Re: MAW decision made/why do I feel guilty?

[Guest guest]

Don't feel guilty. Keep in mind that many of those kids on the

website led perfectly healthy lives until their diagnosis of cancer

or whatever awful disease they had. And many of those kids may get

better. CF doesn't go away. Cancer can go away (not always of

course). The every single day of a life illness takes an unknown

toll on a child's spirit and though a kid with CF may not look sick,

they need to be able to enjoy every day to the fullest. That is what

MAW helps us parents do.

> Well, after four months, has finally decided on what she

wants

> to wish for. She was thinking about going to Paris, but some of our

> friends who have been there told her that unless she likes to look

> at old buildings and art, there really is not much for a ten year

> old to do there. So, being an ex-travel agent I told her that if

she

> chose a cruise then she could do all the fun stuff the cruise ship

> had to offer AND still be able to go and see interesting places. In

> addition she would be able to see many different places. So her

next

> dilemma was where to go. I told her about Carnival and how fun

their

> cruises are, but she is not interested in the Caribbean or Mexico.

> She finally decided that she wants to go on a Mediterranean cruise,

> and boy is she excited. " this is it " she says " this is the one

and

> I am not changing my mind " .

> Its funny because when I talked with the MAW coordinator I

actually

> felt guilty. I feel like this is awfully extravagant and strange to

> ask for something so big. My husband is not excited at all. He says

> that " whatever wants is fine " and thats it. He does not want

> to beleive that she would ever need an organization like Make a

Wish

> and I think he feels that there are more deserving children out

> there than . I can see his point and this is probably where

> some of my guilt comes from. Also, it is hard to explain to

> why she does deserve this.She has been on the website and has seen

> the other kids that have had wishes granted. She asks me " Am I as

> bad as they are? " as she sees the kids with no hair and suffering

> from other illnesses. " No honey, you are not as bad as they

> are " . " Well then if wishes are for kids who are very ill, why do I

> get a wish? "

> With the help of my parents, our children have had a chance to

> experience some incredible opportunities; perhaps more than the

> average 10 year old, so how can I justify asking for a wish?

>

> Sorry this is so lengthy, I needed to express these feelings as

> nobody really understands.

>

>

> e, mom to ,120 months wcf and Ian 156 months no cf

[Guest guest]

I justified that our kids have a tough life. They spent a such a great

portion doing treatments, being sick and we don't know the outcome. MAW is

something we WANT them to enjoy when they are healthy! It sucks to go if they

are

ill. We cancelled one trip cause was sick than rescheduled and went

and she was still " sick " ....it sucked. The cruise was great --- a few shipmates

asked if she had SARS cause she was coughing so much - last year.....

Go, enjoy. Its not about you its for her. I explained that its for kids

with diseases with a lot of treatments, yes CF is life threatening if you don't

do treatments

Yes, I did feel guilty and my husband was indifferent but the kids were

totally totally into it!

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

n - we all respect your opinion.......hey you didn't make it to your age

being stupid!

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

I hate putting a damper on this, but food poisoning and close contact is so

common on those cruises, that I would hesitate to do it myself or go with

my child with cf----the ocean somewhere, maybe, the Caribbean?

n, wcf, mom of 3 adults, 2 carriers and one wcf--I am the Grinch!

MAW decision made/why do I feel guilty?

Well, after four months, has finally decided on what she wants

to wish for. She was thinking about going to Paris, but some of our

friends who have been there told her that unless she likes to look

at old buildings and art, there really is not much for a ten year

old to do there. So, being an ex-travel agent I told her that if she

chose a cruise then she could do all the fun stuff the cruise ship

had to offer AND still be able to go and see interesting places. In

addition she would be able to see many different places. So her next

dilemma was where to go. I told her about Carnival and how fun their

cruises are, but she is not interested in the Caribbean or Mexico.

She finally decided that she wants to go on a Mediterranean cruise,

and boy is she excited. " this is it " she says " this is the one and

I am not changing my mind " .

Its funny because when I talked with the MAW coordinator I actually

felt guilty. I feel like this is awfully extravagant and strange to

ask for something so big. My husband is not excited at all. He says

that " whatever wants is fine " and thats it. He does not want

to beleive that she would ever need an organization like Make a Wish

and I think he feels that there are more deserving children out

there than . I can see his point and this is probably where

some of my guilt comes from. Also, it is hard to explain to

why she does deserve this.She has been on the website and has seen

the other kids that have had wishes granted. She asks me " Am I as

bad as they are? " as she sees the kids with no hair and suffering

from other illnesses. " No honey, you are not as bad as they

are " . " Well then if wishes are for kids who are very ill, why do I

get a wish? "

With the help of my parents, our children have had a chance to

experience some incredible opportunities; perhaps more than the

average 10 year old, so how can I justify asking for a wish?

Sorry this is so lengthy, I needed to express these feelings as

nobody really understands.

e, mom to ,120 months wcf and Ian 156 months no cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Elias,

You seem quiet a guy! Good way to see things, and you are absolutely

right!

By the way, where are you from?

mom of a 10 wcf, Venanzio 7 nocf, Pepe 3 nocf

> I, personally, feel there is absolutely no reason to feel guilty.

While

> it's easy for us to think our kids with CF are " better off " than

kids

> with other diseases, it really stems from the fact that visually,

there

> are very few manifestations of CF. It's not like cancer or other

> life-threatening illnesses that tend to be more recognizable. MAW

is

> designed to give kids, who will likely have dramatically shortened

> lives, something that they've always wanted. Whether we like it or

not,

> kids with CF fit into that category.

>

> I'm planning on giving my daughter whatever she wants in terms of

trips,

> experiences, etc. Fortunately we have the means to provide many of

> those things ourselves, but I won't feel one pinprick of guilt if I

do

> call MAW.

>

> Also, think of it this way: Even if our kids with CF live much

longer

> than the current median age, they will still have exorbitant health

care

> costs. Insurance is covering less and less, and insurance

companies do

> everything they can to get out of paying. Costs are rising, and who

> gets the bill- we (or in the case of our grown-up CF kids) them. So

> perhaps my daughter will live to 40 or even 50 or longer. She may

have

> the financial means to send herself on trips and experience

everything

> someone without these ridiculous health care costs could. So MAW is

> perfect to help these kids experience a few things that for one

reason

> or another (lifespan, money, etc) they may not get to experience.

>

> Anyway, just my humble opinion, and I'll climb down off the

soapbox

>

> Elias, dad to Soley 1 w/CF and Uriah, 4 no CF.

>

> MAW decision made/why do I feel guilty?

>

>

> Well, after four months, has finally decided on what she

wants

> to wish for. She was thinking about going to Paris, but some of our

> friends who have been there told her that unless she likes to look

> at old buildings and art, there really is not much for a ten year

> old to do there. So, being an ex-travel agent I told her that if

she

> chose a cruise then she could do all the fun stuff the cruise ship

> had to offer AND still be able to go and see interesting places. In

> addition she would be able to see many different places. So her

next

> dilemma was where to go. I told her about Carnival and how fun

their

> cruises are, but she is not interested in the Caribbean or Mexico.

> She finally decided that she wants to go on a Mediterranean cruise,

> and boy is she excited. " this is it " she says " this is the one

and

> I am not changing my mind " .

> Its funny because when I talked with the MAW coordinator I actually

> felt guilty. I feel like this is awfully extravagant and strange to

> ask for something so big. My husband is not excited at all. He says

> that " whatever wants is fine " and thats it. He does not want

> to beleive that she would ever need an organization like Make a

Wish

> and I think he feels that there are more deserving children out

> there than . I can see his point and this is probably where

> some of my guilt comes from. Also, it is hard to explain to

> why she does deserve this.She has been on the website and has seen

> the other kids that have had wishes granted. She asks me " Am I as

> bad as they are? " as she sees the kids with no hair and suffering

> from other illnesses. " No honey, you are not as bad as they

> are " . " Well then if wishes are for kids who are very ill, why do I

> get a wish? "

> With the help of my parents, our children have had a chance to

> experience some incredible opportunities; perhaps more than the

> average 10 year old, so how can I justify asking for a wish?

>

> Sorry this is so lengthy, I needed to express these feelings as

> nobody really understands.

>

>

> e, mom to ,120 months wcf and Ian 156 months no cf

>

>

>

> -------------------------------------------

> The opinions and information exchanged on this list should IN NO

WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> TREATMENTS.

>

> ------------------------------------

>

>

>

>

> _____

>

>

[Guest guest]

We have not done MAW yet but we were sent to Disney by another group (Narberth

Run) that does things like trips or new computers or even playground type

equipment for kids with CF. did ask later why she was chosen to receive

her wish from them. I just explained that the group does nice things for kids

with CF because they have known someone with CF and they know how hard it is to

always have to do treatments and go in the hospital. We do not feel guilty that

we got that trip, because had just been through so much for the first 2

years of her life that we felt like she deserved it. We were sure thankful

though!

deserves to get her wish. You do not have to feel guilty.

mom of 5 with CF and one on the way

MAW decision made/why do I feel guilty?

Well, after four months, has finally decided on what she wants

to wish for. She was thinking about going to Paris, but some of our

friends who have been there told her that unless she likes to look

at old buildings and art, there really is not much for a ten year

old to do there. So, being an ex-travel agent I told her that if she

chose a cruise then she could do all the fun stuff the cruise ship

had to offer AND still be able to go and see interesting places. In

addition she would be able to see many different places. So her next

dilemma was where to go. I told her about Carnival and how fun their

cruises are, but she is not interested in the Caribbean or Mexico.

She finally decided that she wants to go on a Mediterranean cruise,

and boy is she excited. " this is it " she says " this is the one and

I am not changing my mind " .

Its funny because when I talked with the MAW coordinator I actually

felt guilty. I feel like this is awfully extravagant and strange to

ask for something so big. My husband is not excited at all. He says

that " whatever wants is fine " and thats it. He does not want

to beleive that she would ever need an organization like Make a Wish

and I think he feels that there are more deserving children out

there than . I can see his point and this is probably where

some of my guilt comes from. Also, it is hard to explain to

why she does deserve this.She has been on the website and has seen

the other kids that have had wishes granted. She asks me " Am I as

bad as they are? " as she sees the kids with no hair and suffering

from other illnesses. " No honey, you are not as bad as they

are " . " Well then if wishes are for kids who are very ill, why do I

get a wish? "

With the help of my parents, our children have had a chance to

experience some incredible opportunities; perhaps more than the

average 10 year old, so how can I justify asking for a wish?

Sorry this is so lengthy, I needed to express these feelings as

nobody really understands.

e, mom to ,120 months wcf and Ian 156 months no cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

Yes, I have heard wonderful things about your hospital. Didn't the

son of the owners of the Denver football team had CF? Sorry, I do

not know anything about sports or teams, total moron. But, I seem to

recall a very good article about this guy and how he past right

before a lung transplant and the wonderful things his family have

done for CF and if not mistaking, which I may be, this hospital.

It is hard for me to tell you not to worry about clinic but a was

diagnosed at almost 8 years old and thank Goodness, she is doing

really well. By the way she is grounded right now, and mad as you

know what, at me, :-(

Love to you and good vibes,

> > I, personally, feel there is absolutely no reason to feel

guilty.

> While

> > it's easy for us to think our kids with CF are " better off " than

> kids

> > with other diseases, it really stems from the fact that visually,

> there

> > are very few manifestations of CF. It's not like cancer or other

> > life-threatening illnesses that tend to be more recognizable.

MAW

> is

> > designed to give kids, who will likely have dramatically shortened

> > lives, something that they've always wanted. Whether we like it

or

> not,

> > kids with CF fit into that category.

> >

> > I'm planning on giving my daughter whatever she wants in terms of

> trips,

> > experiences, etc. Fortunately we have the means to provide many

of

> > those things ourselves, but I won't feel one pinprick of guilt if

I

> do

> > call MAW.

> >

> > Also, think of it this way: Even if our kids with CF live much

> longer

> > than the current median age, they will still have exorbitant

health

> care

> > costs. Insurance is covering less and less, and insurance

> companies do

> > everything they can to get out of paying. Costs are rising, and

who

> > gets the bill- we (or in the case of our grown-up CF kids) them.

So

> > perhaps my daughter will live to 40 or even 50 or longer. She

may

> have

> > the financial means to send herself on trips and experience

> everything

> > someone without these ridiculous health care costs could. So MAW

is

> > perfect to help these kids experience a few things that for one

> reason

> > or another (lifespan, money, etc) they may not get to experience.

> >

> > Anyway, just my humble opinion, and I'll climb down off the

> soapbox

> >

> > Elias, dad to Soley 1 w/CF and Uriah, 4 no CF.

> >

> > MAW decision made/why do I feel guilty?

> >

> >

> > Well, after four months, has finally decided on what she

> wants

> > to wish for. She was thinking about going to Paris, but some of

our

> > friends who have been there told her that unless she likes to

look

> > at old buildings and art, there really is not much for a ten year

> > old to do there. So, being an ex-travel agent I told her that if

> she

> > chose a cruise then she could do all the fun stuff the cruise

ship

> > had to offer AND still be able to go and see interesting places.

In

> > addition she would be able to see many different places. So her

> next

> > dilemma was where to go. I told her about Carnival and how fun

> their

> > cruises are, but she is not interested in the Caribbean or

Mexico.

> > She finally decided that she wants to go on a Mediterranean

cruise,

> > and boy is she excited. " this is it " she says " this is the one

> and

> > I am not changing my mind " .

> > Its funny because when I talked with the MAW coordinator I

actually

> > felt guilty. I feel like this is awfully extravagant and strange

to

> > ask for something so big. My husband is not excited at all. He

says

> > that " whatever wants is fine " and thats it. He does not

want

> > to beleive that she would ever need an organization like Make a

> Wish

> > and I think he feels that there are more deserving children out

> > there than . I can see his point and this is probably where

> > some of my guilt comes from. Also, it is hard to explain to

> > why she does deserve this.She has been on the website and has

seen

> > the other kids that have had wishes granted. She asks me " Am I

as

> > bad as they are? " as she sees the kids with no hair and suffering

> > from other illnesses. " No honey, you are not as bad as they

> > are " . " Well then if wishes are for kids who are very ill, why do

I

> > get a wish? "

> > With the help of my parents, our children have had a chance to

> > experience some incredible opportunities; perhaps more than the

> > average 10 year old, so how can I justify asking for a

wish?

> >

> > Sorry this is so lengthy, I needed to express these feelings as

> > nobody really understands.

> >

> >

> > e, mom to ,120 months wcf and Ian 156 months no cf

> >

> >

> >

> > -------------------------------------------

> > The opinions and information exchanged on this list should IN NO

> WAY

> > be construed as medical advice.

> >

> > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

> > TREATMENTS.

> >

> > ------------------------------------

> >

> >

> >

> >

> > _____

> >

> >

[Guest guest]

and the rest of her family are very deserving of a break from

the evry day grueling chore of dealing with this disease and it

effects.We took our M.A.W. trip before my son's health began to

deteriorate and im so thankful we did.Go, have a wonderful

trip....make memories to last a lifetime that you all can look back

on when times are tough; thats what we did.Bets wishes!

Patty, mom to tyler,8wcf and 2 wocf

We stayed at Give Kids The World.....the most incredible experience

ive had in my life.....well never forget the incredible time we had!

> Well, after four months, has finally decided on what she

wants

> to wish for. She was thinking about going to Paris, but some of our

> friends who have been there told her that unless she likes to look

> at old buildings and art, there really is not much for a ten year

> old to do there. So, being an ex-travel agent I told her that if

she

> chose a cruise then she could do all the fun stuff the cruise ship

> had to offer AND still be able to go and see interesting places. In

> addition she would be able to see many different places. So her

next

> dilemma was where to go. I told her about Carnival and how fun

their

> cruises are, but she is not interested in the Caribbean or Mexico.

> She finally decided that she wants to go on a Mediterranean cruise,

> and boy is she excited. " this is it " she says " this is the one

and

> I am not changing my mind " .

> Its funny because when I talked with the MAW coordinator I

actually

> felt guilty. I feel like this is awfully extravagant and strange to

> ask for something so big. My husband is not excited at all. He says

> that " whatever wants is fine " and thats it. He does not want

> to beleive that she would ever need an organization like Make a

Wish

> and I think he feels that there are more deserving children out

> there than . I can see his point and this is probably where

> some of my guilt comes from. Also, it is hard to explain to

> why she does deserve this.She has been on the website and has seen

> the other kids that have had wishes granted. She asks me " Am I as

> bad as they are? " as she sees the kids with no hair and suffering

> from other illnesses. " No honey, you are not as bad as they

> are " . " Well then if wishes are for kids who are very ill, why do I

> get a wish? "

> With the help of my parents, our children have had a chance to

> experience some incredible opportunities; perhaps more than the

> average 10 year old, so how can I justify asking for a wish?

>

> Sorry this is so lengthy, I needed to express these feelings as

> nobody really understands.

>

>

> e, mom to ,120 months wcf and Ian 156 months no cf

[Guest guest]

No, but I have my really strange moments; that may have been one of them;

thank you for your kindness and openmindedness; we did accept a gift cruise to

Alaska and nearly died--all of us, of salmonella! n, the

Grinch!

Re: MAW decision made/why do I feel guilty?

n - we all respect your opinion.......hey you didn't make it to your age

being stupid!

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

, thank you very much for understanding; I could have gone all my life

without carrying on about our unfortunate gift cruise to Alaska, where we

all got salmonella, and all got sick--managed to lift our heads and see the

icebergs, iceflows, and whales, though! Appreciatively to all of you,

n, the Grinch

Re: MAW decision made/why do I feel guilty?

Hello Grinch (n),

Actually Savannah's doctor wouldn't let her do a cruise. He wasn't to

thrilled with the ports we would come into and Savannah didn't want to get any

shots.

I do hope whatever you do just have the time of your lives.

Mom to 2 w/o CF and Savannah w/ CF

[Guest guest]

n,

an Alaskan cruise is what my husband would like to do for our 25th anniversary.

He was born there and would like to go back. I just haven't heard any good

things about the cruises headed any where. I'm a lysol type of lady though so

maybe none of it appeals to me.

I really like the idea of MAW though. Oklahoma doesn't have the greatest ran

office. I know they have turned down some wishes due to the lack of funds. CF is

deserving in just the fact that treatments don't stop just because you are on

vacation. a lot of times children with different diseases can go without

treatments and meds for a week but CF children can not.It takes planning to get

everything in and continue to stay on top of everything.

Mom to 2 w/o CF and Savannah w/ CF

[Guest guest]

Could you contact the NATIONAL offices about your area branch. I think they

are supposed to help all areas when needed. Cant hurt to ask .

Best wishes,

Love & hugs, GrandmomBEV

Re: MAW decision made/why do I feel guilty?

n,

an Alaskan cruise is what my husband would like to do for our 25th

anniversary. He was born there and would like to go back. I just haven't

heard any good things about the cruises headed any where. I'm a lysol type

of lady though so maybe none of it appeals to me.

I really like the idea of MAW though. Oklahoma doesn't have the greatest ran

office. I know they have turned down some wishes due to the lack of funds.

CF is deserving in just the fact that treatments don't stop just because you

are on vacation. a lot of times children with different diseases can go

without treatments and meds for a week but CF children can not.It takes

planning to get everything in and continue to stay on top of everything.

Mom to 2 w/o CF and Savannah w/ CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

Eilish got her wish last October. She told her friend she gets to do

whatever because she is a special child. And because she has to go into

hospital for needles. That's all she needed to know. I felt guilty

also, and did in fact have a good cry when she got accepted. The fear

of knowing that yes she is in fact sick was hard to bear. But then I

thought she goes through so much she deserves this and so much more. So

go have a great time and make memories.

(Australia)

MAW decision made/why do I feel guilty?

Well, after four months, has finally decided on what she wants

to wish for. She was thinking about going to Paris, but some of our

friends who have been there told her that unless she likes to look

at old buildings and art, there really is not much for a ten year

old to do there. So, being an ex-travel agent I told her that if she

chose a cruise then she could do all the fun stuff the cruise ship

had to offer AND still be able to go and see interesting places. In

addition she would be able to see many different places. So her next

dilemma was where to go. I told her about Carnival and how fun their

cruises are, but she is not interested in the Caribbean or Mexico.

She finally decided that she wants to go on a Mediterranean cruise,

and boy is she excited. " this is it " she says " this is the one and

I am not changing my mind " .

Its funny because when I talked with the MAW coordinator I actually

felt guilty. I feel like this is awfully extravagant and strange to

ask for something so big. My husband is not excited at all. He says

that " whatever wants is fine " and thats it. He does not want

to beleive that she would ever need an organization like Make a Wish

and I think he feels that there are more deserving children out

there than . I can see his point and this is probably where

some of my guilt comes from. Also, it is hard to explain to

why she does deserve this.She has been on the website and has seen

the other kids that have had wishes granted. She asks me " Am I as

bad as they are? " as she sees the kids with no hair and suffering

from other illnesses. " No honey, you are not as bad as they

are " . " Well then if wishes are for kids who are very ill, why do I

get a wish? "

With the help of my parents, our children have had a chance to

experience some incredible opportunities; perhaps more than the

average 10 year old, so how can I justify asking for a wish?

Sorry this is so lengthy, I needed to express these feelings as

nobody really understands.

e, mom to ,120 months wcf and Ian 156 months no cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

------------------------------------

_____

[Guest guest]

I would go on line and check their site and contact them about their record

of food safety--then whoop it up! Good luck, n Rojas

Re: MAW decision made/why do I feel guilty?

n,

an Alaskan cruise is what my husband would like to do for our 25th

anniversary. He was born there and would like to go back. I just haven't heard

any good things about the cruises headed any where. I'm a lysol type of lady

though so maybe none of it appeals to me.

I really like the idea of MAW though. Oklahoma doesn't have the greatest ran

office. I know they have turned down some wishes due to the lack of funds. CF is

deserving in just the fact that treatments don't stop just because you are on

vacation. a lot of times children with different diseases can go without

treatments and meds for a week but CF children can not.It takes planning to get

everything in and continue to stay on top of everything.

Mom to 2 w/o CF and Savannah w/ CF

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

e,

I will tell you what a very dear friend who is involved in the MAW

foundation told us. We always felt guilty and thought that it should go to

a child and family who could not afford to go on such trips. He told us

that MAW is not based on financial status. MAW is for those kids that have

life threatening illnesses. He also told us that MAW has access to things

that most people do not. My is currently waiting to hear about

her wish trip. She wanted to go see Celine Dion in Las Vegas. We probable

could have gotten her tickets to the show and got to Las Vegas but I know we

would not have been able to arrange for her so see Celine in person. Do not

feel guilty for this and we have been assured that there are not children

who don't get a wish because someone else does.

I hope you enjoy your cruise to the Mediterranean. It sounds like great

fun.

Tina W., mother of , 18yo wcf

MAW decision made/why do I feel guilty?

Well, after four months, has finally decided on what she wants

to wish for. She was thinking about going to Paris, but some of our

friends who have been there told her that unless she likes to look

at old buildings and art, there really is not much for a ten year

old to do there. So, being an ex-travel agent I told her that if she

chose a cruise then she could do all the fun stuff the cruise ship

had to offer AND still be able to go and see interesting places. In

addition she would be able to see many different places. So her next

dilemma was where to go. I told her about Carnival and how fun their

cruises are, but she is not interested in the Caribbean or Mexico.

She finally decided that she wants to go on a Mediterranean cruise,

and boy is she excited. " this is it " she says " this is the one and

I am not changing my mind " .

Its funny because when I talked with the MAW coordinator I actually

felt guilty. I feel like this is awfully extravagant and strange to

ask for something so big. My husband is not excited at all. He says

that " whatever wants is fine " and thats it. He does not want

to beleive that she would ever need an organization like Make a Wish

and I think he feels that there are more deserving children out

there than . I can see his point and this is probably where

some of my guilt comes from. Also, it is hard to explain to

why she does deserve this.She has been on the website and has seen

the other kids that have had wishes granted. She asks me " Am I as

bad as they are? " as she sees the kids with no hair and suffering

from other illnesses. " No honey, you are not as bad as they

are " . " Well then if wishes are for kids who are very ill, why do I

get a wish? "

With the help of my parents, our children have had a chance to

experience some incredible opportunities; perhaps more than the

average 10 year old, so how can I justify asking for a wish?

Sorry this is so lengthy, I needed to express these feelings as

nobody really understands.

e, mom to ,120 months wcf and Ian 156 months no cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

_____

[Guest guest]

Tina, thank you for making that point; I happen to think that this is very im

portant, so that those children with life-threatening illness WILL be able to

apply, provided that their parents are aware of this. Thank you very much!

n Rojas

MAW decision made/why do I feel guilty?

Well, after four months, has finally decided on what she wants

to wish for. She was thinking about going to Paris, but some of our

friends who have been there told her that unless she likes to look

at old buildings and art, there really is not much for a ten year

old to do there. So, being an ex-travel agent I told her that if she

chose a cruise then she could do all the fun stuff the cruise ship

had to offer AND still be able to go and see interesting places. In

addition she would be able to see many different places. So her next

dilemma was where to go. I told her about Carnival and how fun their

cruises are, but she is not interested in the Caribbean or Mexico.

She finally decided that she wants to go on a Mediterranean cruise,

and boy is she excited. " this is it " she says " this is the one and

I am not changing my mind " .

Its funny because when I talked with the MAW coordinator I actually

felt guilty. I feel like this is awfully extravagant and strange to

ask for something so big. My husband is not excited at all. He says

that " whatever wants is fine " and thats it. He does not want

to beleive that she would ever need an organization like Make a Wish

and I think he feels that there are more deserving children out

there than . I can see his point and this is probably where

some of my guilt comes from. Also, it is hard to explain to

why she does deserve this.She has been on the website and has seen

the other kids that have had wishes granted. She asks me " Am I as

bad as they are? " as she sees the kids with no hair and suffering

from other illnesses. " No honey, you are not as bad as they

are " . " Well then if wishes are for kids who are very ill, why do I

get a wish? "

With the help of my parents, our children have had a chance to

experience some incredible opportunities; perhaps more than the

average 10 year old, so how can I justify asking for a wish?

Sorry this is so lengthy, I needed to express these feelings as

nobody really understands.

e, mom to ,120 months wcf and Ian 156 months no cf

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

_____