Re: was helping me with the question!

[Guest guest]

All my kids tested NEGATIVE to sweat test and POSITIVE TO DNA TEST. I would

suggest the blood test.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov

[Guest guest]

,

Both my Boys Sweated negative on the Sweat test but when Micah was getting

worse they decided to do DNA with him and found out that he had Cystic Fibrosis.

Right when we got here to Hawaii they did the DNA on Elijah and it came back

with the same mutations as Micahs. The Sweat Test is a great resource but when

the Kids come back negetive and child is still sick pointing towards CF DNA

testing I feel should be done.Elijah went through many months of Pain and

hospitalzations before we had a Dr that would test the DNA even with knowing

Micah's mutaions because Elijah came back Negetive on his sweat test they left

it at that and automaticaly assumed that he didn't have CF.

Katy

Military wife to a wonderful husband that protects our country

GO 2-25

Mom to

Grace 13 Wonderful helper and all around great daughter.

Micah 8, CF, Kidney disorder, Loss of Hearing in the left ear,Cronic Ear

infections,ADHD, ASD Repair

Elijah 5, CF, Seizure Disorder and Developmental issues.

GOD DOESN " T MAKE MISTAKES HE ONLY MAKES MIRACLES!

was helping me with the question!

Sorry folks,

Apparently , my 12 month old, thought that I should post the

message already. Again, my questions are as follow:

Is it possible to have a false negative result with a sweat chloride

test? Also, is it a reliable test? Are there other tests used to

daignose this disease that are better.

Any ideas??? Also, I will mention that was tested for a number

of allergies, for which he is all negative.

He has also been having trouble gaining weight (although not super

skinny, he is below the 50% according to the charts.) He keeps

trying to gain weight though, man can he eat!!

Thank you,

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

----------------------------------------------------------------------------

[Guest guest]

Sweat chloride can be negative in the presence of cf; dna is the most re

liable, provided that they do the whole spectrum; Ambry is good at this.

Best of luck, n Rojas

was helping me with the question!

Sorry folks,

Apparently , my 12 month old, thought that I should post the

message already. Again, my questions are as follow:

Is it possible to have a false negative result with a sweat chloride

test? Also, is it a reliable test? Are there other tests used to

daignose this disease that are better.

Any ideas??? Also, I will mention that was tested for a number

of allergies, for which he is all negative.

He has also been having trouble gaining weight (although not super

skinny, he is below the 50% according to the charts.) He keeps

trying to gain weight though, man can he eat!!

Thank you,

-------------------------------------------

The opinions and information exchanged on this list should IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

------------------------------------

------------------------------------------------------------------------------

[Guest guest]

I agree with Rosemary.as usual. The little ones sometimes don't show really

accurately. The blood test is really better..Best wishes

LOVE & HUGS,

GrandmomBEV

Re: was helping me with the question!

All my kids tested NEGATIVE to sweat test and POSITIVE TO DNA TEST. I would

suggest the blood test.

Rosemary in NY with 3 children (13, 11 and 7)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

my new favorite quote is

Any idiot can face a crisis -

it's day to day living that wears you out.

Anton Chekhov