i found something in nashville...

[Guest guest]

Here is something I just came across....it mentions a few places in Nashville that can make the band/helmet.

http://community.babycenter.com/post/a21637235/where_to_go

KDP

P. Dill

(804) 615-8645

From: bprender29 <bprender29@...>Plagiocephaly Sent: Friday, April 8, 2011 11:46 PMSubject: Words of encouragement needed

Some of this is a vent, and I know that there are better providers, better devices, better everything out there. What I am looking for is some encouragement, some positive outcomes under similar circumstances. Anything that will make me feel better about what I am about to do to my sweet baby.I am in Memphis, TN, which is far from being a huge city like NY or Dallas etc., but we do have St. Jude, and many other medical centers of excellence. Apple CEO, Steve Jobs, choose to have his liver transplant here when he could have gone anywhere. We are not a complete hole in the ground. I am not used to second best health care, so to realize that the gold standard is simply out of my reach is blowing my mind (and yes I know many of us are in this same position but that doesn't make it easier). There is only one orthotist who does any kind of cranial bands within a 300+ mile radius of me. One. The closest CT is about 500 miles away, and if not for my

2 1/2 year old son, I would be moving to Dallas for 3+ months to undergo treatment with a DOC band. However, I have the well-being of the whole family to think about. I litterally have no other option but to go with this orthotist I met with today, who was nice enough, but admitted he only does about 20 cranial bands a year. Though he has worked with Hangar bands and Starbands, he prefers and feels most comfortable working with the Boston Brace, which is a passive device. He told me today that my 4 month old son (plagio/brachy) will be in this passive band until he is 12 months old, which is MUCH longer than I was anticipating. The cost is also a lot more than I thought it was going to be for such a device...$1550. I had previously been making myself feel better that at least our cost would be a tiny fraction of what we would pay CT. I wish I were happily ignorant and unaware of the fact that I am making my baby settle for what feels

like a half-baked plan of treatment. I wish I didn't know that his treatment time is going to be double or triple what it would be if we lived nearer to CT. I wish I didn't know that I seem to know more about this than the orthotist who will be shaping his head for life. This guy couldn't even give me my son's numbers that I hear all of you talking about. I don't know his asymmetry or his cephalic index, though they did say I would get those numbers once they scan the old-school plaster mold they did of his head (?). This is soo far from the experiences that I have read on this board! I am sooo frustrated! ~betsyMom to Eli, 4 months old with plagio/brachy of unknown severity