Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 The doctors did a sweat test on my daughter when she was less than 4 weeks old. Sometimes they have to do it more than once, but the sweat test isn't based upon age, it's how much sweat they collect. It's harder to get a baby to sweat than an older child/adult. But they can still do the test, and it is still considered the " Gold Standard " for CF diagnosis. I would assume the genetic test to be as close to 100% reliability as can be. Elias 6 week old I am waiting for the genetic test result for my daughter. She has a rectal prolapse and they said CF would most likey be the cause. She is eating quite a bit. about thrity to thirty five oz a day. She is gaining weight fine but she has had a cold for about 4 weeks now. They said its okay but i would think she would have gotten rid of it by now. I am worried about what that test says. I have two other children who do not have it. I am scared she has it . I really need some support if someone can help. How relieable is this test? She had a sweat test but the doctor thinks she might be to young. Can this be true? Help ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 , I know exactly how you feel, waiting for results of the genetic test. My youngest son has CF and I have two older children. Luckily, they do not have the disease. This is a difficult time for you. You will get through it. We are all here to help you. Everything that you are feeling is normal. Did they give you a timeline as to how long it would be until the results are in? Where do you live? Are you really a red-headed 35 year old cutie? Cheryl, mom to 3 boys, Zac almost 8 wocf, Jake 3 yrs wocf, almost 2 wcf 6 week old I am waiting for the genetic test result for my daughter. She has a rectal prolapse and they said CF would most likey be the cause. She is eating quite a bit. about thrity to thirty five oz a day. She is gaining weight fine but she has had a cold for about 4 weeks now. They said its okay but i would think she would have gotten rid of it by now. I am worried about what that test says. I have two other children who do not have it. I am scared she has it . I really need some support if someone can help. How relieable is this test? She had a sweat test but the doctor thinks she might be to young. Can this be true? Help ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 Most people who test negative for CF with a sweat test don't have it, but some test negative and have it. The first thing I would have to ask is was the sweat test done at a CF center? It is sometimes done wrong at other places and I have been told that it is something that is easy to mess up. I really hope that your daughter doesn't have it but if she does it is better to know ahead of time So she can get the best treatment from the start. this is a great place for support and info so ask any questions that you want. Mom of 5 with CF and one on the way 6 week old I am waiting for the genetic test result for my daughter. She has a rectal prolapse and they said CF would most likey be the cause. She is eating quite a bit. about thrity to thirty five oz a day. She is gaining weight fine but she has had a cold for about 4 weeks now. They said its okay but i would think she would have gotten rid of it by now. I am worried about what that test says. I have two other children who do not have it. I am scared she has it . I really need some support if someone can help. How relieable is this test? She had a sweat test but the doctor thinks she might be to young. Can this be true? Help ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2004 Report Share Posted January 14, 2004 DNA testing is more reliable in a young child, and testing the stool for trypsin and for elastase is valuable as well; the good thing is that the sooner this condition is diagnosed, and the sooner treatment is begun, the better the outcome in most cases! Highest hopes, n Rojas wcf, mom of 3 WILD adults, youngest of whom has cf, too! All still kicking! 6 week old I am waiting for the genetic test result for my daughter. She has a rectal prolapse and they said CF would most likey be the cause. She is eating quite a bit. about thrity to thirty five oz a day. She is gaining weight fine but she has had a cold for about 4 weeks now. They said its okay but i would think she would have gotten rid of it by now. I am worried about what that test says. I have two other children who do not have it. I am scared she has it . I really need some support if someone can help. How relieable is this test? She had a sweat test but the doctor thinks she might be to young. Can this be true? Help ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. ------------------------------------ ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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