Guest guest Posted September 13, 2002 Report Share Posted September 13, 2002 Phyllis, welcome to the best group ever. Marie Pia is the one who has 3 children with RP. She lives in France. I'm sure she would love to hear from you and answer any questions you may have. She has 4 children and 3 of them have it. They have had it a long time I believe. They are in their early teens now I think. If you want to talk to her privately I will pass your e mail addy on to her. She is a real sweetheart. I'm so sorry to hear that has RP. It has to be hard on you. Please ask all the questions you want and feel free to share your experiences with us. We have spouses in the group and parents of children to. We are here for you to rant, rave, get information, share information, cry or share a good laugh. We like to share laughs alot. PLEASE just jump right in... we are all here for you and your family. hugs Quote Link to comment Share on other sites More sharing options...
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