Blood sugar

[Guest guest]

Thanks for the advice on blood sugars.

I thought I was probably the more " experienced " one here with blood sugars since

Caden tends to be hypoglycemic and my daughter is diabetic!

I have been watching Caden's blood sugar tonight. He ate at about .....something

after 9PM..maybe about 9:15 or 9:20PM..

It's now 12:20 AM and his blood sugar is just now down to 127. He was at 140 &

156 till between 9ish and 11:30...dropped to 106 @ 11:30....I picked him up and

put him to bed.. Decided to check one last time, at 12:20 just to make sure he

wasn't hypoglycemic since he was sweating So bad. I've seen him run high and

then take a sudden drop!! Well, his blood sugar is back to 127!

How could this be?

Maybe he did drop... and then had a rebound.. I'll have to check one last time.

Maybe set my alarm or something.

Concerned that this could mean the other side of his pancreas is weak.

Ambry has agreed to rerun Caden's CF genes again- Free- since we are doing the

pancreatic insufficiency DNA test.

My Ambry contact said that they have made improvements in their testing since

2002. We also sent in the baby's blood for both tests. Anyone ever done the

pancreatic insufficiency DNA test?

Any advise?

Krystena s

Caden 5.5 yrs GAII

We just recently learned that Caden has the common mutation f(G985A) for MCAD,

another Fatty Oxidation Disorder..

He's technically a heterozygote or " carrier " .. but, our geneticist at MAYO and

his collegues, thinks they've happened upon a rare instance with Caden, in that,

he is possibly a Manifesting Heterozygote! Meaning, he's having symptoms of MCAD

(an autosomal recessive disorder) with ONLY ONE mutation!

Does anyone here have only ONE CF mutation WITH symptoms?