RE: CF - Help for those with Expenses with CF - Lungs for Life

[Guest guest]

GREAT , thanks so much Joanne. What is their contact information or web

site?? Thanks you. You always have such wonderful info

LOVE & HUGS, GrandmoMBEV

CF - Help for those with Expenses with CF - Lungs

for Life

CF Parents,

I wanted to make everyone aware of an organization that helps those with

CF

and families with CF with expenses not covered under their insurance.

This organization was started when a young man in the Rochester, New

York

area was waiting for a lung transplant due to CF, and would be moving to

the NYC

area. His family raised money. Unfortunatly he died before getting his

new

lungs. His sister then wanted to do things for others with CF from the

money

they raised. So Lungs for Life Foundation was begun.

Here is the Info:

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Transplant Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of: Transplant Support - Lung, Heart/Lung, Heart

http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

Dear Joanne,

I found it . It was an Easy search . I just put in the name & all the

info is right there. Bless you & I know many will have comfort knowing

there are sources around. Thanks again

LOVE & HUGS, GrandmoMBEV

CF - Help for those with Expenses with CF - Lungs

for Life

CF Parents,

I wanted to make everyone aware of an organization that helps those with

CF

and families with CF with expenses not covered under their insurance.

This organization was started when a young man in the Rochester, New

York

area was waiting for a lung transplant due to CF, and would be moving to

the NYC

area. His family raised money. Unfortunatly he died before getting his

new

lungs. His sister then wanted to do things for others with CF from the

money

they raised. So Lungs for Life Foundation was begun.

Here is the Info:

Joanne M. Schum

Cystic Fibrosis

Bi-lateral Lung Transplant Recipient

September 12, 1997

University of North Carolina Hospitals Chapel Hill

Residence: Upstate New York

email: luckylungsforjo@...

Manager of: Transplant Support - Lung, Heart/Lung, Heart

http://groups.msn.com/TransplantSupportLungHeartLungHeart

" Taking Flight - Inspirational Stories of Lung Transplantation "

Compiled by Joanne Schum

Authored by lung recipients around the world

http://www.trafford.com/robots/02-0497.html

http://www.trafford.com/

[Guest guest]

Dear Tammy,

I am sorry to hear about JW, his diabetes and the Bipap. I don't have any

experience with those things but I wanted to write to support you and I will

keep you and JW in my " special thoughts " . I hope his sinus surgery goes OK,

please keep us posted. I hope he feels better soon.

love,

M

mom of Nick age 21 nocf and age 20 wcf

[Guest guest]

Tammy, may I join M in her support for you and highest hopes for

you and for your child's surgery, Love to your family, n Rojas

Re: CF - Help for those with Expenses with CF - Lungs for

Life

Dear Tammy,

I am sorry to hear about JW, his diabetes and the Bipap. I don't have any

experience with those things but I wanted to write to support you and I will

keep you and JW in my " special thoughts " . I hope his sinus surgery goes OK,

please keep us posted. I hope he feels better soon.

love,

M

mom of Nick age 21 nocf and age 20 wcf