Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 OOOOH good question, Robin, I want to know too, please??? Trudy another question Hi its me with yet another question....I have already had my clinic visit. I wont see Dr. R until the day of my surgery correct? Does Dr.R write your preop prescriptions or do you get your PCP to do that?? Thanks again Robin Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hello all, Just want to say thanks for all the kind words reguarding the loss of our family Cat. I had a very hard time sleeping last night, All week long my pain has intensify to the point that I called the GI Dr. on call last night. He prescribed Bentyl. The pain that I was having is in the pit of my tummy and spamotic. My CP pain is more in the area of the GB (right side). Any idea on this or the meds? I have a diagnosis of Gastroparesis and GERD for which I take several Meds. Also on the side, I have sent several different private e-mails to a few indiviaul this week. I have not had any response. Please let me know if the messages are being recieved. I see responses to other folks from these same people. So I have to wonder if mine are even being deliver. If you all remember my computer was on the fritz for several weeks. Keep smilin. LOVE, Cyndi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Just a quick note to add... the convention is in Chicago! I take it you live there... so coming to the convention might be a good idea for you. wrote: >Hi Anita, > >The doc I saw noticed the whites of my daughters eyes have a blue tint >to them. That is something else to look for.. also a large forehead.My >docs were worried my daughter had hydrophysiliphus (SP), where fluid >collects in the skull. One side of her forehead is larger than the >other... but we had an ultrasound on her head that no extra fluid was >found. But that apperiance is another sign. Also small for gestional age >is another sign. While you were pregnant, were the doctors concerned >with the size of your son? My daughter has been diagnosed, but only from >her physical looks. I will have blood work done and other tests done in >about 3 months. I hope some of this imformation helps. >Best of luck, > .. mother to 6 months old RSS > >atwine22 wrote: > > > >>In your replies some of you said that your children were diagnosed >>despite not having assymetry or curved in pinkies. So, of course I am >>curious what were the other physical characteristics that led to a >>diagnosis of rss? I am asking because I am not sure what to look for as >>far as nathaniel is concerned. Like I said he does have the curved in >>pinkies, delayed bone age etc. but no assymetry, and I am not sure what >>else to look for. Please any advice is helpful. As a mother it is so >>hard not to know what is causing your child problems. I am being >>patient but, it's hard. Thankyou for your time and support.I am not >>sure I will be able to make a trip to the best ( Dr. Harbisson ) >>Anybody know who is the best in Chicago? That is where I live. I have >>an endo but she does not specialize in RSS. Also Happy Holidays to all, >>and happy birthday to those celebrating birthdays!!! Anita mom to >>iel 7(condition still undiagnosed)34lbs. >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 hey anita!! you are in luck, once a year in july the best comes to chicago!! you can go to the magic foundation's annual convention july 21-24 and have a free 15-20min consult with dr harbison!! plus learn tons of info on rss/sga and meet 100's of other families!!! jodie c Quote Link to comment Share on other sites More sharing options...
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