Re: I need help and advice, doctors wont prescribe helmet for our son

[Guest guest]

You could ask the helmet orthos for a list of doctors who have written

prescriptions, and switch to one of them. -Kathy

estrellavila1 wrote:

As you all know there is a window to start helmet therapy but our

son is on the older side of it. He is 19 months, corrected age of 17

months. He was scanned and definetly needs a helmet and our doctors

will not prescribe it due to some unknown reason that no one will tell

us. He has a difference of 14.8mm which we learned from the scan. At a

preliminary measurement at 8 months old he was 8 mm (using calipers).

If we had known his true measurement we would have immediately put him

in a helmet.

How can I get my physicians to help with this? I am incredibly upset

and frustrated at the system.

Thanks.

[Guest guest]

Fire your current pediatrician and find a doctor who will be a true

partner in providing the best care for your child!! Ask around to

find out which local pediatrician is most supportive of respecting

and responding to parent concerns.

My daughter is 20+ months and we were just scanned for a helmet

yesterday. My pediatrician was willing to give us the prescription/

note, though he only did so because he understood that it was

important to us - not because he felt that treatment was necessary or

something that he would advise.

I wish you much luck in finding a way to move forward!

Amy

daughter Zia, 20+months, soon-to-be STARband

p.s. In case it is useful, here is the language that we provided to

the doctor to be used for the note that needed to accompany our

request for a band (because Zia is older than 18 months):

To Whom It May Concern:

Even though my patient, XXX (DOB XX/XX/XXXX), is older than the FDA-

allowable age range (3-18 months) for banding, I believe that my

patient will benefit from a cranial remolding helmet (band). I am

aware, as are my patient's parents, that XXX's skull is growing very

slowly at this point due to her age, and that only minimal correction

is expected from banding.

On Sep 3, 2010, at 4:32 PM, estrellavila1 wrote:

> As you all know there is a window to start helmet therapy but our

> son is on the older side of it. He is 19 months, corrected age of

> 17 months. He was scanned and definetly needs a helmet and our

> doctors will not prescribe it due to some unknown reason that no

> one will tell us. He has a difference of 14.8mm which we learned

> from the scan. At a preliminary measurement at 8 months old he was

> 8 mm (using calipers). If we had known his true measurement we

> would have immediately put him in a helmet.

>

> How can I get my physicians to help with this? I am incredibly

> upset and frustrated at the system.

>

> Thanks.

>

>

>

> ------------------------------------

>

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