Re: legal bifidus question----

[Guest guest]

Patti

this question may not have anything to do with your response below, but I need

clarification. We got results back from all our urine and pooh tests and one

thing my son needed was bifidus.... he had NONE in his system. DAN doc

recommended Ultra Bifidus DF by Metagenics. If all bifidus strains are illegal

on SCD how can I get this in him, his gut obviously needs it. Maybe in theory

when the gut is healed bifidus will magically re-appear???

As i am typing I recall her looking at the Kirkman's catalog and saying " oh

that's not SCD compliant " and maybe that's why she referred me to Metagenics. I

don't recall if it was for this bifidus or something else though.

Thanks

Becky 3yold ASD

SCD 7 weeks

Patti wrote:

Carol,

This starter has bifidus in it.... all bifidus strains are illegal on SCD. The

only legal strains for starter are:

l.acidophilus, s.thermophilus, l.bulgaricus and l.casei

Patti

Legal in Goat Yogurt as a Starter?

Goat milk, goat skim milk powder, bacterial cultures: streptococcus

thermophilus, lactobacillus acidophilus, lactobacillus delbrueckil

subsp. bulgaricus and bifidobacterium longuin. These are all live

cultures.

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 7 years

[Guest guest]

Your DAN doctor may have meant whatever Kirkman product that was wasn't SCD

compliant because it contained some other ingredient that wasn't legal.... like

FOS or something. She may not realise that bifidus strains are not legal. Many

of the DANs are unfortunately not completely knowledgeable about the details of

the diet, even though they are in favor of it.

That is a real dilemma, I know..... Elaine's comments on bifidus are based on

watching people get sicker when taking supplemental bifidus. We've certainly

seen that happen here, too.... with more than one child.... and at least one

adult that I can think of. I don't think Elaine disagreed that bifidus is

supposed to be down there.... but she was really worried about it's tendancy to

overgrow, opportunistically, up too high in the gut. At least, that is what I

recall about what she said.

For what it's worth, I know at least one family that introduced bifidus into

their child's body via enema (doctor recommended this.... parent didn't just do

it on her own). You'd have to discuss that with the DAN doc and see if it makes

sense to her.

I honestly can't tell you how many families have their kids on SCD right now....

and ARE going ahead and using bifidus strains, even though they know they're

technically not legal. I know some are. I know one family in particular that

is.... but they had also been on strict SCD for more than two years before they

added those strains in.

I also can't tell you how many may have used bifidus with the diet in the past

and did NOT make progress..... and eventually quit the diet, saying " SCD didn't

work " . I know some have.

I do know that one of my current private clients was using a multi-strain

probiotic that contained bifidus until recently (not realising that it wasn't

legal.... just giving it b/c the DAN recommended it), and her daughter was not

doing very well. Took the product out and she's now finally making progress.

They are keeping the product on hand.... for " maybe later " .

I think it's definitely a dilemma. It's one you have to decide for yourself.

It may be that getting stable on the diet would be the best first move

(obviously that would get my vote)...... getting some healing behind you....

THEN introducing it cautiously (by whatever means), while not making ANY other

changes, and just seeing if there was any ill effects.

It's one of those difficult things.... like I said, it's not that we can't

agree that those strains are *supposed* to be in the gut, but putting those

strains in at the top in supplemental form is really a fairly new thing. We

don't know if that really puts things " back to normal " or not. How do we make

sure the proper strains go to the proper places and live in quiet harmony with

everything else? Not sure we can guarantee anything.

ANYhoo..... I sure think it's a parents right to do whatever they truly think

is best. I just wish everyone would try to get some solid time down with the

diet, 100% compliant, and then add these other things in later if they really

feel they must. I've just seen too much frustration with families not being

able to make headway with the diet while trying to pile 40 different supplements

and chelation treatments and everything else into the mix, all at once. It's

sort of like " Let's do EVERYTHING good that there is in the whole wide

world..... RIGHT NOW " ... when maybe it would actually all work better, and fall

into place better, if they took it one step at a time. Just *maybe*.

Patti

Re: legal bifidus question----

Patti

this question may not have anything to do with your response below, but I need

clarification. We got results back from all our urine and pooh tests and one

thing my son needed was bifidus.... he had NONE in his system. DAN doc

recommended Ultra Bifidus DF by Metagenics. If all bifidus strains are illegal

on SCD how can I get this in him, his gut obviously needs it. Maybe in theory

when the gut is healed bifidus will magically re-appear???

As i am typing I recall her looking at the Kirkman's catalog and saying " oh

that's not SCD compliant " and maybe that's why she referred me to Metagenics. I

don't recall if it was for this bifidus or something else though.

Thanks

Becky 3yold ASD

SCD 7 weeks

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