bring!!! But now we are hitting these problems --

any help you can give would be greatly appreciated...

One last thing...when should we start seeing those cognitive gains???

Thanks in advance - mara

> Patty,

> I don't think it is die off just from talking to Becky. While her

son did start SCD in Nov., there were quite a few infractions up

until the new year. So, all of those little infractions here and

there were feeding those bad pathogens, right. She was also using

Culturelle until recently which isn't SCD legal either. I wonder

about it being die off, too. But, I also just having this weird

feeling that it is due to something he's eaten. Becky, please list

everything that you've given him in the past couple of weeks.

> Meleah

> is my acidopholis ruined?

>

> Hi all

> I am trying to find a link to some of G's new behavior's. In

racking my brain today, I just remembered that a couple of weeks ago

I left his acadopholis out of the refrigerator for about 20-24 hours.

Would that have ruined it? I have been giving it to him, but thought

today that if it is ineffective then maybe that is why I am seeing

hand flapping(never had before), laughing for no reason has returned,

spinning, little language and he also has a cold. I am panicing about

this recent change of behavior and trying to find a link. Could the

acidopholis be the key???

>

> thanks for any help.

>

> becky

> 3yold son ASD

> SCD 12 weeks

>

> ---------------------------------

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Yahoo! Travel to find your fit.

>

>

[Guest guest]

Mara,

You said that you couldn't do the intro diet. Why is that? While SCD concepts

are great, you won't get the complete healing that you're looking for if you

don't give a couple of days of intro to really clear the decks in his gut. What

exactly is your son eating now? If you've recently introduced both goat yogurt

and probiotics, then you could be seeing die off. How much yogurt are you

giving him per day? You did properly make it per SCD instructions found on

pecanbread.com, right? Are you giving him a whole capsule of probiotic per day,

less, more?

Meleah

is my acidopholis ruined?

>

> Hi all

> I am trying to find a link to some of G's new behavior's. In

racking my brain today, I just remembered that a couple of weeks ago

I left his acadopholis out of the refrigerator for about 20-24 hours.

Would that have ruined it? I have been giving it to him, but thought

today that if it is ineffective then maybe that is why I am seeing

hand flapping(never had before), laughing for no reason has returned,

spinning, little language and he also has a cold. I am panicing about

this recent change of behavior and trying to find a link. Could the

acidopholis be the key???

>

> thanks for any help.

>

> becky

> 3yold son ASD

> SCD 12 weeks

>

> ---------------------------------

> Now that's room service! Choose from over 150,000 hotels

> in 45,000 destinations on Yahoo! Travel to find your fit.

>

>

[Guest guest]

Mara,

Since you didn't do the Intro Diet, your child's response won't follow what we

typically see or expect. Most parents report symptoms of die-off in the

beginning few weeks..... cranky, irritable kids.... tired, lethargic kids....

all kinds of poo changes, in terms of texture, color and frequency.... fluish

symptoms, headache.... these sorts of things.

Since you did not start the diet as recommended with Intro, it's quite possible

that you're just now seeing die-off. I would not call this " regression " ....

but temporary symptoms caused by a flood of toxins being given off by the

bacteria as they die. Most kids go through this at the beginning.... so if you

saw only positive changes from the first day (until now), that is actually very

unusual. If there was an imbalance of bad gut pathogens down there flourishing,

you WANT to see them dying off.... so you might be going a little nuts with the

symptoms right now, but this means the bad guys are croaking.... and leaving his

body! This is TEMPORARY.... though we can't say how long for any one kid.

Everyone is different. It just depends on how bad the situation was in the first

place.

Epsom salts baths can help calm him and ease discomfort. Activated charcoal

supplements can also help mop up toxins.

Can I ask why you cut out the magnesium? Was this causing problems? I usually

think of magnesium as being very good for a kid who is detoxing.... and it's

also usually calming. Is he taking a lot of other supplements? And are you

positive they are all absolutely free of illegals?

Is your son not liking the taste of the goat yogurt? Did you start him with a

very small amount and increase slowly?

It sounds like some of what you're seeing now is coinciding with the

introduction of the probiotic. Some kids are quite sensitive to probiotics....

this is not at all uncommon. For those kids, we recommend a really slow

introduction, not the full dose right from the beginning. You may want to take a

step back and start with just a tiny bit, sprinkled from the capsule into some

food, increasing very slowly as tolerated.

It's impossible for us to tell you " how long " before you'll see cognitive gains.

Again, each child is different. I think the most important thing right now is

for you to be sure you're on the right track with the diet.

Starting with intro would have been ideal.... though that is something you can

go back and do later, if necessary. Most importantly, you need to be feeding him

all peeled and cooked fruits and veggies in the beginning..... making

everything as easy to digest as possible. Have you taken a look at the chart on

www.pecanbread.com that shows the progression of beginning foods to more

advanced? The stages chart is not a strict absolute.... but a good general

guideline. It's under the " Food Preparation " tab (then scroll down).

Patti, list moderator

Re: is my acidopholis ruined?

Hi Everyone - I am new to this list and have been reading this string

and have some questions, if you all do not mind me asking...

My little guy has ASD and we have been trying to do the SCD diet

since the beginning of Jan. (New Years resolution and a Krigsman

suggestion since he was not responding to prednisone etc...) Anyway,

we could not do the intro - just went straight to SCD diet and it was

fantastic initially. By day 2 we had formed BM's for the first time

ever in his little life (except for maybe two days on the highest

doses of Prednisone) Anyway, we were coasting along and introduced

homemade goat yogurt and cut out some magnesium - still doing

great...now we hit a snag...

For the past two weeks we have not been getting those beautiful,

formed stools everyday. We are missing some days and somedays we are

back to mashed potatoes consistency ( although never liquid

again!!!!) The only change is that he started to complain about the

yogurt and a nutritionist also thought that he needed a probiotic, so

we added the one from GI Health... and giving him that everyday with

or without the yogurt. Now we are getting intense hand flapping and

stims, laughing out of the blue as well and red cheeks - slight runny

nose...Is this a regression - I remember reading that after a month

or so - some kiddos regress on the diet - If so, how long does it

last. Or, could it be the die off you mention below??? Just going

crazy with this...we were so happy initially - amazing how much joy a

formed stool can bring!!! But now we are hitting these problems --

any help you can give would be greatly appreciated...

One last thing...when should we start seeing those cognitive gains???

Thanks in advance - mara

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Connect with others.

.

[Guest guest]

Hi - I did not do the intro because I am gutless - I tried - and he

would not eat the soup or anything!!! So my first intention was to

make foods he ate that were GFCF and make them SCD - like chicken

nuggets, etc...He did well with that and it just kind of took off

from there - I made SCD BRead, jelly and cashew butter, butternut

squash fries etc...and that worked so well and the intro was so hard -

I just went along with the diet...I guess I could go back and try

again - but up till now we had had some success.--- We were giving

him about a 1/2 cup of yogurt (yes, made in accordance with the

directions on the site) and I went ahead and gave him a whole capsule

of the probiotic cause he had been on them before when he was GFCF..

Thanks for your concern - I am so appreciative..mara

In pecanbread , " robin " wrote:

>

> Mara,

> You said that you couldn't do the intro diet. Why is that? While

SCD concepts are great, you won't get the complete healing that

you're looking for if you don't give a couple of days of intro to

really clear the decks in his gut. What exactly is your son eating

now? If you've recently introduced both goat yogurt and probiotics,

then you could be seeing die off. How much yogurt are you giving him

per day? You did properly make it per SCD instructions found on

pecanbread.com, right? Are you giving him a whole capsule of

probiotic per day, less, more?

> Meleah

>

[Guest guest]

Patti - thanks so much for this response - I think I answered some of

the questions in another reply - but I will tell you about the

magnesium - it really wasn't a big deal - he was just getting too

much and we lowered his dosage - Magnesium is a great supplement -

your right - good for calming - but too much can cause or exacerbate

diarrhea and that was what we were worried about...

I have never really known what people mean by die-off - so thanks for

the description...I think that is what we are experiencing as well -

if so, I guess it is a good thing and we will just get through it --

thanks so much, Mara

>

> Mara,

>

> Since you didn't do the Intro Diet, your child's response won't

follow what we typically see or expect. Most parents report symptoms

of die-off in the beginning few weeks..... cranky, irritable

kids.... tired, lethargic kids.... all kinds of poo changes, in terms

of texture, color and frequency.... fluish symptoms, headache....

these sorts of things.

>

> Since you did not start the diet as recommended with Intro, it's

quite possible that you're just now seeing die-off. I would not call

this " regression " .... but temporary symptoms caused by a flood of

toxins being given off by the bacteria as they die. Most kids go

through this at the beginning.... so if you saw only positive

changes from the first day (until now), that is actually very

unusual. If there was an imbalance of bad gut pathogens down there

flourishing, you WANT to see them dying off.... so you might be going

a little nuts with the symptoms right now, but this means the bad

guys are croaking.... and leaving his body! This is TEMPORARY....

though we can't say how long for any one kid. Everyone is different.

It just depends on how bad the situation was in the first place.

>

> Epsom salts baths can help calm him and ease discomfort. Activated

charcoal supplements can also help mop up toxins.

>

> Can I ask why you cut out the magnesium? Was this causing

problems? I usually think of magnesium as being very good for a kid

who is detoxing.... and it's also usually calming. Is he taking a lot

of other supplements? And are you positive they are all absolutely

free of illegals?

>

[Guest guest]

Mara,

I do think it would be wise to go back to do the intro diet. We have had many

kids go on a hunger strike during intro. The record is nine days-belonging to a

little boy in South Carolina, but all kids whose parents have stuck with SCD

have come around. Remember that you can still be somewhat creative with intro.

If your child doesn't like soup, then drain the broth off. There is a great

chicken nugget recipe in our files here invented by a creative mom, and the

ingredients are items on the intro diet. It is boiled chicken that is then

cooled and pureed up in the food processer. Mix it with SCD homemade

mayo(recipe found at pecanbread.com). You mix these two ingredients, and form

into nugget shapes on a cookie sheet. Then, bake at 350 for about 30 minutes.

All the kids love them. Many children don't do well with carrots for some

reason, and so some parents omit carrots. They use butternut squash instead.

So, you could use butternut squash fries. I think that the intro is certainly

doable for a couple of days, and he will eat when he gets hungry as long as you

don't cave. Cashews are one of the starchiest of nuts, so you really should

start with another nut butter like almond, pecan, or hazelnut. If he's done

fine with the homemade yogurt and probiotic so far, then that's great. I do

really think it is important to try the intro though, and then go from there

ever so slowly with new food introductions. Also, nut flours should generally

be introduced after nut butters.

Meleah

Re: is my acidopholis ruined?

Hi - I did not do the intro because I am gutless - I tried - and he

would not eat the soup or anything!!! So my first intention was to

make foods he ate that were GFCF and make them SCD - like chicken

nuggets, etc...He did well with that and it just kind of took off

from there - I made SCD BRead, jelly and cashew butter, butternut

squash fries etc...and that worked so well and the intro was so hard -

I just went along with the diet...I guess I could go back and try

again - but up till now we had had some success.--- We were giving

him about a 1/2 cup of yogurt (yes, made in accordance with the

directions on the site) and I went ahead and gave him a whole capsule

of the probiotic cause he had been on them before when he was GFCF..

Thanks for your concern - I am so appreciative..mara

In pecanbread , " robin " wrote:

>

> Mara,

> You said that you couldn't do the intro diet. Why is that? While

SCD concepts are great, you won't get the complete healing that

you're looking for if you don't give a couple of days of intro to

really clear the decks in his gut. What exactly is your son eating

now? If you've recently introduced both goat yogurt and probiotics,

then you could be seeing die off. How much yogurt are you giving him

per day? You did properly make it per SCD instructions found on

pecanbread.com, right? Are you giving him a whole capsule of

probiotic per day, less, more?

> Meleah

>