Re: Neb treatments....Please Help!!

[Guest guest]

In a message dated 2/1/2004 4:47:22 PM Central Standard Time,

hettie375@... writes:

What I did when our daughter who was 1 at the time and would have a temper

tantrum when doing her treatments is we would look out the window and watch the

birds and I would tell her look they want to watch you they are coming closer

to see what it is you have on you face. And if they flew away I would say oh

he is going to get is friends and tell them to come and look at this funny girl

in the window with this funny thing on her face. If they would hop closer I

would say see he wants to get closer and see what it is you are doing he has

never seen anything like this before. She loved it and to this day still

remembers me doing this. She never fought with me again. I know it sound funny

but it

work for me. At the time she would not sit and watch any tapes. Hope it

helps. Deb A

[Guest guest]

Hi ,

When a child is screaming and crying during a treatment, less medication is

actually delivered to the lungs. Can you wait to give

his treatments after he falls asleep and before he awakens each morning? You

wouldn't have to strap on the mask, just hold it close

to his face while he sleeps.

I used to do this sometimes if fell asleep at night before his treatment.

I hated to wake him just for a treatment. It works great.

Kim

> Hello to you all!

>

> I am writing this post as screams in the background because

> dady is giving him his neb treatment. 's doctor wants him to

> receive his nebs via the mask intead of the hand held device. She

> says that he will get more of his medicine this way. The only

> problem is that it terrifes him, and he screams continuously tot he

> point of going to sleep from exhaustion. I absolutely HATE to see

> him go through this, but I know that it helps him breathe.

> Therefore, he needs it.

>

> Does anyone have any advice for helping adjust to these

> changes? The doctor suggested letting him play with the mask at

> times when he is not receiving the medication so he will get used to

> it, and thereby, not be afraid of it. However, we have done and are

> doing this, and it is not working. I also asked a Respiratory

> Therapist today at the hospital if pediatric nebulizer masks are

> avilable in different sizes ('s likes to ride up into his eyes

> as he struggles to fight the treatment), and of course, they are

> not. I am open for any helpful hints.

>

> Also, with regards to a CF center......How does this work with

> health insurance? Does it cost more to receive treatment at a CF

> center? Does the doctor refer you to the center? And, with a

> negative sweat test result, is it going to be difficult to either be

> referred to a CF center and/or be seen in a CF center?

>

> Questions..Questions..Questions......You guys are great for

> providing so much info........THANKYOU!

>

> proud mother of and his four siblings.

[Guest guest]

Treatments on a kid--aren't they fun? NOT. My son turned blue he was

crying so hard the first time we put his vest on him. Now, he ASKS us

to do " CTT " (CPT) since he knows he gets to watch Blues Clues or

Sesame Street (he is almost 3). It sucked the first 2 weeks but he

got over it. We gradually increasedx the time every day. He

eventually realized that no matter how much he fought it, we still

would make him do CPT.

As for going to a CF clinic, our dr referred us and it is covered by

insurance. The CF clinidc is really the only place to be seen when

your kid has CF. There is just so much involved that a regular

pulmonologist won't have the background and support staff needed.

If your child has CF, you should request a genetic test to determine

his CF gene. Sweat tests are not very accurate, genes are (although

some CF genes have still not been identified).

> Hello to you all!

>

> I am writing this post as screams in the background because

> dady is giving him his neb treatment. 's doctor wants him to

> receive his nebs via the mask intead of the hand held device. She

> says that he will get more of his medicine this way. The only

> problem is that it terrifes him, and he screams continuously tot he

> point of going to sleep from exhaustion. I absolutely HATE to see

> him go through this, but I know that it helps him breathe.

> Therefore, he needs it.

>

> Does anyone have any advice for helping adjust to these

> changes? The doctor suggested letting him play with the mask at

> times when he is not receiving the medication so he will get used

to

> it, and thereby, not be afraid of it. However, we have done and

are

> doing this, and it is not working. I also asked a Respiratory

> Therapist today at the hospital if pediatric nebulizer masks are

> avilable in different sizes ('s likes to ride up into his eyes

> as he struggles to fight the treatment), and of course, they are

> not. I am open for any helpful hints.

>

> Also, with regards to a CF center......How does this work with

> health insurance? Does it cost more to receive treatment at a CF

> center? Does the doctor refer you to the center? And, with a

> negative sweat test result, is it going to be difficult to either

be

> referred to a CF center and/or be seen in a CF center?

>

> Questions..Questions..Questions......You guys are great for

> providing so much info........THANKYOU!

>

> proud mother of and his four siblings.

[Guest guest]

You should purchase the mask that are animals.I used to have the same problem

but when I started getting the fish and rhino mask it started to get better.

Now he is 4 and still over treatments but not as bad as before. Good Luck

's mom 4 c/cf

[Guest guest]

hates to have the masks strapped on to her face, but she would let us

hold them up to her face. Try just holding it on and not using the strap.

found that strap scary. She still preferrs to just hold the thing up to

her face unles she is doing something that requires 2 hands.

mom of 5 with CF and one on the way

Re: Neb treatments....Please Help!!

You should purchase the mask that are animals.I used to have the same problem

but when I started getting the fish and rhino mask it started to get better.

Now he is 4 and still over treatments but not as bad as before. Good Luck

's mom 4 c/cf

[Guest guest]

They have really cute children's masks now that look like fish, dinosaurs,

etc. We got extra masks masks and while ty would do his nebs we would pretend we

were doing one too. I'm not sure how old your child is but they also have

nebs that have pacifyers in them .Good luck and I promise things will get easier

o.k. so there will be lots of ups and downs no matter what the age . Ty now 9

has to be watched cont. because he cheats on his vest time if we don't ! Take

care , Crystal

[Guest guest]

Hi .

I too struggled with my son for a bit with his neb tx. He started

on them at birth, so I think he just wanted to play instead of sit

still. We found that a variety of videos works well. He's 14 mos now

and is really into Elmo's World, Sesame Street, Baby Einstein and

sometimes Bear in the Big Blue House. He also really likes The

Wiggles.

Some people have suggested stories, but I don't have enough hands

to hold the neb, a book, turn the pages and hold onto . Other

people have said just have tx toys that only come out during tx time.

As for the mask... uses the Pari neb. For his albuterol we

have the mouthpiece which he sometimes will suck on correctly. When

we do his Pulmozyme, we use the baby mask. It comes in different

sizes for kids up to 3 yrs old (I think). I'm not sure if this info

helps you or not.

I have no clue about the CF Center and insurance. Sorry I couldn't

help with that.

Hope that gives you some ideas to try. Good Luck. I know it's tough

to see them struggle and scream when we know the tx is for their own

good. But it is something that they need to learn...

Karon

[Guest guest]

Kim,

We give Abby her entire treatment, including the percussions, while

she is sleeping. She can be bouncing up and down on the bed, from

the percussions, and still sleep. Is this just as effective as

giving her percussions while she is awake?

Thanks,

Gale

Grandma to Abby (2 yo wcf)

> > Hello to you all!

> >

> > I am writing this post as screams in the background because

> > dady is giving him his neb treatment. 's doctor wants him to

> > receive his nebs via the mask intead of the hand held device.

She

> > says that he will get more of his medicine this way. The only

> > problem is that it terrifes him, and he screams continuously tot

he

> > point of going to sleep from exhaustion. I absolutely HATE to

see

> > him go through this, but I know that it helps him breathe.

> > Therefore, he needs it.

> >

> > Does anyone have any advice for helping adjust to these

> > changes? The doctor suggested letting him play with the mask at

> > times when he is not receiving the medication so he will get used

to

> > it, and thereby, not be afraid of it. However, we have done and

are

> > doing this, and it is not working. I also asked a Respiratory

> > Therapist today at the hospital if pediatric nebulizer masks are

> > avilable in different sizes ('s likes to ride up into his

eyes

> > as he struggles to fight the treatment), and of course, they are

> > not. I am open for any helpful hints.

> >

> > Also, with regards to a CF center......How does this work with

> > health insurance? Does it cost more to receive treatment at a CF

> > center? Does the doctor refer you to the center? And, with a

> > negative sweat test result, is it going to be difficult to either

be

> > referred to a CF center and/or be seen in a CF center?

> >

> > Questions..Questions..Questions......You guys are great for

> > providing so much info........THANKYOU!

> >

> > proud mother of and his four siblings.

[Guest guest]

,

My little one Elijah had a problem at first also with the Neb where I would

have to hld him down through the treatments. My husband is a helecopter Pilot

and my husband desided to tell Elijah that he was being just like dad and showed

him a picture of himself in all his gear from that point on we had no problems

it is called his pilot mask =). I would just find a fun name for it that would

be exciting for him and it will take a few times of doing it but it will get

better I promise.

Neb treatments....Please Help!!

Hello to you all!

I am writing this post as screams in the background because

dady is giving him his neb treatment. 's doctor wants him to

receive his nebs via the mask intead of the hand held device. She

says that he will get more of his medicine this way. The only

problem is that it terrifes him, and he screams continuously tot he

point of going to sleep from exhaustion. I absolutely HATE to see

him go through this, but I know that it helps him breathe.

Therefore, he needs it.

Does anyone have any advice for helping adjust to these

changes? The doctor suggested letting him play with the mask at

times when he is not receiving the medication so he will get used to

it, and thereby, not be afraid of it. However, we have done and are

doing this, and it is not working. I also asked a Respiratory

Therapist today at the hospital if pediatric nebulizer masks are

avilable in different sizes ('s likes to ride up into his eyes

as he struggles to fight the treatment), and of course, they are

not. I am open for any helpful hints.

Also, with regards to a CF center......How does this work with

health insurance? Does it cost more to receive treatment at a CF

center? Does the doctor refer you to the center? And, with a

negative sweat test result, is it going to be difficult to either be

referred to a CF center and/or be seen in a CF center?

Questions..Questions..Questions......You guys are great for

providing so much info........THANKYOU!

proud mother of and his four siblings.

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------