Re: g-tubes with a backpack

[Guest guest]

has a Mickey Button and has a back pack with the smaller feeding bags

that she can get her milk through. We have never used it. Do you have one?

If you want this one, let me know and I will send it to you. You can have it

free if you need it. She only gets her feedings at night since she is able

to eat during the day and they gave us the backpack for her to use when she

missed meals. She doesn't miss meals so we don't have to do extra feeding

during

the day.

Let me know if you want it.

Sue Pettit of Tupelo, Mississippi

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing baseball, football, band, and whatever

else he can get into, and (12 wcf) into all sports, enjoying lots of

friends, running full speed and doing all she can---diagnosed at 8 days of age

at

LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors

Lyrene and Makris (and lots of other wonderful folks, of course) at UAB

Children's Hospital in Birmingham, Alabama

[Guest guest]

We got ours from Pharmathera, our company that we get the milk and the

feeding pump from. Our insurance at the time, which we don't have that same

insurance anymore, paid for it.

Sue Pettit of Tupelo, Mississippi

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing baseball, football, band, and whatever

else he can get into, and (12 wcf) into all sports, enjoying lots of

friends, running full speed and doing all she can---diagnosed at 8 days of age

at

LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors

Lyrene and Makris (and lots of other wonderful folks, of course) at UAB

Children's Hospital in Birmingham, Alabama

[Guest guest]

We use the flexiflo pump and the backpack is for bolus like feedings, I think.

Sue Pettit of Tupelo, Mississippi

mom to (17 wocf) driving and being the most responsible 17 yo I have

ever seen, (13 wocf) playing baseball, football, band, and whatever

else he can get into, and (12 wcf) into all sports, enjoying lots of

friends, running full speed and doing all she can---diagnosed at 8 days of age

at

LeBonheur Childrens Medical Center in Memphis, Tennessee, now seeing Doctors

Lyrene and Makris (and lots of other wonderful folks, of course) at UAB

Children's Hospital in Birmingham, Alabama

[Guest guest]

How do you get the backpack? I had never heard of it and it has never been

offered to us, and Piper has had her button since Nov. 2002. If anyone knows

how I might be able to get one, please let me know.

Thanks!!!

Katy

Mom to Austin 4 no CF & Piper 18 months w/CF

[Guest guest]

We have the Zevex Enteralite, which is a great little pump. It

comes with a backpack and you can even choose the color of it. My

19 lbs daughter can carry it on her back for short periods of time.

Here is a link to it:

http://www.zevex.com/therapeutics/products/pumps/enteralite.cfm

I can't say enough wonderful things about this pump. We had a

Kangaroo Pet before this that was lucky didn't end up through a

window with all the times it would alarm on me. I love the Zevex

pump.

Georgianna

> does anyone have a kid who uses a g-tube with the backpack? I am

> interested in finding out if they are easy to use.

>

> Thanks!

>

> jennifer mom to Ashton age 2 wcf and totally g-tube fed

[Guest guest]

Hi ,

we have the g-tube that has the backpack/carrybag system but we really don't use

it a lot anymore because only gets tube feeds in the evening. The one we

have is the " kangaroo " it is pretty easy to use. just make sure it is all set

up right before you go out since it can be a pain if you have to take it all out

of the pack to fix a kink or something. hope this helps!

g-tubes with a backpack

does anyone have a kid who uses a g-tube with the backpack? I am

interested in finding out if they are easy to use.

Thanks!

jennifer mom to Ashton age 2 wcf and totally g-tube fed

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be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

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