colistin/colymycin

[Guest guest]

Hi,

http://www.rxhope.com/pap_info.asp

Unfortunately, the 2 you inquired about don't seem to be on the site, but the

site might be useful to others for other medications. The search takes you to

patient assistance programs for the manufacturers of various meds, including

Tobi.

Hope this is of some use.

Jill

colistin/colymycin

Any suggestions on how to get insurance to pay for or where to get

hjelp on subsidized costs.

Ours will not cover it

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

http://www.needymeds.com/

I forgot about needymeds

Jill

colistin/colymycin

Any suggestions on how to get insurance to pay for or where to get

hjelp on subsidized costs.

Ours will not cover it

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

[Guest guest]

If someone's insurance is refusing to pay, get a formal LETTER OF MEDI

CAL NECESSITY FROM THE DOCTOR; PRINT OR MAKE COPIES FOR THE

PHARMACY, THE CF CENTER, ETC. Rosemary, as usual, I might add,

gives sound advice, with which I, as usual, concur--well, that's at least

two votes anyway! Good luck, n Rojas

Re: colistin/colymycin

Get a letter from the CF Center - I am sure they have a form letter or from

CF Foundation on how Coly is used for inhalation purposes NOT as an

injectible.

Do NOT pay..........which company? I have Aetna.

Call the Center. Get a letter..........

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

Thanks for your ideas.

I have gotten letters and the protocol and submitted to Blue Cross and still

no avail.

I will try the other two websites.

Thanks for the info.

[Guest guest]

Have Center call Blue Cross. I am SURE that the Center has other patients

with Blue Cross. OR if anyone out there has Blue Cross please share your

experiences with Blue Cross and Coly.......

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

Hi,

I have heard (we did not have to try this) that they will cover it if you go

through Home Health. I once had a " nurse " from our insurance co. ask me if I

was planning on injecting this into my daughter 3 times a day. I said no it is

inhaled. She did not understand,.then she said will we need a nurse to come over

3 times a day?? I was thinking " cool, I won't have to do it " LOL but I told her

no we could handle a nebulizer. I swear you have to pass an idiot test to work

there or something. We are no longer with that co. But try going through Home

Health, I guess you will need to call your doc or cf nurse to set that up.

I hope you don't have to pay for it, another option is to tell the insurance co

if your child doesn't get this he/she will have to be admitted to the hospital

for 2 weeks and paying for the coly is a lot cheaper!

good luck,

M