Guest guest Posted December 21, 2010 Report Share Posted December 21, 2010 I'm so happy to read of the success that your daughter has had!!! I completely understand wanting to do everything possible and not getting a lot of support from from your doctor. We have our evaluation with Todd at Hanger in Birmingham tomorrow for our newly adopted 15 month old daughter. We are going with prescription in hand for a band, but our pediatrician refused to write a letter of medical necessity so that we could have the band covered through insurance. He says that if she were his, he would not put her in a helmet. He says that we should see improvement without intervention, but that we should not expect her ear position to improve much. Thankfully, Harper is ours not his, and we are confident that she will benefit from intervention. Your post has provided a lot of encouragement for us as we prepare for our trip tomorrow. Congratulations and Thank You!!! Bottoms Mom to Six Blessings > > 20 months - 4mm and 4mm ears symmetry- 3 months in Hanger Band - start 11mm > and 9mm ears > > > I am thrilled. I remember the difference between 11 and 7 and I was very sad > I didn't see any improvement to my eyes but now her head is beautiful. I'm > shocked. It was very hard to find any stories about kids over 15 months having > any improvement. So now that her head is pretty round I can obsess on her ear > symmetry. So he measured it for me and there has been definate improvement even > though I can still see it. He is letting us wear the helmet as long as we please > which also makes me happy. I think it's due to the neuro NP trying to make me > not do the helmet so she put in a recommendation of a 9 months to a year. Well, > didn't dissuade me and now my kid is looking so much better! And her scare > tactic just lets me get as close to 0 as I can. > > > I'm a little weary of the measurements as my kid walks and doesn't understand > why he's tickling her head. I would recommend for people with walkers to have a > bottle on hand or to go when they're passed out (we did nap time once and boy > was it easy). You can hold the bottle for them and it holds their head still > long enough to get measurements. Or bring a very different toy and hold it for > them in front of their eyes. Fortunately, our ortho has some odd toys to look > at. > > Also she took a horrible crash in her crib before we left.The crack on the back > of her head on the bars as she fell backwards was loud. She didn't feel a thing > and hopped right back up. I really think all stumblers should have helmets! > > And yes, she held still for the ortho to put her hat on. She has no qualms with > it whatsoever and probably prefers it on. Only time it semi bothered her was the > first week when it was too big and kept sliding down over her eyes which was > fixed by putting in additional padding. > > So as mad as I am the dr's wasted our time in the beginning and it took so long > for us to get one (4 months since our referral) I am thrilled with the progress > she is making. Easier to be happy when you can see the difference though. 3 > months flew by. She's going to be 3 months older regardless, why not make it for > the best? > > " Today, this symmetry has been scientifically proven to be > inherently attractive to the human eye. It has been defined not > with proportions, but rather with similarity between the left and > right sides of the face. " > > I've always referred to " more attractive " people as more symmetrical people. Who > knew I would be trying to figure this out for my own kid. I'm not saying I > believe in beauty over brains or love or anything but if there's anything *I* > can do to make her life better (normal) I'm going to do it. I'd love her just as > much if she looked like an eggplant, but this is something I can help her with > so I'm going to. I created her. I have a responsibility to her. > > *hoping for another good month!* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2010 Report Share Posted December 21, 2010 I'm glad to hear you are seeing the results. I would love to see pictures when you're ready. If you keep the band on just make sure you get it adjusted as needed. A too small band can cause problems. I'm assuming you'll still be visiting your ortho regularly so that won't be a problem. -christine sydney, 5 yrs, starband grad > > 20 months - 4mm and 4mm ears symmetry- 3 months in Hanger Band - start 11mm > and 9mm ears > > > I am thrilled. I remember the difference between 11 and 7 and I was very sad > I didn't see any improvement to my eyes but now her head is beautiful. I'm > shocked. It was very hard to find any stories about kids over 15 months having > any improvement. So now that her head is pretty round I can obsess on her ear > symmetry. So he measured it for me and there has been definate improvement even > though I can still see it. He is letting us wear the helmet as long as we please > which also makes me happy. I think it's due to the neuro NP trying to make me > not do the helmet so she put in a recommendation of a 9 months to a year. Well, > didn't dissuade me and now my kid is looking so much better! And her scare > tactic just lets me get as close to 0 as I can. > > > I'm a little weary of the measurements as my kid walks and doesn't understand > why he's tickling her head. I would recommend for people with walkers to have a > bottle on hand or to go when they're passed out (we did nap time once and boy > was it easy). You can hold the bottle for them and it holds their head still > long enough to get measurements. Or bring a very different toy and hold it for > them in front of their eyes. Fortunately, our ortho has some odd toys to look > at. > > Also she took a horrible crash in her crib before we left.The crack on the back > of her head on the bars as she fell backwards was loud. She didn't feel a thing > and hopped right back up. I really think all stumblers should have helmets! > > And yes, she held still for the ortho to put her hat on. She has no qualms with > it whatsoever and probably prefers it on. Only time it semi bothered her was the > first week when it was too big and kept sliding down over her eyes which was > fixed by putting in additional padding. > > So as mad as I am the dr's wasted our time in the beginning and it took so long > for us to get one (4 months since our referral) I am thrilled with the progress > she is making. Easier to be happy when you can see the difference though. 3 > months flew by. She's going to be 3 months older regardless, why not make it for > the best? > > " Today, this symmetry has been scientifically proven to be > inherently attractive to the human eye. It has been defined not > with proportions, but rather with similarity between the left and > right sides of the face. " > > I've always referred to " more attractive " people as more symmetrical people. Who > knew I would be trying to figure this out for my own kid. I'm not saying I > believe in beauty over brains or love or anything but if there's anything *I* > can do to make her life better (normal) I'm going to do it. I'd love her just as > much if she looked like an eggplant, but this is something I can help her with > so I'm going to. I created her. I have a responsibility to her. > > *hoping for another good month!* > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2010 Report Share Posted December 22, 2010 Congratulations, that is FANTASTIC!! Can you explain what you mean by the difference in the "ear" measurements? My son is 22 months and has been in his StarBand for 3 months now and we have seen 50% improvement from when we first started. I found this article which I included in my complaint to my medical provider which show "older" babies can do well in the helmet:http://journals.lww.com/jpojournal/Fulltext/2009/01000/Cranial_Remolding_Helmet_Treatment_of.8.aspx We all need to tell our doctors they need to brush up on their facts. Estrella Moeller From: christineashok <christineashok@...>Plagiocephaly Sent: Tue, December 21, 2010 10:28:07 PMSubject: Re: update 20 months I'm glad to hear you are seeing the results. I would love to see pictures when you're ready. If you keep the band on just make sure you get it adjusted as needed. A too small band can cause problems. I'm assuming you'll still be visiting your ortho regularly so that won't be a problem.-christinesydney, 5 yrs, starband grad>> 20 months - 4mm and 4mm ears symmetry- 3 months in Hanger Band - start 11mm > and 9mm ears> > > I am thrilled. I remember the difference between 11 and 7 and I was very sad > I didn't see any improvement to my eyes but now her head is beautiful. I'm > shocked. It was very hard to find any stories about kids over 15 months having > any improvement. So now that her head is pretty round I can obsess on her ear > symmetry. So he measured it for me and there has been definate improvement even > though I can still see it. He is letting us wear the helmet as long as we please > which also makes me happy. I think it's due to the neuro NP trying to make me > not do the helmet so she put in a recommendation of a 9 months to a year. Well, > didn't dissuade me and now my kid is looking so much better! And her scare > tactic just lets me get as close to 0 as I can. > > > I'm a little weary of the measurements as my kid walks and doesn't understand > why he's tickling her head. I would recommend for people with walkers to have a > bottle on hand or to go when they're passed out (we did nap time once and boy > was it easy). You can hold the bottle for them and it holds their head still > long enough to get measurements. Or bring a very different toy and hold it for > them in front of their eyes. Fortunately, our ortho has some odd toys to look > at.> > Also she took a horrible crash in her crib before we left.The crack on the back > of her head on the bars as she fell backwards was loud. She didn't feel a thing > and hopped right back up. I really think all stumblers should have helmets! > > And yes, she held still for the ortho to put her hat on. She has no qualms with > it whatsoever and probably prefers it on. Only time it semi bothered her was the > first week when it was too big and kept sliding down over her eyes which was > fixed by putting in additional padding.> > So as mad as I am the dr's wasted our time in the beginning and it took so long > for us to get one (4 months since our referral) I am thrilled with the progress > she is making. Easier to be happy when you can see the difference though. 3 > months flew by. She's going to be 3 months older regardless, why not make it for > the best?> > "Today, this symmetry has been scientifically proven to be > inherently attractive to the human eye. It has been defined not > with proportions, but rather with similarity between the left and > right sides of the face."> > I've always referred to "more attractive" people as more symmetrical people. Who > knew I would be trying to figure this out for my own kid. I'm not saying I > believe in beauty over brains or love or anything but if there's anything *I* > can do to make her life better (normal) I'm going to do it. I'd love her just as > much if she looked like an eggplant, but this is something I can help her with > so I'm going to. I created her. I have a responsibility to her.> > *hoping for another good month!*> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2010 Report Share Posted December 22, 2010 He measures from ear to corner of eye and ear to nose tip and then does some math. He called it the mid range area. While I don't think they can measure (with tape?) the up and down parts of it they can measure how close the ear to the nose is. So her ears were 9mm different and the helmet had moved her ear 5mm to where it should be. To me it still looks severe but knowing the measurements helps me know they're heading in the right direction at least.50% too! This is crazy they don't like to band older kids! It is so helpful and at the very least a weight off the parent's mind to think they tried. (posts made weeks ago are just now coming through)KimFrom: Estrella Vila <estrellavila1@...>Plagiocephaly Sent: Wed, December 22, 2010 9:07:31 AMSubject: Re: Re: update 20 months Congratulations, that is FANTASTIC!! Can you explain what you mean by the difference in the "ear" measurements? My son is 22 months and has been in his StarBand for 3 months now and we have seen 50% improvement from when we first started. I found this article which I included in my complaint to my medical provider which show "older" babies can do well in the helmet:http://journals.lww.com/jpojournal/Fulltext/2009/01000/Cranial_Remolding_Helmet_Treatment_of.8.aspx We all need to tell our doctors they need to brush up on their facts. Estrella Moeller From: christineashok <christineashok@...>Plagiocephaly Sent: Tue, December 21, 2010 10:28:07 PMSubject: Re: update 20 months I'm glad to hear you are seeing the results. I would love to see pictures when you're ready. If you keep the band on just make sure you get it adjusted as needed. A too small band can cause problems. I'm assuming you'll still be visiting your ortho regularly so that won't be a problem.-christinesydney, 5 yrs, starband grad>> 20 months - 4mm and 4mm ears symmetry- 3 months in Hanger Band - start 11mm > and 9mm ears> > > I am thrilled. I remember the difference between 11 and 7 and I was very sad > I didn't see any improvement to my eyes but now her head is beautiful. I'm > shocked. It was very hard to find any stories about kids over 15 months having > any improvement. So now that her head is pretty round I can obsess on her ear > symmetry. So he measured it for me and there has been definate improvement even > though I can still see it. He is letting us wear the helmet as long as we please > which also makes me happy. I think it's due to the neuro NP trying to make me > not do the helmet so she put in a recommendation of a 9 months to a year. Well, > didn't dissuade me and now my kid is looking so much better! And her scare > tactic just lets me get as close to 0 as I can. > > > I'm a little weary of the measurements as my kid walks and doesn't understand > why he's tickling her head. I would recommend for people with walkers to have a > bottle on hand or to go when they're passed out (we did nap time once and boy > was it easy). You can hold the bottle for them and it holds their head still > long enough to get measurements. Or bring a very different toy and hold it for > them in front of their eyes. Fortunately, our ortho has some odd toys to look > at.> > Also she took a horrible crash in her crib before we left.The crack on the back > of her head on the bars as she fell backwards was loud. She didn't feel a thing > and hopped right back up. I really think all stumblers should have helmets! > > And yes, she held still for the ortho to put her hat on. She has no qualms with > it whatsoever and probably prefers it on. Only time it semi bothered her was the > first week when it was too big and kept sliding down over her eyes which was > fixed by putting in additional padding.> > So as mad as I am the dr's wasted our time in the beginning and it took so long > for us to get one (4 months since our referral) I am thrilled with the progress > she is making. Easier to be happy when you can see the difference though. 3 > months flew by. She's going to be 3 months older regardless, why not make it for > the best?> > "Today, this symmetry has been scientifically proven to be > inherently attractive to the human eye. It has been defined not > with proportions, but rather with similarity between the left and > right sides of the face."> > I've always referred to "more attractive" people as more symmetrical people. Who > knew I would be trying to figure this out for my own kid. I'm not saying I > believe in beauty over brains or love or anything but if there's anything *I* > can do to make her life better (normal) I'm going to do it. I'd love her just as > much if she looked like an eggplant, but this is something I can help her with > so I'm going to. I created her. I have a responsibility to her.> > *hoping for another good month!*> Quote Link to comment Share on other sites More sharing options...
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