not sure what to do

December 29, 2003

Hi Prue,

I am trying to find a calming neurotransmitter what did you find

worked? also what is the glycine for..???

-- In , " PP " <pruep@b...> wrote:

> >Hi did you start him on anything >else after you stopped the

>procaz?

> Yep he went straight back onto Risperdal, which did make him more

even. I did eventually get him off it with glycine mainly and other

calming neurotransmitters.

> HTH

> Prue

>

December 29, 2003

Have you looked into Taurine to see if it would be helpful for you?

Liz D.

Re: not sure what to do

Hi Prue,

I am trying to find a calming neurotransmitter what did you find

worked? also what is the glycine for..???

-- In , " PP " <pruep@b...> wrote:

> >Hi did you start him on anything >else after you stopped the

>procaz?

> Yep he went straight back onto Risperdal, which did make him more

even. I did eventually get him off it with glycine mainly and other

calming neurotransmitters.

> HTH

> Prue

>

April 8, 2005

A private school might be better with one on one attention with a special

needs child. I would consider talking to the head of both the public and

private schools and see what sort of programs they have for a child with

Juvenile

Arthritis and or a medical disability. Whichever school seems to have a

better understanding of what it is like to have a kid with a medical problem I

would go with them. Of course one of the first things you should do is set up

a 504.

Lots of Love

(Poly JRA and SPondy, 20)

April 9, 2005

,

One of the pluses to public schools is they have to acomodate to the childs

needs through a 504 plan.Private schools only have to follow the ADA and have a

handicap stall and wheel chair access into the school.Some private schools

will not even take a child with any type of disability that would require the

child to have modifications.

Some examples are less writing,help with lunch tray,time to walk around and

stretch,less writing,able to come in late without being tardy,more school

absences without having to worry about going to court.These are just a few

examples

and public schools also offer OT and PT if the child needs it.Private schools

do not receive the federal funding for it.

Hugs

Becki and 6 systemic

April 9, 2005

Hi ,

and Becki have already provided some very good points. A

couple

things to consider... Of course you will want to talk with the

private

school to make sure they can accommodate, if not, end of conflict.

Something else to consider, we try very hard to make Kate

feel " normal " and not make tons of special exceptions, except where

needed of course. If she goes to a different school, will she feel

like she is being cheated?

Not sure if it was Becki or , but one suggested meeting with the

principals and the teachers if possible and explain your concerns

and

let them sell you on their school. If the private school is a good

one (and they have the ability to accommodate) they will figure out

how to make it happen, they want the tuition $.

Good luck with your decision, I know it is a tough one.

Brad (Kate, 3, poly)

>

> Hi I havent post in a while, I hope everyones doing great,well I

have

> a question about my daughter 's school she is in

kindergaten

> but next year she will be in first grade so the question is should

I

> let her remain in a pubilic school or let her go to a private

school?

> I feel private school is longer and harder ,more homework,ect. My

> husband says our older daughter is doing fine in a private

school,but

> I say her fingers dont hurt and you cant compare them has

> different needsthan Amy,anyway I worried about this problem,if any

one

> can let me know what their thoughts are I really hardley post so

im

> not sure if you even remember me talking about .sorry so

> long.

April 11, 2005

Hi, . My kids all have attended private schools. It was our

personal choice. The schools are not required to do the IEP plans, etc.

For my son, the teachers have all been understanding, in grammar school

and high school. When he was first diagnosed, he was able to take breaks

if he wanted, do gym as he felt able. He did not need any special

considerations really. A public school would be able to provide more

accommodations if they are needed, where as a private may not be able

to. It is in Chris' records that he has JRA; we have never had any

problems with taking him out for dr visits when it was needed. If I were

you, I would see how much the school would be willing to work with your

daughters needs, see if the teachers would be understanding if her hands

hurt too much to write, what they suggest to help her, etc. Then see

what the public school would do for her. Only you can know what would be

best for your daughter, and only you know why you might prefer the

private school experience. Good luck, Michele ( 17, pauci &

spondy)

not sure what to do

Hi I havent post in a while, I hope everyones doing great,well I have

a question about my daughter 's school she is in kindergaten

but next year she will be in first grade so the question is should I

let her remain in a pubilic school or let her go to a private school?

I feel private school is longer and harder ,more homework,ect. My

husband says our older daughter is doing fine in a private school,but

I say her fingers dont hurt and you cant compare them has

different needsthan Amy,anyway I worried about this problem,if any one

can let me know what their thoughts are I really hardley post so im

not sure if you even remember me talking about .sorry so

long.

April 11, 2005

- Caroline is only going to be starting pre-school this year, but

we do know that we are sending her to a private school. Our catholic church

has one of the best private schools in the state and they are serviced by

the local school district. Anything that she needs will be serviced through

the local school district (OT, PT, etc.). They actually have enough students

receiving help in our school that they have the teachers/aides come service

them at our school instead of bussing them to the local elementary...

I hope you are able to find you answers soon. I would start by going to the

school and asking what services they provide or if they are serviced through

your local school district.

Alia and Caroline, age 3, poly and uveitis

not sure what to do

Hi I havent post in a while, I hope everyones doing great,well I have

a question about my daughter 's school she is in kindergaten

but next year she will be in first grade so the question is should I

let her remain in a pubilic school or let her go to a private school?

I feel private school is longer and harder ,more homework,ect. My

husband says our older daughter is doing fine in a private school,but

I say her fingers dont hurt and you cant compare them has

different needsthan Amy,anyway I worried about this problem,if any one

can let me know what their thoughts are I really hardley post so im

not sure if you even remember me talking about .sorry so

long.

_____

February 16, 2006

Theresa, Can you homeschool her? I would. Of course we are. LOL Benita

I am lost here what to do.

Cyber Blessings, Theresa in Fl.

February 17, 2006

Hi Theresa,

I am a theresa also but in Va.

This is going to be one long road unfortunately,speaking from 10 yrs of trying to get services for 2 autism spectrum kids.Fla has a school voucher doesn't it?

Check your state regs,for IDEA law,NCLB,and 504 which protects people with disabilities from

harrassment.

You are either going to have to obtain an advocate and work the law or move.

Please get your daughter out of that enviroment before she is mentally or physically harmed.

theresa

Not sure what to do

My 12 year old came home crying the other day.

She has been blessed with Fetal Alcohol Syndrome and Asperger.

She is very brainy and since we moved to a new school district she is having huge

social problems.

Kids are picking on her, she must wait for the bus after school about 20 min. most days and during that time kids throw things at her, mimic her etc.

She has had her school work taken from her so kids can copy it, book bag went thru and things

taken from her.

This school is a very low grade school, almost a failing school just like others in our county.

Every day she comes home telling me that teachers do not care about students and students do not care either.

I have had teacher ~parent talks but was told they see nothing wrong she is an A~ B student.

Asked for a IEP or 504 plan as I thought perhaps we could do something to help her in that.

But was told they did not see anything wrong or that her disability was affecting school.

I am tired of my child coming home crying, hating school.

She also feels that it perhaps is a racial problem as there are only 6 white students in the whole school. I am not sure of that but I do know when we adopted her she always was against people being racial so now for her to say this kind of tells me something is wrong.

I asked her if we could speak to the principle but she tells me, if I do things will only get worse from the other kids.

There is no place for her to wait for the bus other then where she does after school.

But even that would only solve some problems since she says kids are pretty mean starting after 2nd period.

I am lost here what to do.

Cyber Blessings, Theresa in Fl.

February 18, 2006

You need to not verbally ask for an IEP or a 504 if she does not have

one. You need to make a formal written request for testing and evals

to the school district, even send it certified mail. While someone may

verbally tell you something often the answers change when they must

write a response and personally sign it. Many kids with Aspergers are

average to above average, they still require multiple accomodations

and they achieve high grades and some are in gifted programs. Each

state has resourses for parents who need help to know what the childs

rights are and will guide you to get what you need. I am not fam with

Florida at all, try typing in google- Florida IEP parents- you will

get a few places you can call to at least ask for direction. Just my

opinion, but the first thing I would do is to work on bullying and

transportation. Whether you have an IEP or not, your childs safety and

well being is guaranteed. You may even want to take her to school.

candy

> But even that would only solve some problems since she says kids are

pretty mean starting after 2nd period.

> I am lost here what to do.

> Cyber Blessings, Theresa in Fl.

>

October 30, 2006

How old is your son?

On Oct 30, 2006, at 9:59 PM, klaseussgirl2003 wrote:

> my ds had a real bad day today at school.his teacher called me and

> told me that he ended up punching a girl during recess and made her

> nose bleed.

October 30, 2006

My son is 8 years old(will be 9 in Jan.)

-- Re: ( ) not sure what to do

How old is your son?

On Oct 30, 2006, at 9:59 PM, klaseussgirl2003 wrote:

> my ds had a real bad day today at school.his teacher called me and

> told me that he ended up punching a girl during recess and made her

> nose bleed.

October 30, 2006

hes 8 years old(gonna be 9 in jan.)

>

> > my ds had a real bad day today at school.his teacher called me and

> > told me that he ended up punching a girl during recess and made her

> > nose bleed.

>

October 30, 2006

Oh my gosh!...I thought I was the only mother in the world to call

the cops on my own 8 year old son!!! Not to make light of your

situation, but it's a relief to know that I am not the only one going

through what you are and vise versa...My son hasn't had one of those

episodes in a while...Weekly therapy has helped, we call her

the " Talking Doctor " ...If you have insurance, this helps a bunch!

>

> my ds had a real bad day today at school.his teacher called me and

> told me that he ended up punching a girl during recess and made her

> nose bleed.i of course got upset because that is so not right.when

i

> talked to him about it,i was calm about it but firm,i asked him why

> in the world he punched the girl.he told me that he didnt hit

> her.that he asked her not to get in the way because him and

> someothers were playing kickball.he said then she fell in the dirt

> and ended up getting a bloody nose...and the teacher said that he

> gave her the middle finger.i dont even give anyone that finger

(their

> dad isnt around much,me and their dad are divorced).i dont know

where

> he got it from(although im guessing that im sure he got it from the

> bigger kids and other kids that ride his bus etc...(he did start

> risperdal on oct.12,2006.?)i just dont know who to believe...i want

> to believe my son but yet im not sure.my son sounded sincere...he

has

> also been having trouble making rude noises,disrupting the

> class,etc...im a single mom and i just dont know what to do...he

has

> been violent(hitting his younger brother,kicking him,pinching

> him,hitting me,kicking me,etc...)i have tooken his gameboy sp

> away,his gamecube,the comp.,his friends and everything else i know

he

> wants, away from him,at first it worked but now it doesnt....please

> any advice etc is very much appreciated....thanks in advance.oh and

i

> have even threatened boot camp and calling the cops(infact one time

i

> did call the cops and asked them if they could please send an

officer

> over because my oldest was hurting his younger brother and running

> off.they did send one over here and he talked to him,but that

> obviously didnt work).....again thanks in advance and sorry so long.

> christie

>

October 30, 2006

Yeah it is helpful to know that we arent alone...we do have insurance but

its to hard for me to get anywhere...my van is broken down and I don't like

bothering other people...i have talked to my son's social worker and she is

suppose be setting up at home help(not sure exactly with whom but suppose to

help) but I havent heard anything and I have called and bugged her about it

because I(we) need the help....thanks for responding:)

-- ( ) Re: not sure what to do

Oh my gosh!...I thought I was the only mother in the world to call

the cops on my own 8 year old son!!! Not to make light of your

situation, but it's a relief to know that I am not the only one going

through what you are and vise versa...My son hasn't had one of those

episodes in a while...Weekly therapy has helped, we call her

the " Talking Doctor " ...If you have insurance, this helps a bunch!

>

> my ds had a real bad day today at school.his teacher called me and

> told me that he ended up punching a girl during recess and made her

> nose bleed.i of course got upset because that is so not right.when

i

> talked to him about it,i was calm about it but firm,i asked him why

> in the world he punched the girl.he told me that he didnt hit

> her.that he asked her not to get in the way because him and

> someothers were playing kickball.he said then she fell in the dirt

> and ended up getting a bloody nose...and the teacher said that he

> gave her the middle finger.i dont even give anyone that finger

(their

> dad isnt around much,me and their dad are divorced).i dont know

where

> he got it from(although im guessing that im sure he got it from the

> bigger kids and other kids that ride his bus etc...(he did start

> risperdal on oct.12,2006.?)i just dont know who to believe...i want

> to believe my son but yet im not sure.my son sounded sincere...he

has

> also been having trouble making rude noises,disrupting the

> class,etc...im a single mom and i just dont know what to do...he

has

> been violent(hitting his younger brother,kicking him,pinching

> him,hitting me,kicking me,etc...)i have tooken his gameboy sp

> away,his gamecube,the comp.,his friends and everything else i know

he

> wants, away from him,at first it worked but now it doesnt....please

> any advice etc is very much appreciated....thanks in advance.oh and

i

> have even threatened boot camp and calling the cops(infact one time

i

> did call the cops and asked them if they could please send an

officer

> over because my oldest was hurting his younger brother and running

> off.they did send one over here and he talked to him,but that

> obviously didnt work).....again thanks in advance and sorry so long.

> christie

>

October 30, 2006

Hang in there Christie... be firm and patient and loving. My son has gone

through all of this as well, and he has calmed down quite a bit without

medication. He just needs to feel like he's being heard by you. And loved.

And keep up the good work with discipline. It really does help. I reccomend

reading how to talk so kids will listen and listen so kids will talk, even good

for our special kids. It has helped me alot. And everyone here is there with

you, I am sure, if we could be we would!! Tami

( ) Re: not sure what to do

Oh my gosh!...I thought I was the only mother in the world to call

the cops on my own 8 year old son!!! Not to make light of your

situation, but it's a relief to know that I am not the only one going

through what you are and vise versa...My son hasn't had one of those

episodes in a while...Weekly therapy has helped, we call her

the " Talking Doctor " ...If you have insurance, this helps a bunch!

>

> my ds had a real bad day today at school.his teacher called me and

> told me that he ended up punching a girl during recess and made her

> nose bleed.i of course got upset because that is so not right.when

i

> talked to him about it,i was calm about it but firm,i asked him why

> in the world he punched the girl.he told me that he didnt hit

> her.that he asked her not to get in the way because him and

> someothers were playing kickball.he said then she fell in the dirt

> and ended up getting a bloody nose...and the teacher said that he

> gave her the middle finger.i dont even give anyone that finger

(their

> dad isnt around much,me and their dad are divorced).i dont know

where

> he got it from(although im guessing that im sure he got it from the

> bigger kids and other kids that ride his bus etc...(he did start

> risperdal on oct.12,2006.?)i just dont know who to believe...i want

> to believe my son but yet im not sure.my son sounded sincere...he

has

> also been having trouble making rude noises,disrupting the

> class,etc...im a single mom and i just dont know what to do...he

has

> been violent(hitting his younger brother,kicking him,pinching

> him,hitting me,kicking me,etc...)i have tooken his gameboy sp

> away,his gamecube,the comp.,his friends and everything else i know

he

> wants, away from him,at first it worked but now it doesnt....please

> any advice etc is very much appreciated....thanks in advance.oh and

i

> have even threatened boot camp and calling the cops(infact one time

i

> did call the cops and asked them if they could please send an

officer

> over because my oldest was hurting his younger brother and running

> off.they did send one over here and he talked to him,but that

> obviously didnt work).....again thanks in advance and sorry so long.

> christie

>

October 31, 2006

Thank you Tami.I am trying to hang in there.I am also being firm,patient,and

loving...my sons are my world.ok,thanks I will definitely check into that

book,to see if I can find it.thank you again.

christie

-- Re: ( ) Re: not sure what to do

Hang in there Christie... be firm and patient and loving. My son has gone

through all of this as well, and he has calmed down quite a bit without

medication. He just needs to feel like he's being heard by you. And loved.

And keep up the good work with discipline. It really does help. I reccomend

reading how to talk so kids will listen and listen so kids will talk, even

good for our special kids. It has helped me alot. And everyone here is there

with you, I am sure, if we could be we would!! Tami

( ) Re: not sure what to do

Oh my gosh!...I thought I was the only mother in the world to call

the cops on my own 8 year old son!!! Not to make light of your

situation, but it's a relief to know that I am not the only one going

through what you are and vise versa...My son hasn't had one of those

episodes in a while...Weekly therapy has helped, we call her

the " Talking Doctor " ...If you have insurance, this helps a bunch!

>

> my ds had a real bad day today at school.his teacher called me and

> told me that he ended up punching a girl during recess and made her

> nose bleed.i of course got upset because that is so not right.when

i

> talked to him about it,i was calm about it but firm,i asked him why

> in the world he punched the girl.he told me that he didnt hit

> her.that he asked her not to get in the way because him and

> someothers were playing kickball.he said then she fell in the dirt

> and ended up getting a bloody nose...and the teacher said that he

> gave her the middle finger.i dont even give anyone that finger

(their

> dad isnt around much,me and their dad are divorced).i dont know

where

> he got it from(although im guessing that im sure he got it from the

> bigger kids and other kids that ride his bus etc...(he did start

> risperdal on oct.12,2006.?)i just dont know who to believe...i want

> to believe my son but yet im not sure.my son sounded sincere...he

has

> also been having trouble making rude noises,disrupting the

> class,etc...im a single mom and i just dont know what to do...he

has

> been violent(hitting his younger brother,kicking him,pinching

> him,hitting me,kicking me,etc...)i have tooken his gameboy sp

> away,his gamecube,the comp.,his friends and everything else i know

he

> wants, away from him,at first it worked but now it doesnt....please

> any advice etc is very much appreciated....thanks in advance.oh and

i

> have even threatened boot camp and calling the cops(infact one time

i

> did call the cops and asked them if they could please send an

officer

> over because my oldest was hurting his younger brother and running

> off.they did send one over here and he talked to him,but that

> obviously didnt work).....again thanks in advance and sorry so long.

> christie

>

September 28, 2007

Bernadette, your son has a right to be at school until the day before

his 22nd birthday. If they can't figure out how to handle him, then

they better get their butts going! Tell them you expect them to

handle him or to find a suitable replacement (which would be at the

district's cost).

OK, first, go for guardianship. If you file for SSI or Medicaid

while he's still 17, you have to include your assets and income and

then redo the application when he turns 18. Once he turns 18, you

can't sign for him unless you have guardianship or power of

attorney. What county do you live in? I live in Dupage and I filed

all the paperwork myself. The judge in DuPage, Judge Popejoy, is

very easy to work with. The sheriff needs a minimum of two week

notice to serve the summons, so when you make a court date, give them

enough time. You can file before he's 18 as long as the court date

is after his birthday.

>

> Hi everyone

> I've been reading alot on this website but have not posted. My son

> will be 18 in Dec. So far I haven't done anything. I've heard I

> need to get guardianship then apply for ssi? I did meet with pact

> about a year ago and they said they would be in touch in Oct 2007.

> All this is very confusing. He does go to the High School 1/2 day

and

> just started at Spectrum (little friends) for a job. Today he gets

> his first pay check. This transistion has been really hard for

him

> going from high school to the adult world. And now the High School

> wants to push his graduating up to Jan. Which I feel he's too

young

> to work 5 days a week. I know by law they have to keep him there

till

> his 22nd birthday but they really don't know how to handle him. He

> has Learning Disabilities and Epilepsy and braces on his legs and

he

> has bad allergies so I get calls daily from the school nurse.

Anyway,

> what should I start doing now. Any help or advise would be greatly

> appreciated. Thanks

> Bernadette

>

September 28, 2007

I would fight to keep him in school as long as possible. Maybe they need to get

him a 1 on 1 aide or somthing, but that is their duty to allow him to stay there

until he is almost 22.

bernadette <bladinbern451@...> wrote: Hi everyone

I've been reading alot on this website but have not posted. My son

will be 18 in Dec. So far I haven't done anything. I've heard I

need to get guardianship then apply for ssi? I did meet with pact

about a year ago and they said they would be in touch in Oct 2007.

All this is very confusing. He does go to the High School 1/2 day and

just started at Spectrum (little friends) for a job. Today he gets

his first pay check. This transistion has been really hard for him

going from high school to the adult world. And now the High School

wants to push his graduating up to Jan. Which I feel he's too young

to work 5 days a week. I know by law they have to keep him there till

his 22nd birthday but they really don't know how to handle him. He

has Learning Disabilities and Epilepsy and braces on his legs and he

has bad allergies so I get calls daily from the school nurse. Anyway,

what should I start doing now. Any help or advise would be greatly

appreciated. Thanks

Bernadette

September 28, 2007

I am having the same issue with coordinating services for my son. I ended up

calling CSRA which is Community Services and Residential Authority who explained

that my 17 year old son should have had a trasitional planning meeting when he

was 14 yrs old. This meeting should have involved the school, PACT, DORS and any

other agency that is working with my son. In this meeting we are to determine

what his life will look like at age 22 and what he needs to get there. To my

knowledge we have not done an interagency meeting of this sort. CSRA was

extremely helpful and is currently working to help me coordinate this meeting

with all agencies. So we can determine the best educational plan for my son to

prepare him for adulthood. You may want to call them to discuss your issues to

see what they recommend. The toll free number is 877-541-2772.

mar

-------------- Original message --------------

From: Shirley Linden <slpanda2@...>