Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 THAT would be wonderful . ALL states should do this. Fighting these insurance companies who phone folks don't have a clue about CF !! Maybe Hal knows some higher ups that can help too. He lives it that state as well............. Thanks .AND GOOD LUCK !! LOVE & HUGS, GrandmomBEV HELP PLEASE!!!!!! HELLO EVERYONE, THIS IS TO ANYONE WHO LIVES IN CONNECTICUT, USA. ON FEBRUARY 19, 2004, THERE IS A HEARING BEING HELD BEFORE STATE REPRESENTATIVES IN REGARDS TO ALLOWING CYSTIC FIBROSIS TO BE CONSIDERED A METABOLIC DISEASE. WHAT THIS MEANS IS THAT INSURANCE COMPANY WILL ALLOW ALL SUPLIMENTAL FORMULAS, SHAKES TO BE COVERED DUE TO MALNUTRION. ALSO CYSTIC FIBROSIS WILL ALSO BE ADDED TO THE MANDITORY NEWBORN SCREENING IN ALL HOSPITAL THROUGHT OUT THE STATE. IF YOU ARE INTERESTED IN EITHER GOING TO THE HEARING OR JUST WRITING A LETTER PLEASE E-MAIL ME ASAP @ daveS3@.... thanks karen skoglund W/ CODY CF 23 MONTHS ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 : Please call me at: this evening (2/12) .reverse charges will be O.K. I go to the Yale adult clinic, and know several State Reps. Hal (almost 73 years old with CF) HELP PLEASE!!!!!! HELLO EVERYONE, THIS IS TO ANYONE WHO LIVES IN CONNECTICUT, USA. ON FEBRUARY 19, 2004, THERE IS A HEARING BEING HELD BEFORE STATE REPRESENTATIVES IN REGARDS TO ALLOWING CYSTIC FIBROSIS TO BE CONSIDERED A METABOLIC DISEASE. WHAT THIS MEANS IS THAT INSURANCE COMPANY WILL ALLOW ALL SUPLIMENTAL FORMULAS, SHAKES TO BE COVERED DUE TO MALNUTRION. ALSO CYSTIC FIBROSIS WILL ALSO BE ADDED TO THE MANDITORY NEWBORN SCREENING IN ALL HOSPITAL THROUGHT OUT THE STATE. IF YOU ARE INTERESTED IN EITHER GOING TO THE HEARING OR JUST WRITING A LETTER PLEASE E-MAIL ME ASAP @ daveS3@.... thanks karen skoglund W/ CODY CF 23 MONTHS ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ Quote Link to comment Share on other sites More sharing options...
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