Liana

[Guest guest]

Hey Liana, My name is and I'm 16. I suffer from chronic pancreatitis. I

wanna start off by saying its unfortunate about your baby. Your so strong for

going through so much. God has blessed you in many ways. My story is kinda likes

yours, I've had pancreatitis since 7, you have your ups and downs. Treasure the

good when you can. I'm sure anyone in this group can tell you that. I also had

my Gall Bladder out thinking thats what would end my night mares. Boy was I

wrong I had something else coming at me! Oh before I forget to tell you this. I

hope your Doctors have informed you that taking the risk of ERCPs can cause

Pancreatitis. That might be why your having ICKYFIED days lol thats what I call

them. I'm one of the few that has had a Total Pancreatectomy and auto islet cell

transplant. I will say I went in praying this was the end of my horrific

pancreatic moments, but I still have problems. Starting off by saying I've had

other surgeries. I don't regret having the surgery, no more pancreas pain, but

now. Well lovely now, I'm on 16 milligrams of Dilaudid every 6 hrs. Those of you

know what Dilaudid is, knows thats a SHIT LOAD of medicine to be on for 16, or

anyone at that. I have spleen problems now and they keep a close eye on my liver

functions. I have pain under my left rib cage. And my right side going down my

scar. Why? Id like to know just as well as the rest of you. They don't know why.

Between and I we do nothing but fight. I'm sure you all know who

also had the surgery from BOSTON. Were close friends. He's also having problems

after the surgery now as well. Its hard going for a surgery you don't know the

outcome of. But now its scary to live with pain you don't even know what it is.

But I'm a fighter and I don't give up. So my advice to you is stay strong and

don't give up. Your better then this disease, don't let it beat you. As for

those stones you tell them as hard as they fight they aren't going to win you

over lol as funny as that might be. But you have to pray to God he will get you

through this. I pray he sends you an angel like the angel that holds dear to

your heart. Love Always,