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Re: need advice

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Sandy,

The best thing would be to take him to the doctors to get a

confirmation on what it could be wrong with him. I myself am going

to have to face up to fact that my daughter may have inherited a

genetic condition that has been passed down through my family, and

for the moment it has been making my life a misery. On top of that

the guilt and worry that she may develop it also.

If it is the GB acting up, then you will find the strength to deal

with it for your son's sake, just as you have had the strength to

deal with it for your own health's sake. They might be able to take

a different avenue with your son, if this is in fact the GB, and it

might be as simple as diet.

If it isn't his GB, then that will be excellent news, and you can

listen to what the doctor suggests it is and what he suggests your

son needs to do.

Until you find a reason for his pain, guessing is only going to

stress you out even more because the worry of what it could be won't

allow you to get past that first step towards a solution.

I would want it looked at by a doctor if I were in this situation,

simply to get my child's pain eased as the main priority for now.

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sorry for the many replies....another thing that came to mind..I

often get nerves that throb on my right side that I didn't know were

nerve pain until it was pointed out to me...that could be a

possibility, although it is a needle piercing throb.

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  • 2 years later...

Tricia,

Hang in there, you're doing great. That was a smart move, going back to intro.

Get him into the tub with epsom salts every day..... and adding a cup or so of

baking soda to that tub would not hurt either.

The Electrolyte Drink from Elaine's website www.breakingtheviciouscycle.info in

the Knowledge Base under " E " , helps with constipation. You might have to

syringe small amounts in with a medicine dropper.... as it's not the greatest

tasting stuff.... but it's helpful.

Keep up the good work.

Patti

Re: Need advice

By the way our die-off reaction was terrible and my son is still very

worn out so if any one has any advice pleae bring it on. He had bad die-

off when I started the diet incorrectly and then a big bang of die off

again with the intro.

Thanks,

Tricia S. mom to Aidan the A Train, AKA Buggy Gooser, (can't help

myself) 3 1/2 ASD (for now)

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Patti,

Thanks, I might not have gone back and restarted if it weren't for

hearing on this site to do it over and over. Any way he has been

getting epsom salts baths daily and cahrcoal there for a few days. We

made the electrolyte drink, tasted it and thought no way will he

drink that, so I gave him 1000mg of vitamin c to help get him moving

and then he had a poop about 2 hours later. (Sorry for the run on

sentence.)

Patti, I, as a newbie appreciate you always being around to answer

everyone questions. Thank you so much for all your time.

Tricia S.

>

> Tricia,

>

> Hang in there, you're doing great. That was a smart move, going

back to intro. Get him into the tub with epsom salts every day.....

and adding a cup or so of baking soda to that tub would not hurt

either.

>

> The Electrolyte Drink from Elaine's website

www.breakingtheviciouscycle.info in the Knowledge Base under " E " ,

helps with constipation. You might have to syringe small amounts in

with a medicine dropper.... as it's not the greatest tasting

stuff.... but it's helpful.

>

> Keep up the good work.

>

> Patti

>

>

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  • 2 months later...
Guest guest

Hi Liz,

You are seeing the typical symptoms of die off. The following is

happening to your son: your child has lots of gram negative bacteria.

These bacteria have a shell made of LPS, a bacterial toxin. The

bacteria are all dying at once so your son is getting a full dose of

LPS. The good news is that your son will soon be free from these

toxins and healing will happen. I strongly advise you to give him the

charcoal and lots of love.

I am so thrilled that you starting Caleb with SCD at such a young

age!! Please hang in there....you will soon have very good results.

Mimi

> Ok, I'm another rookie in need of support. I really believe in this

> diet, but it has been a rough day. Caleb (21mo) started the diet on

> April 1. We are still mainly intro, but have introduced very ripe

> banana and boiled pork.

>

> Today, he was what I would consider back the square one.....all stims

> and no Caleb. He is getting 2 epsom baths a day - one in the morning

> and one at night. He is better after them, but hyper. I know

> activated charcoal has been suggested, but he's so little, I worry

> about doing too much to his little body.

>

> On top of a frustrating day, he had a BM in the tub tonight (sorry

> for gross). He was grunting a little and then things got

> interesting. The good news is there was some firmness to it

> (considering he has been liquid), but it was full of these yellow

> globs, with redish-brown *legs*. We counted at least 13 of these

> globs. It really freaked my husband out. Is this the die-off we keep

> reading about? He also has a pretty nasty diaper rash as of today.

>

> Any support/advice at this point would really help! We're trying to

> hang in there!

>

> Liz

>

>

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Guest guest

Liz....

We're used to all kinds of " poop talk " around here... so always know you can go

ahead and share that with us. :)

<<The good news is there was some firmness to it

(considering he has been liquid), but it was full of these yellow

globs, with redish-brown *legs*. We counted at least 13 of these

globs. It really freaked my husband out. Is this the die-off we keep

reading about? He also has a pretty nasty diaper rash as of today.>>

Well, think of it this way..... there have probably been colonies of evil gut

pathogens, living in his gut, attached to the lining of his intestinal tract.

As these die, there is actual " tissue " , for lack of a better term, that those

pathogens are composed of..... parasites in a way.... that dies and needs to

pass out of his body. That's what you're seeing. It's gross and shocking.....

to imagine those were living inside him and producing their toxic waste

products.

Those " legs " could be some of the " roots " of the bacterial colonies.... that

were holding on to the gut lining. It's impossible to know for sure, though. The

good thing is..... they are OUT of his body! There may be more.... so hang in

there.

Keep in mind that the places inside his gut where those were attached will now

have raw, sensitive, tender new tissue. So, this is one reason why you

especially want to keep all foods as easy to digest as possible for some time to

come, while it heals.

The way he's feeling and behaving sound like die-off, too.... and is pretty

typical. That will be temporary.

Patti, list moderator

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